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Can not believe it.
Shock, denial, anger - cant imagine how I can move towards acceptance. Newly Dx. Initially was stage 2, then told stage 3 and now looking at stage 4 with lung mets. What the! This roller coaster is insane and I want to get off. Found a lump 8 weeks ago, took a month to get into my rural GP, another 2 week wait for scans…
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World Childless Week - this week
Many people are childless and, whilst some never wanted them in the first place, some really did but it was not to be. This story appeared on my ABC feed on Monday. Personally, I empathized with the gentleman whose story also appeared. "Why don't you just adopt? You can have one of mine! At least you get to sleep-in… When…
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Hair Loss Advice
Hi beautiful people. I have just commenced chemo a few weeks ago and I am just starting to lose my hair. I have bought some hats and scarves but I would appreciate some advice on wigs. Looking at the possibility of a real hair wig? Would really appreciate your opinions. I live in the the Wollongong area. Thanks ☺️
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Struggling with Negative Emotions
Good morning, I am new to the forum so apologies if this subject has been discussed previously. I had a double mastectomy in March 2024. Breast Cancer is so prevalent in my family, but all other family members have only needed a lumpectomy, not a double mastectomy. I'm not belittling their experience, but I feel I don't…
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Questions to ask 'Post Surgery' of yourself - to your Specialists - Tick Sheets - Self assessment
I know that after my own surgery, I didn't always quite know what questions to ask of my surgeon and 'the team' that we all see regularly for the first 5 years following our treatment - so I set about looking for 'tick sheets' that would help me, as these appointments approached! I came across some really interesting…
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Wishing @Cindi a VERY happy 70th Birthday for TODAY
Wishing @Cindi a wonderful 70th birthday today, with family & friends xx I've beaten you to the 70s club by one year!! ;) xx You've had a pretty tough 12 months .... so hope this is the turning of the corner for you and wishing you many more Happy Birthdays xxx I hope you can celebrate with a wee glass of wind - and enjoy…
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Online Network Survey - Results
Thank you for taking part in our digital research As some of you may know, we need to move the Online Network to a new platform, as part of a wider project to improve our online resources. We ran a survey and conducted interviews with members of the network to gather information such as: * What works well and what needs to…
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Helping make decisions
Hi, my Mum is 78 and was diagnosed with hormone positive breast cancer in 2023, she has had her surgery and radiotherpay and is now on her hormone blockers. She now needs to make a decision about taking zometa, weighing up side effects with quality of life in your later years. She wants me to help her make a decision she…
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Enhertu for people living with HER2-low metastatic breast cancer
We have some amazing news to share with our network today, following an announcement this morning from the Australian Government. People living with HER2-low metastatic breast cancer will, from 1 September 2024, have access to the life-prolonging drug Enhertu (trastuzumab deruxtecan) through the Pharmaceutical Benefits…
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Hot spa's and stage 4 breast cancer?
Hi ladies, I am about to head down to warrnambool with my breast cancer support group for long weekend retreat. We are visiting hot spa's on Sunday and my question is can I go into hot spa? I don't have lymphoedema, did have auxiliary clearance on right arm. Have tried to call breast Care nurse and left message, just…
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A new Cancer Clinic in Sydney to include Regional NSW Hospital partnerships as well
$20 million to establish world-leading clinical trial centre for all NSW residents 17 August 2024A world-leading clinical trial centre in Sydney will soon provide increased access to international cancer clinical trials, thanks to a $20 million donation to the NORTH Foundation from philanthropists Greg Poche AO and the…
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Supporting you through the current media coverage
Good morning all, As we’ve seen unfold in discussions over the past week in the online network, many of you have been impacted by the media surrounding a celebrity’s choices during their own cancer treatment. This is not the first time, nor the last, that a high-profile person will make statements that can affect those of…
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Hello
I’m Simone diagnosed 2019 HER2 positive & TNC stage 3 Grade 3 BC I have never joined an online group like this before so I’m not really sure how to navigate around. I feel it’s taken me this long to be able to retrospectively think about the last 5 years. I feel I have just been in survival mode. So now I’m trying to piece…
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New here
I was diagnosed a week ago with triple positive Grade 2-3 Lobular breast cancer. Finally told my family and kids which was one of the hardest things. The information and scans, biopsies, tests, clip implants, chemo port op… it’s such a lot to take on so quickly. Hoping this will settle down once scan results are in and…
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Have your say on the Online Network
Later this year, we need to move the Online Network to a new platform as part of a wider project to improve our online resources. To help us make the best decisions around functionality, processes, look and feel, and more, we invite you to complete a short, anonymous survey. All questions are optional and you can use any…