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Cardiomyopathy and chemo ...... a serious condition to be aware of
I do NOT want to scare anyone - but this is a very real condition that may affect some who've been thru chemo - and is something to be aware of, particularly if you start getting a dry hacking cough or chest pain. It usually affects 'older' people .... but everyone just needs to be aware. My friend couldn't recall what…
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To bra or not to bra
I have been wondering why my healthy breast is a bit achy. At first I put it down to the fact I twisted my torso before Christmas. Then I got concerned maybe it was a cyst so I did the self examine thing but it seemed okay, however I decided to ask the onco when I see her on Friday. This morning I was talking to hubby…
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Mattress topper recommendations?
Hi, my med onc has recommended that I get an 'eggshell' mattress topper to help with aches and pains from chemo-induced menopause and side effects of Tamoxifen. I'm having a DIEP recon in May so would be happy to invest in a good one. Thanx! 😊 (I did a little search on here and couldn't find any threads about this, but…
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Memories
Yesterday I had major abdominal surgery in the same operating theatre where I had my lumpectomy on 12 November 2015. The experience brought back all sorts of memories of that time. I still find it strange I am tackling a whole new disease now just 3 years later. Breast cancer has been overtaken by Achalasia. Surprisingly,…
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Sexual Wellbeing and Intimacy (Seeking breast cancer survivor feedback)
Hello BCNA Members My name is Kym and I’m a breast cancer survivor and a BCNA Consumer Representative volunteer. I have been invited to be a panelist for a psycho-oncology seminar, for medical professionals and medical students, to be held at the Peter MacCallum Cancer Centre. The topic for the seminar is Sexual Wellbeing…
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Breast Density
Hi all Am confirmed for the workshop on Breast Density here in Adelaide next Thursday 23 August. I am prepared to put any questions the blog has on this issue and report back on the responses. In addition I hope to upload a summary of what I learn on the day - just may need to be the week after as my twins are turning 18…
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Jigsaw puzzles
I don't know why my physio didn't suggest it to me earlier but I have stumbled upon jigsaw puzzles for therapy. The repetitive movements of sorting pieces has done my lymphedema arm the world of good. Sitting around with not a lot of energy is boring and I put on movies to watch but I still like to be doing something to…
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Apparently ok to tell someone incorrectly they have stage IV cancer
Got the decision back from my complaint regarding my previous surgeon. For those of you that don’t know my previous surgeon told me the day after my mastectomy, and before receiving pathology results that I had stage IV cancer and was in the fight of my life (his exact words). I was sent away as a blubbering mess with a…
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Prevention in Survivorship - "What can I do to prevent a cancer recurrence?"
The Cancer Council is hosting a webinar tonight on this topic. Apologies for the late notice but if you are not available this evening, you can still register and then receive an emailed link to the recorded webinar. (Details below) 28th February 2019 7:00pm - 8:00pm (AEDT)Whilst more research is needed, current research…
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2 year all-clear, 2 year all-fear.
I've just had my second year check-up scans. It's always going to be so stressful. I've had a range of worrying new symptoms pop up over the last couple of months while on my Tamoxifen break, so I'm worried something was there and has now domino down my left arm lymph nodes. Taking a look at my scans, my layman eyes don't…
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Mental Health Plan
I am officially certified. They were more than happy to put me on the mental health plan. My new cheeky ‘fifteen year old’ doctor acted surprised that I wasn’t on one already!
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Adelaide Fringe performance about metastatic breast cancer
I was recently given a heads up about a Fringe performance about metastatic breast cancer. https://adelaidefringe.com.au/fringetix/the-archive-of-educated-hearts-af2019?venue=166%3A319 Thee is a special session of it this Thursday evening (21st Feb) at 7:15pm where there will be a Q&A after the show about the personal…
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Lazer
I had my first lazer treatment on Monday, they checked my breasts with a fluid metre and I did have some show up in my right breast. Had two different things on my breast just felt like pins & needles was very tired later and had very loud tummy gurgles which was the lymphatic working. I have booked two more sessions and…
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Brisbane/Gold Coast Support Group
hi, is there a brisbane/gold coast support group?
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Feeling Down
I have been feeling quite sad the last couple of days. I don’t know if it is cause the whole BC experience this year has hit me or it’s this time last week we were supposed to go on our holiday and we got delayed a day and had to cut it short - silly I know but I had been so looking forward to it and I don’t seem to take…