Lobular Breast Cancer really IS the 'sneaky one' .... a journalist & pathologist explains why

arpie
arpie Member Posts: 8,122 ✭
in General discussion
A pathologist explains & shows how Lobular 'presents' in the pathology slides ...

Well worth a watch, to understand it a bit better.

https://iview.abc.net.au/video/LABS2021103188542
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  • Tri
    Tri Member Posts: 169 ✭
    I agree @arpie - well worth watching this video interview- I didn’t fully appreciate how ILC would have been harder (if not impossible) to detect through routine mammogram and that it doesn’t always present with a lump.
    I agree - a fuller understanding about ILC characteristics and pathology give a fuller picture to the person with BC when they are weighing up surgical options like lumpectomy vs mastectomy and a better appreciation of the benefits of radiotherapy and post surgery treatments after surgery.
    I am thankful that at the start my breast surgeon requested a battalion of diagnostics - ultrasound, biopsies, MRI and PET scans. It was a bit taxing but I assume these enabled ILC to be detected and it was taken into account in my treatment and surgery regime. 
    I support the journalists call for better research into ILC and awareness raising about the shortcomings in current conventional scans for detection of ILC.

  • arpie
    arpie Member Posts: 8,122 ✭
    It is an incredibly informative video - and seeing how the slides look vs the 'non lump' biopsy ... 

    Feel free to join the private ILC group, @tri ..... there should be a button to 'click on' to join ..... more stuff gets put there  ;) 
    https://onlinenetwork.bcna.org.au/group/23-invasive-lobular-cancer-ilc

    See if any of the other private groups may suit you too ;)

    take care xx
  • OTISMYCAT
    OTISMYCAT Member Posts: 7 ✭
    Hi i wouldnt have known i had ILC had a lesion not showed up on my mammogram.ive been having regular mamms since i turned 40.i ve just turned 63. A lesion showed up on my mamm i was sent to breast cancer clinic at qe2.ultra sound showed up ILC.4 tumours.7cm.it was a scary reality.my whole life has done a complete 360.talk about sneaky.i do self examination but would never have known.now im in for a mastectomy in 2 wks and lymph nodes.tablets for maybe 10 yrs.the unknown is the hardest and scariest to digest.please push for ultra sounds.tanya clubb.
  • arpie
    arpie Member Posts: 8,122 ✭
    edited July 2
    Sorry to see you join our exclusive little Club, @OTISMYCAT ... specially with ILC, which is 'that much harder to see' again .... 

    If you copy your post above & put it into the Newly Diagnosed category, you can continue posting as it will become a 'dedicated' history of your story - and handy to look back on later 'as it happened'!
    https://onlinenetwork.bcna.org.au/categories/newly-diagnosed

    We also have a private group for those with ILC ... feel free to join that group - only 'signed up' members (and not the general public) can see the posts.  Anytime we find any interesting data on ILC, we put the link there ;) 
    https://onlinenetwork.bcna.org.au/group/23-invasive-lobular-cancer-ilc

    Have you decided to go for reconstruction after your mastectomy, or are you considering remaining flat?
    We have a group for each - you may like to join both & check out the posts there (some with pics.)
    Choosing reconstruction:
    https://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction
    Remaining Flat:
    https://onlinenetwork.bcna.org.au/group/29-flat-chat-no-breast-reconstruction

    Also, check out this post that has lots of info on the forum as a whole .... what to take to hospital, tips on numerous things and some 'fun' threads to check out too, if you are into gardening, art & craft, got pets etc
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

    take care & all the best
  • OTISMYCAT
    OTISMYCAT Member Posts: 7 ✭
    Thankyou

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