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Newly Diagnosed - story so far
Moderator moved @hays post from activity section to main 'Discussion' section:
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Olaparib (Lynparza) for metastatic breast cancer in people with a BRCA gene mutation
Urgent opportunity As some of you may know, BCNA provides a
consumer comment to the Pharmaceutical Benefits Advisory Committee (PBAC) in
support of drugs being considered for subsidy on the PBS. Equity of access to
new treatment options is especially important for those with metastatic breast
cancer. Our policy team are…
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Today's feelings in poetry
Lucky So lucky, people say. That they caught it when they did That it hasn’t spread That they got it all That I have insurance So, so lucky. That my friend told me about her cancer That I finally moved my arse and Went and had that mammogram That I live in the lucky country So lucky That my prognosis is good That my job…
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Happy birthday to @TillyBilly for today
Happy birthday wishes to @TillyBilly I hope that you have a lovely day
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Waiting for Appointment after Referral Peter Mac
Hello friends, I am newly diagnosed with invasive carcinoma found on a routine mammogram and need a lumpectomy and radiation. I have heard all the advice about not being in a big rush to cut it out asap but I'm curious how long you waited after the referral for Peter Mac? I know it's cat A for surgery (>30 day wait).…
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Happy birthday to @arpie
To dear @arpie We wish you a very happy Birthday for today I hope you have a great day doing something that brings you joy like a day fishing 🎣 in your canoe or a strum on your ukulele Thank you for all the support that you give the group lots of love and birthday wishes coming your way
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Is this group still active?
I now have a pleural effusion… 5 years after the fact.
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Happy birthday to @may for 26 May
Wishing you a very happy birthday @May
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50's and onwards with breast cancer
Opening up this discussion for people who have or struggling with the news and we can support each other
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All the tests and scans
Hello everyone, I’m so sorry we’re all here and so grateful to have people Around to turn to. I was diagnosed yesterday after a mammogram, US and biopsy last week. I have IDC grade 2 stage 1. ER+ and PR+. Still waiting for results of HER2Today I had an MRI and CT using liquids via a cannula. Friday I have another biopsy on…
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Last nights webinar - Let’s cut through all the hype! Why exercise?
Last night I jumped onto the webinar about exercise, Did any one else on here also watch? I found it to be very insightful, but due to the fact I was trying to mullite task as most of us do (haha), listen and read the comments as well as add in my bit, I missed a bit about strength exercise twice weekly, I found the…
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Choosing to stop treatment
I was diagnosed with metastases in October last year and was given ~12 months. We tried Trodelvy but it was too hard on my body. Tried Eribulen but a recent CT scan showed it’s not working. my onc has said we could try liposomal doxyrubicin but I had a horrible time on doxorubicin last year. He estimates I have maybe 2 - 3…
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10 years on - Survivor
It’s been such a long time since I’ve been on this chat and tonight I’m wanting to celebrate a milestone for me and give others hope- chemotherapy is definitely a great part of why I’m still here 10 years down the track from my diagnosis of stage 3 breast cancer but it takes away so much too. I was shattered to lose my…
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Have your say on the online network
Dear fellow network members, If you are like me and sometimes don't check the announcements; I am re-posting Mez's announcements message about the review of the online network. Please all take part in the survey which is open until next Monday.
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10 years on from diagnosis
It’s been such a long time since I’ve been on this chat and tonight I’m wanting to celebrate a milestone for me and give others hope- chemotherapy is definitely a great part of why I’m still here 10 years down the track from my diagnosis of stage 3 breast cancer but it takes away so much too. I was shattered to lose my…