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Lonquex
Hi All. Anyone on Lonquex after Chemotherapy. I have been having bone/ muscle pain in the pelvic region and legs after taking it on day 2. Just wondering how others are managing the side effects.
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DCIS
New diagnosis for DCIS. Waiting to have a MRI before surgery to confirm what they have seen on the scans and biopsies are are accurate. Like to hear stories of similar experiences please to help with understanding. Thanks
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Lumpectomy done - margins question
Hello everyone, so I had my lumpectomy 2 weeks ago now and my pathology results are back. Surgeon said it is good news, nodes are clear and he got clear margins. So I did a happy dance. Now reading my pathology report I see that "distance from nearest margin" is greater than 5mm, but for two sections they are 1mm. Now my…
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Feeling overwhelmed and unsure what to do
Hi Ladies I have aggressive ductal carcinoma in my left breast. I have had a lumpectomy and sentinel lymph node removal. BCI organised for a endopredict test to be done. I am in the high risk catergory of cancer reoccurring. I will be meeting my medical oncologist next week my first appointment to discuss low dose…
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Triple Positive and Pregnant
Hi everyone, I found out recently that I have triple positive breast cancer as well as being nearly 8 weeks pregnant. I have made the decision to keep the baby as I'm 35 and no children which means surgery first and chemo from trimester 2. I guess the biggest thing I'm struggling with at the moment is how do you decide on…
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Help!!
Dr John Gault Gold Coast- any feedback? We don’t live here, literally diagnosed while on holidays so no idea about surgeons here. Appointment is tomorrow morning so any feedback appreciated x
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Reconstruction decision making
Post from @Spring copied from the Activity section.
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Lumpectomy tomorrow - lobular cancer and so scared
Hello, I was diagnosed a couple of weeks ago with what looks to be invasive lobular cancer, and I am SCARED. I meet with my surgeon this afternoon, and my lumpectomy is scheduled for tomorrow. It was picked up almost accidentally on an ultrasound 7mm. I have been reading lots and getting educated as much as possible,…
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The LONG struggle waiting for pathology results after lumpectomy
Hello there I am sorry I need to reach out again. I had my lumpectomy Wednesday night, and my first day home today. My head is not in a good place, I am not sure how to manage until I get my pathology results, and even if I will be brave enough to receive them. I am trying to keep busy, do things i enjoy but it's such a…
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After Breast Conserving surgery or Lumpectomy
Hi from Perth WA. I had my op two weeks ago. I have been very sore until the last two days. I have been told that's unusual. I had two sentinel nodes removed but the scar is quite long so may have been more. Seeing specialist tomorrow for results and to plan radiation therapy. I'm wondering if others can share where they…
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Travelling interstate for treatment?
Hello. I live in Tasmania (Hobart) and have just been diagnosed with invasive lobular carcinoma. I am wondering whether anyone else has considered travelling interstate for treatment (was thinking about Peter MacCallum) or whether this is just a silly idea. The impression I got from my GP is that there are pretty limited…
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Genetic testing done through private health system
I have been advised that the genetic test results in the public system in Victoria are only available 4-6 weeks after the blood test. Any with experience on how this can be expedited? Also, any pointers to whether it can be done quicker if done through private system and in that case only references to private hospitals/…
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Mastectomy pillows Brisbane
Any ladies who are pre op in Brisbane? I ordered these mastectomy pillows from the lovely Pillow Pals who I found on FB. They are based in UK but post worldwide. All they charge is postage☺️... these handmade pillows you can pop under your arms post op. They just arrived too late for me to use them. So if anyone on here is…
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Mindfulness
Anyone know of any good online mindfulness sites pls.
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Newbie - Intro
Original post by @Haiz moved from Activity section to Newly Diagnosed: