Forum Widgets
Recent Discussions
🔬 Share Your Views: Early-Onset Cancer Research 💗
Have you been diagnosed with cancer between the ages of 20 and 49? Your experience could help shape future support, services, and research for others affected by cancer. 🌟 Researchers at Queensland University of Technology (QUT) are seeking people with lived experience of early-onset cancer to share their insights through a research study exploring life during and after a cancer diagnosis. A cancer diagnosis at a younger age can affect many aspects of life, including: 💼 Work and career 📚 Study and education 👨👩👧👦 Family responsibilities ❤️ Relationships 💰 Finances and future planning The research aims to better understand the unique challenges and support needs of people diagnosed with cancer between the ages of 20 and 49, helping to inform future programs and services across Australia. This study has been approved by the QUT Human Research Ethics Committee (Project ID 11485). ✅ You may be eligible if you: • Were diagnosed with cancer between the ages of 20 and 49 • Received your diagnosis and treatment in Australia • Currently live in Australia 📝 What's involved? • An anonymous online survey (approximately 20 minutes) • An optional one-on-one interview to discuss your experiences in more detail 💡 Every story shared helps build a better understanding of what it means to live with and beyond cancer at a younger age. 📄 Interested in learning more? View the QUT flyer below.25ViewsSign in to react to this post0Comments📢 Loneliness & Social Isolation Research Study for People Living with Long-Term Health Conditions
Researchers from Monash University are looking for people with lived experience of loneliness or social isolation to take part in an important study. The research aims to better understand what makes support programs most useful, accessible and appealing for people living with long-term health conditions, including breast cancer. You may be eligible if you: ✅ Are aged 18 years or older ✅ Have experienced loneliness or social isolation (currently or in the past) ✅ Have been living with a diagnosed health condition for 12 months or longer. Examples include breast cancer, other cancers, heart disease, diabetes, anxiety, depression, arthritis, asthma and other long-term health conditions. 📝 What's involved? A confidential online survey taking approximately 25 minutes to complete. Participants can also choose to enter a prize draw to win one of ten $50 e-gift cards. Your feedback will help researchers design better support and social connection programs for people living with long-term health conditions. 🔗 Take the survey For research questions, contact: Sharon Clifford Monash University 📞 (03) 9902 4474 📧 [email protected] Thank you for considering this opportunity to share your experience and help shape future support services. 💗ViewsSign in to react to this postComments📣 Have Your Say on the Future of Hospital Care in Australia
You are invited to contribute to an important national consultation on the next edition of the National Safety and Quality Health Service (NSQHS) Standards. These Standards help guide the safety and quality of care provided in public, private and day hospitals across Australia. They are reviewed every 10 years, and this is your opportunity to help ensure the next edition reflects what matters most to patients, families, carers and consumers. 💬 Why participate? Your experiences and insights can help shape future hospital care, ensuring the voices of people affected by breast cancer are heard. Whether your healthcare experiences have been positive, challenging, or somewhere in between, your feedback is valuable. 📝 About the survey Takes approximately 20 minutes to complete All questions are optional You can skip questions, take breaks, and return later using the same device You may review the draft Standards or a shorter Patient and Consumer Requirements summary before participating Survey closes 25 September 2026 Please note that some questions may ask you to reflect on personal healthcare experiences and may feel sensitive. If at any time you need support, you can contact Lifeline on 13 11 14. 🔗 Complete the survey 📢 Feel free to share this opportunity with others in your networks who may be interested in providing feedback. Your lived experience is powerful. By having your say, you're helping shape safer, higher-quality healthcare for current and future patients across Australia. Thank you for helping ensure the voices of people affected by breast cancer are part of this important conversation. 💕ViewsSign in to react to this postComments⏱️Last chance: BCNA's Policy & Advocacy survey closes at midnight❗
Complete the survey before it closes at midnight today: https://researchsurveys.deakin.edu.au/jfe/form/SV_5p9gsRqbkfZf5zw We've already received a huge range of voices helping to shape our future Policy & Advocacy efforts - and we would love to hear from you too! Your insights will help identify what's working well, where gaps exist, and what issues need greater attention over the next four years. 📝 The survey takes approximately 15-20 minutes to complete and closes at midnight tonight. Participation is voluntary, and you can skip any questions or exit the survey at any time. Thank you to everyone who contributes to this important work and helps ensure the voices of those supporting people affected by breast cancer are heard. 💕ViewsSign in to react to this postComments🧠 Research Opportunity: Have You Experienced "Brain Fog" After Cancer Treatment?
Many people affected by cancer notice changes to their memory, concentration, thinking or mental clarity during or after treatment. Researchers at Griffith University are looking to better understand these experiences and how support can be improved for older Australians affected by cancer. 💗 Your experiences could help shape future support, information and services for people affected by cancer. 👥 Who can take part? You may be eligible if you are: A person who: ✅ Is aged 60 years or older ✅ Has a current or previous cancer diagnosis ✅ Has noticed changes to memory, concentration or thinking OR A caregiver, family member or support person who: ✅ Supports someone aged 60 years or older with a current or previous cancer diagnosis ✅ Has noticed changes to their loved one's memory, concentration or thinking You must also: ✅ Live in Australia ✅ Be able to complete the survey in English 📝 What's involved? Participants are invited to complete a short online survey, which takes approximately 15 to 20 minutes. The survey explores: 🔹 Experiences of cancer treatment 🔹 Changes to memory and thinking 🔹 The impact on everyday life 🔹 What support would be most helpful At the end of the survey, you can also choose to take part in a one-hour follow-up interview. 🎁 Participants will receive a gift card as a thank you for their time. Interview participants will receive an additional gift card. 🔬 About the research This Griffith University study is investigating cancer-related cognitive impairment, sometimes referred to as "brain fog", including changes to memory, concentration and thinking that can occur during or after cancer treatment. The research has been approved by the Griffith University Human Research Ethics Committee (GU Ref No: 2025/816). ❓Questions? Research Team Associate Professor Kerryn Pike 📧 [email protected]ViewsSign in to react to this postComments📢 Share Your Experience: Emotional Wellbeing After Breast Cancer Treatment
Researchers from Federation University Australia are seeking Australian women who have completed active breast cancer treatment to take part in a short anonymous survey exploring: 💗 Self-compassion (being kind to yourself) 💗 Fear of cancer recurrence 💗 Emotional wellbeing after treatment By sharing your experiences, you'll help researchers better understand the emotional and psychological impacts of breast cancer and contribute to improving future support for those affected. You may be eligible if you: ✅ Are an Australian woman aged 18 or older ✅ Have completed active breast cancer treatment (surgery, chemotherapy and/or radiation therapy) ✅ Can complete a survey in English Please note: ongoing hormone therapy or medication after active treatment does not exclude you from participating. 📝 What's involved? • Anonymous online survey • Takes approximately 10-15 minutes • No identifying information is collected Complete the survey here Whether you finished treatment recently or many years ago, your experiences are valuable. Study Title: Self-compassion, Fear of Cancer Recurrence and Emotional Wellbeing in Breast Cancer After Active Treatment For more information, contact: Dr Bianca Denny 📧 [email protected] 📞 0411 221 847 Thank you for considering this opportunity to help shape future breast cancer support and care. 💗ViewsSign in to react to this postComments📢 Research Opportunity: Share Your Views on Online Exercise Programs for People Affected by Cancer
Researchers from the University of Melbourne are inviting people living with cancer actively or post-treatment to take part in a study exploring how remotely delivered, group-based exercise programs can be made more engaging, supportive and accessible. 🤸♀️Exercise can play an important role in cancer care, helping to improve physical fitness, reduce treatment-related side effects such as fatigue, and support emotional wellbeing. While telehealth exercise programs can make it easier to access professional support, researchers are keen to better understand what helps people feel connected, motivated and supported when participating online. Who can take part? You may be eligible if you: ✅ Are aged 18 years or older ✅ Have been diagnosed with cancer at any time ✅ Are able to complete a survey online (or by telephone with research assistant support if needed) The survey is available in English, Mandarin and Vietnamese, with telephone support available in these languages. What's involved? Participants will be asked to complete a survey (approximately 25 minutes) that explores: Views on online group exercise programs Factors that would encourage participation Strategies that could improve support, engagement and personalisation Experiences with telehealth Information about cancer diagnosis, treatment and demographics Some questions may be personal, and you are welcome to skip any questions you do not wish to answer. How will your feedback help? The findings will help exercise professionals and health services design future telehealth exercise programs that better meet the needs of people affected by cancer. 🔗Participate in the survey here This study has been approved by the University of Melbourne Human Research Ethics Committee (Reference No. 2026-36117-82542-4). As always, participation is entirely voluntary. If this research is of interest to you, we'd love for you to consider sharing your experience and perspective. 💕 Thank you for helping to improve support and care for people affected by cancer.ViewsSign in to react to this postComments📢Have You Taken Endocrine Therapy After Breast Cancer Surgery? We'd Love to Hear From You
Have you been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer and received treatment after surgery? BCNA is partnering with Inherited Cancers Australia (ICA), So Brave, healthcare professionals, and independent healthcare research agency Elbow Insight and Strategy to better understand the experiences of people diagnosed with this type of breast cancer. The findings will help improve understanding of the challenges, needs, and experiences of people affected by breast cancer, and help inform future support for our community. 🌸 Who can participate? 👇 You may be eligible if you: ✅ Are aged 18 years or older ✅ Have been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer ✅ Are currently taking, or have previously taken, treatment after breast cancer surgery, including hormone-blocking (endocrine) therapy What's involved? 📝 The study starts with a few short screening questions to confirm eligibility. If eligible, you'll be invited to: ✨ Complete a 25-minute online survey ✨ Optionally register your interest in a second phase involving a 7-day online diary (approximately 45 minutes in total) As a thank you for their time, participants will receive a payment for participating. 💕 👉 Interested in participating? Register for the Research Study Here Thank you for helping us better understand and support people affected by breast cancer. 💖ViewsSign in to react to this postComments🗣️ Invitation to share your voice: Understanding Cancer Related Stigma Through Lived Experience
BCNA’s Consumer Engagement team is inviting members of our Online Network to share their experiences of stigma and shame following a cancer diagnosis. Cancer related stigma is not only about visible changes. It can be social, cultural, emotional, and systemic. It can affect how people see themselves, how others respond to them, and how safe they feel seeking care or support. These experiences are often deeply personal, and they can vary widely across communities, cultures, and healthcare settings. 🌏 Why your perspective matters In June, a BCNA trained Consumer Representative will be presenting at the Multinational Association of Supportive Cancer Care Australia Conference. This presentation will bring consumer voices into an international conversation about whole person care, supportive care, and the importance of patient partnership in addressing stigma. To ensure this presentation truly reflects the diversity of experiences across Australia, we are gathering insights from our broader network of members. 📝 Take part in the survey By completing this short survey, you will help shape the content of the presentation and strengthen the messages shared with clinicians, program leaders, policy makers, and researchers. Your voice will help ensure lived experience remains central to conversations about stigma, care, and support. 👉 Take the survey here 🗓️ The survey closes on Friday 8 May 2026 📩 If you have any questions, please contact [email protected] Thank you for considering sharing your experience and helping amplify the voices of people affected by cancer.ViewsSign in to react to this postComments🌸 Research opportunity: Healthy lifestyle support after breast cancer
Women across Australia are invited to take part in a research study exploring views on exercise and nutrition support after a breast cancer diagnosis 💗. This study aims to better understand what encourages or discourages participation in lifestyle programs, when support feels most helpful, and what information women need to make informed decisions. The findings will help shape the design of a future exercise and nutrition trial for women after breast cancer treatment. 👥 Who can take part Women aged 18 years and over who have been diagnosed with breast cancer at any stage, are currently in treatment or have completed treatment, and live in Australia. 📝 What’s involved Participants will be asked to complete an anonymous online questionnaire. There is also the option to take part in a short online or phone interview lasting around 30 to 40 minutes to share views in more depth. Participation is voluntary, and people can pause or withdraw at any time. 🔬 Researcher spotlight This study is led by Dr Cindy Tan, a senior clinical dietitian and cancer survivorship researcher with more than 20 years of experience supporting women after cancer. Dr Tan is passionate about developing practical, realistic lifestyle programs that support confidence, wellbeing, and long‑term health after breast cancer 🌱. 📩 Want to know more For study enquiries, contact Dr Cindy Tan at [email protected] For BCNA related questions, contact [email protected]ViewsSign in to react to this postComments🍎Help shape a new nutrition resource after cancer treatment
A new research study called Survivorship Bites is inviting people with a lived experience of cancer, as well as carers, to take part in co‑designing a nutrition resource for people living with and beyond cancer. This study aims to create practical, evidence‑based information to support eating and drinking well after cancer treatment. Participant experiences and ideas will help guide the development of this new resource. 👥 Who can take part? People aged 18 years and over Victorian residents Those with lived experience of cancer within the past 10 years, or carers for someone who does 💬 What’s involved? Up to four online workshops via Microsoft Teams Each session runs for around 1.5 to 2 hours One short online survey Gift vouchers are provided to thank participants for their time 📅 Important dates Expressions of interest close 14 April 2026 If this sounds like something of interest, members are encouraged to express interest via the link or QR code provided below. Your voice can help shape meaningful support for people after cancer treatment 💛 For more information please contact Project Officer: Kirsty Rowan Peter MacCallum Cancer Centre Phone: (03) 8559 5220 Email: mailto:[email protected]ViewsSign in to react to this postComments📢 Have you ever faced a big bill, or a long journey just to get a diagnostic breast scan? We want to hear from you.
When you find a concerning lump or notable change in your breast, one of the most important things that you should be able to access quickly and safely is the answer to: is this breast cancer? We know that for too many people in our community, the pathway to diagnosis is full of barriers: high out‑of‑pocket costs, long waitlists, no public imaging options, or hours of travel just to access essential scans. ✨ As part of our End‑of‑Financial‑Year national advocacy campaign, we’re calling for fair and equitable access to diagnostic imaging for all Australians. To do that, we need real people to share their experiences and stories that show what is happening right now. BCNA is seeking lived experiences from anyone who has faced challenges such as: 🔸 Travelling long distances or interstate for a diagnostic breast scan 🔸 No public diagnostic facility available in your region 🔸 Significant out‑of‑pocket costs for essential imaging 🔸 Long waitlists that delayed your diagnosis 🔸 Impacts on treatment, health outcomes, or mental wellbeing due to these delays. 💪 Your story is powerful. It can help us demonstrate that access to a diagnosis is not a luxury - it’s a right. Your story will help us advocate for a system where every Australian gets the answers they need, regardless of their bank balance or their postcode. If you’re interested in having your voice heard and suppotring BCNA's advocacy efforts, please complete our Expression of Interest form here; 👉 https://formstack.io/907FC All stories will be handled with the utmost care and confidentiality by our Communications department. Thank you for helping us shape a better system where every Australian can get timely, equitable access to the diagnostic care they deserve ❤️ViewsSign in to react to this postComments📢 Help Us Advocate for Better Access to Day Chemo & Day Procedures 🌟
We’re looking to connect with patients who are currently stuck on public waiting lists, especially those waiting for day procedures or who are travelling long distances just to receive day chemotherapy. If this sounds like you (or someone you know), we’d love to hear from you. 💡 Why we’re gathering volunteers We’re working on an initiative to highlight how shifting more elective procedures (including all day chemotherapy) into day hospitals could make a meaningful difference. Day hospitals can perform these treatments at around half the cost of overnight hospitals. If more care moved into this setting, it could help reduce pressure on private health insurance premiums and create a more efficient system overall. At the same time, we believe public patients shouldn’t be left waiting months when many of these procedures could be done safely and promptly in day hospitals. Your stories can help demonstrate why this matters. 🤝 How you can help We’re seeking volunteers willing to share their experience (big or small) to support this advocacy work. Your voice could help drive change toward a system that is fairer, faster, and more affordable. If you’re interested in being involved or would like more information, please get in touch with Jannette at 0419 204 059 or [email protected] Together, we can push for solutions that truly put patients first. 💙ViewsSign in to react to this postComments📝Survey: Were you Diagnosed with Breast Cancer Between Screens?
Breast Cancer Network Australia is inviting women in our network to share their experiences of being diagnosed with breast cancer soon after receiving a BreastScreen Australia “all clear” result , often called an interval cancer. ✨ In March, a BCNA‑trained Consumer Representative will be presenting at the BreastScreen Australia Conference, bringing real women's voices directly into discussions about screening, communication, and care. To ensure the presentation truly reflects these experiences from across Australia, we’re gathering insights from our Online Network community who have received an interval cancer diagnosis. 📝By completing this short survey, you’ll help shape the presentation and strengthen the messages delivered to clinicians, program leaders, policymakers, and researchers. Your voice matters – help shape a national conversation 💬 👉 Take the survey: https://www.surveymonkey.com/r/DXXGBZW 🗓 Closes: Friday, 06 February 2026 Thank you for sharing your experience and helping to shape the future of breast cancer healthcare🙏ViewsSign in to react to this postComments🗣️ Share your views: A survey of Australian cancer patients regarding current patient education practices
You can participate in this study if you have received treatment for a cancer diagnosis in the past 24 months. Researchers from Monash University are conducting a survey that aims to identify the current practice of oncology nursing education in Australia. It intends to identify if a consistent and holistic approach to education is being provided and what factors may prevent this from occurring. The survey will explore your experience in relation to the education you received by oncology nurses prior to commencing your initial treatment for your cancer diagnosis. At the conclusion of the survey, you will be taken to a second survey to register your interest to participant in a focus group to discuss your experiences. If you decide to leave your contact details, the researchers will follow up with you and provide further information on what is involved in the focus group. You would then need to provide written consent to participate. For more information and to participate in the study please click the link below: Click here to participateViewsSign in to react to this postComments
25Views
0Comments
You’ve seen all recent content