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Chemo almost done...next is surgery. Hair growth questions.
Hi all, it's been a little while, hope you all doing well and this year brings you all good health and happiness. I am almost done with my chemo (AC and 12 weeks paclitaxel, 4 perjeta and another one (not sure of name), 2 more infusions of paclitaxel. Did anyone find bits of fluffy hair starting to grow already? I don't…
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NDIS - Help needed
Hi there everyone, I am wondering if there is anyone out there that has successfully been able to access NDIS help for severe lymphoedema as a result of lymph node removal?? For reference, I have gone through the application process with every single piece of documentation that you could poke a stick at, but have now been…
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Lobular Breast Cancer really IS the 'sneaky one' .... a journalist & pathologist explains why
A pathologist explains & shows how Lobular 'presents' in the pathology slides ... Well worth a watch, to understand it a bit better. https://iview.abc.net.au/video/LABS2021103188542
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MyJourney App on Android Phone
Hi all, Just wondering if anyone else has had issues trying to run the app on an Android phone? Both Rebecca and I have tried and while the app loads, it just starts then immediately shuts down. It looks like it would be a great app, especially as we start on our journey, it's just a shame we can't use it properly at the…
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Undergoing a double mastectomy with Coronary Artery Disease and a previous heart attack
Hi. Has anyone had a double mastectomy whilst on aspiring and heart meds? I am having surgery soon and worried about the risk of being overweight, having had a previous heart attack and Coronary Artery disease. I have read that these all increase the risk of another heart attack after the operation which is terrifying me.…
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12 weeks of Taxol and tumour has not shrunk TNBC
Hi all i was wondering if anyone has had the same experience as me with Triple Negative breast cancer? I was diagnosed in Febuary and have had 12 weeks of Taxol chemo and been for an ultrasound and the tumour hasnt changed at all. I am feeling so disappointed
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Wishing @Cath62 a wonderful birthday for yesterday, 23rd June xx
Wishing @Cath62 a terrific birthday for yesterday - with big hugs and lots of best wishes xx take care xxx
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Today is @CarrieP Birthday
Wishing you a very happy birthday @CarrieP
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Keeping Warm in Winter without breaking the bank - What do you do?
There is no fun in being cold over winter - if your feet are cold - ALL of you is cold! So keep those warm slippers/thick socks handy! The increased cost of power is also a factor - and using a small blow heater to heat a whole room when you are the only one 'in it' can be expensive too, specially in the last year or two…
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A Happy Belated Birthday to Julez1958 for June 7th
Wishing @Julez1958 a VERY HAPPY (and belated) birthday wish for June 7th xx I hope you enjoyed the day with family & friends & were royally spoiled xx Thank you for being a great friend and giver of wonderful advice xx
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Happy birthday to @Angara
Happy birthday to @Angara have a wonderful day x
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Attend our next event - In person (Shepparton, Vic) or online! Wednesday 26 June
We're heading to Shepparton, Victoria on Wednesday 26 June for our next Information Forum - bringing leading experts to the local community to provide insights on a range of breast cancer topics. Plus there's an online option, so you can join in no matter where you are! Just click 'attending virtually' when registering.…
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DIEP fails in surgery
Hi everyone, just wondering if any one went in for a Double DIEP surgery and because there were complications had to have a double TRAM instead? My surgeon is saying if I start with a DIEP I have to be accepting of the possibilty of TRAM flaps. Plus, he tells me, only 20% of DIEPS are successful??? Help, so confused Jodie
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After 13 years and 2 diagnoses today the biggest celebration yet...
After 13 years and 2 diagnoses today my Oncologist gave me a discharge. A day I NEVER believed would come or would be possible. To anyone who is at the beginning, don't let go of hope that you will get through this. It's definitely not lost on me the many that don't make it this far. So I feel humbled and incredibly…
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Sadly, Wendy55 passed away on March 3rd, 2024
I have just heard the sad news from Wendy55's partner, Ron, that Wendy passed away on March 3rd, 2024. He asked me to thank everyone for their friendship and contact with Wendy over the years. xx She was first diagnosed with Breast Cancer 11 years ago - and had the most amazing Oncologist who fought for her all the way -…