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NDIS - Help needed
Hi there everyone, I am wondering if there is anyone out there that has successfully been able to access NDIS help for severe lymphoedema as a result of lymph node removal?? For reference, I have gone through the application process with every single piece of documentation that you could poke a stick at, but have now been…
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Reclaim Your Curves (RYC) Charity - wind up
Sharing post from the group leaders of the Choosing Breast Reconstruction group to the wider Online Network community:
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So unsure
It's scary and it has moved so fast. I was called back for 'Further Assessment' in mid april...I actually can't remember the date. I know I had the core needle biopsy on 22nd April, a couple of days after my 67th Birthday. I was called back 7 days later for the result - Invasive Breast Carcinoma Stage 1 - 2. That was on…
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Recent ILC diagnosis
Hi i wouldnt have known i had ILC had a lesion not showed up on my mammogram.ive been having regular mamms since i turned 40.i ve just turned 63. A lesion showed up on my mamm i was sent to breast cancer clinic at qe2.ultra sound showed up ILC.4 tumours.7cm.it was a scary reality.my whole life has done a complete 360.talk…
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Lobular Breast Cancer really IS the 'sneaky one' .... a journalist & pathologist explains why
A pathologist explains & shows how Lobular 'presents' in the pathology slides ... Well worth a watch, to understand it a bit better. https://iview.abc.net.au/video/LABS2021103188542
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What's your favourite song that helps you through chemo/ treatment?
Hi All I've been putting together a play list of songs to listen to during chemo/ treatment. Some help to energise me and others soothe. What's your favourite song or tune that gets you through?
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MyJourney App on Android Phone
Hi all, Just wondering if anyone else has had issues trying to run the app on an Android phone? Both Rebecca and I have tried and while the app loads, it just starts then immediately shuts down. It looks like it would be a great app, especially as we start on our journey, it's just a shame we can't use it properly at the…
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An amazing lady who has had BC Mets for 40 years ..... they want to know about her longevity!
How amazing is this woman? (BTW, This article is 6 years old now - and as at 2021, she was 85 and was still going strong.) Margaret “Peg” Geisler, has now been living with breast cancer for 40 years, and with metastatic disease for 36 of those years. Peg’s records showed she originally had breast cancer in 1978, it…
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Undergoing a double mastectomy with Coronary Artery Disease and a previous heart attack
Hi. Has anyone had a double mastectomy whilst on aspiring and heart meds? I am having surgery soon and worried about the risk of being overweight, having had a previous heart attack and Coronary Artery disease. I have read that these all increase the risk of another heart attack after the operation which is terrifying me.…
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Cancer wellness circle - new - Brisbane Northside
I'm Cath and I’m starting a CANCER WELLNESS CIRCLE. For women and men who are going through/ have gone through a breast cancer journey. We will talk about holistic mind-body-spirit healing, alternative therapies, metaphysical/spiritual healing and everything outside mainstream healing. I'm a survivor of breast cancer of 8…
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'Getting on with life' tips
Moderator moved @Batjam to the main discussion section of forum:
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ILC Stage 2
Moderator moved @tarshy post to 'Newly Diagnosed':
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12 weeks of Taxol and tumour has not shrunk TNBC
Hi all i was wondering if anyone has had the same experience as me with Triple Negative breast cancer? I was diagnosed in Febuary and have had 12 weeks of Taxol chemo and been for an ultrasound and the tumour hasnt changed at all. I am feeling so disappointed
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Newly diagnosed and treatment started
Hi I recently posted my diagnosis date in the wrong area. Think it is community adverts. Anyway...I was diagnosed after a core biopsy on the 16th of May. On the 17th of June I had a partial mastectomy. Surgeon post op appointment last Monday to be told that the little buggers (put nicely) were in 3 of 4 lymph nodes, which…
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Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you continue to try another chemo treatment? Thanks in advance 🙂