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Cancer Australia FAQs COVID-19 Vaccine
Hello everyone, Cancer Australia has compiled a list of Frequently Asked Questions (FAQs) based on input from cancer clinicians and people affected by cancer, including via a roundtable meeting of key cancer control stakeholders, consultation with consumer representatives and organisations, and queries and concerns raised…
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Letrozole - Fracture in spine
Hi, a couple of weeks ago I posted about pain in my bones in my ribs and needing a bone scan. At the time the doctor was checking on bone mets. Well I don't have bone mets which is great but the bone scan revealed a fracture in T9 of my spine and osteoporosis. This is scary because I have not even injured myself. I do…
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Announcement today re fifth COVID Vaccination
Am I eligible for a fifth COVID-19 vaccine? All people aged 18 and over, who have not had either a COVID-19 vaccine or confirmed coronavirus case in the past six months, can get their latest shot from February 20. Previously, a fifth dose was only available in Australia to adults who were severely immunocompromised. ATAGI…
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Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
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S E QUEENSLAND SUPPORT GROUPS
If YOU live in SE Qld from Northern NSW to Mackay I have compiled a list of face to face support groups. I started local support group on the Gold Coast back in 2019 and we now have 630 members - We opened our support group to include Ovarian due to the BRCA gene then gradually to ALL cancers for women on the Gold Coast.…
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Autologous fat grafting months after implant placement
Hi everyone. I am just wanting some advice on the autologous fat grafting procedure and its success. It has been 10 months since my implant has been placed in my left breast after having a tissue expander after a mastectomy. I had high-grade DCIS but fortunately I did not need chemo or radiation. Post mastectomy surgery I…
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Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
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Are you childless ? A private group especially for you ....
Breast Cancer, Childlessness and Us.... This group has been formed to support the childless men and women by choice or by circumstance during treatment or after treatment. As childless women, we are 1 in 8 women and incredibly, 1 in 8 women overall that will be diagnosed with breast cancer. 38% of the world's population…
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Trial drug.
Hi there i have recently been diagnosed with secondary breast cancer and have had radiation on my spine and leg. November 2022. Has anyone started a trial drug called OP1250 please? It’s in conjunction with palbociclib. Or any information about palbociclib would be appreciated also as I start that this week. Kind regards.
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It’s scanxiety that finally pulled me down…
I found a lump in May 2021. In January 2022 I was finally diagnosed, after a single mastectomy, with triple negative metaplastic carcinoma. This is a rare breast cancer, with the worst prognosis of them all. I sailed through the mastectomy. I endured four cycles of TC, came out feeling terrible, but quickly recovered and…
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Flat or Implants ?
Hello! I was diagnosed in August ‘22 have just finished 6 chemo rounds with 12 more Herceptin treatments to go. My surgery is Feb 23 for a double mastectomy. I am considering immediate recon with implants and am seeking any advice you may be able to share with me based on your own experiences with implants. Thank you 🙏…
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Newly diagnosed, WLX / Lumpectomy - What's next ...
I had my routine MG at BreastScreen in mid-Nov 2022, and got called back to do further MG, US and biopsy after 2 weeks. On 8/12/2022 got told I'd got breast cancer ER+, PR+, HER2 pending. BreastScreen had also arranged my initial Oncology appointment in the public sector in a week time, and told me that my surgery would…
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5 years, all Clear - signed off with my surgeon yesterday
Travelled to Sydney in the stinking hot weather on Thurs (no aircon in the campervan!) and arrived at my cousin's place, like a grease spot on the floor! Great catching up with them again & also caught up with an ex flatmate I hadn't seen in decades & a squash buddy that I used to play with weekly ... hadn't seen him or…
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Heart aflutter again.
I just spent the day in hospital with a heart flutter. I am on beta blockers, as it happened about March last year too. Not sure if it is my age or a follow on from the 2016 chemo but it is annoying to have what is basically 2 heart rhythms working against each other. The doc said a second rhythm can start and it says, 'I…
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achievement!
At the risk of sounding ridiculous, I am so proud of myself. Today I went to the dentist to get a filling replaced, and I DIDN'T CRY! I was shaking afterwards but I did it. Go me.