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Friday Update - 3rd May 2024
Welcome to May! This month is always busy for BCNA with the launch of the Pink Bun Campaign (9-29 May), where 100% of Fun Bun sales go directly to BCNA. We also see many wonderful Pink Sports Day events happening around Australia; turning PINK is a great way for clubs, associations and schools to create awareness and show…
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Newly Diagnosed - Surgery Decisions
Moderator moved @Charlie2024 comment to main discussion page:
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Wishing you a very happy birthday @rebeccamarie
Happy birthday wishes to @rebeccamarie
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Pharmaceutical Benefits Advisory Committee (PBAC) - Enhertu for HER2-low Metastatic Breast Cancer
The Pharmaceutical Benefits Advisory Committee (PBAC) has recommended the drug Enhertu (trastuzumab deruxtecan) for people with HER2-low metastatic breast cancer (MBC) to be subsidised on the Pharmaceutical Benefits Scheme (PBS). We now call on the Australian Government to work with the pharmaceutical company to list…
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Sutherland Lymphoedema Support Group
New Lymphoedema face to face Support group for anyone Southern Sydney,St George areas as well as the Shire etc/ 'Under the umbrella' of Lymphoedmea Support Group of NSW For all types of lymphoedmea, not just breast cancer related, but there are quite a few BC related lymphies in the group and on the email list already.…
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Friday Update - 19th April 2024
Welcome to the Friday Update, March has flown by us already and we are half way through April! There has been alot of activity at BCNA including the Murray Bridge SA Information Forum, the World Indigenous Cancer Conference and BCNA's Think Tank . We are off to Tassie this month for two more information forums in Devonport…
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Zometa side effects
I had breast cancer - lumpectomy - chemo and Radiation. Now iam on 6 monthly Zometa. On my second solution of Chemo i was hit with serious Fatique and it has taken a long time to get back to some sort of normal althought i still have some bad days. I had my first infustion of Zometa two weeks ago and i got the fatique back…
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Hello and goldilocks mastectomy
Hi all, I was diagnosed with extensive DCIS in my right breast last month, after my first ever mammogram. I’m 47, have 3 daughters (12, 9 and 4) and live in a rural area. 48 hrs after my diagnosis I travelled to Canberra to meet my surgeon who referred me on for an MRI as well as PET and CT scans. I have a small invasive…
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Should less treatment be offered to 'older' women with BC? Over 70s ....
A bit disconcerting to read a report, released on Dec 6th 2023, that there may be talk of offering less treatment options to 'older women' (ie over 70s) when diagnosed with Breast Cancer. Maybe they need to ask their mother or grandmother to see if this is acceptable to what they would want, if they were diagnosed with BC?…
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Struggling tonight
I know I'm not alone in this journey but tonight I'm really feeling quite lonely. Just wondering what other people do when they are feeling this way even when they might be surrounded by supportive family and friends. Night-time is always the hardest because I live alone and have little to distract me.
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Welcome New Members - 26th April 2024
Welcome to everyone who has joined the Online Network in the past week: @Peck @chelle_ellie @AmySloc @Eleanoryeye @April321 @samb @Andie111 @Sharon1953 @Megwyn @Rarasilver @becsister @finally24 @Hatter74 @hurcee @AlisonM82 @rachael74 @Cme2 @Sandsea @renrut22 @Tamm @SeatedEwe @BJA You have found your way to Breast Cancer…
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Join us next week in person or online! Free Information Forums in Devonport and Hobart
Next week we will be in Tasmania as part of our free national Information Forum series. We are bringing leading experts to events in Devonport on Tuesday 30 April and Hobart on Thursday 2 May to talk on a range of breast cancer topics. Our events are for anyone who has recently been diagnosed with breast cancer or who is…
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Waiting, waiting, waiting + frustration
I’m sorry, I’m really making the most of the solidarity here. It’s been almost 3 weeks since my diagnosis (43yr old, Grade 2, ER+ PR+ HER- mixed lobular/ductal) & I’m usually a super patient person, but I’m feeling quite down. I go for my PET scan & MRI tomorrow morning, early. I’m then seeing the surgeon again next week…
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Work/grief/sadness
Hi all, apologies if this has already been discussed but I couldn’t find anything elsewhere. I’m 46, had a right mastectomy (Diep flap) and left reduction in early December for stage 2 invasive lobular carcinoma. My recovery went really well, no pain whatsoever. I still have another procedure to alter the flap and then…
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Reconstruction info
I’m new here! I was diagnosed in late November and went ahead with a double mastectomy just before Christmas. An overwhelming experience! There was no option at the time for immediate reconstruction for a few different reasons. I’m 51 years old. i have now been referred to the plastics team at Fiona Stanley and am trying…