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Newly diagnosed - Triple Negative - Chemo underway - Family history
Hi everyone, Well this is the group you really don't want to join, but it appears to be a great resource and source of support, so here goes. I was diagnosed with a triple negative tumour in my left breast on 9th May (grade 3), following a biopsy. I count myself lucky in that I have been part of a High Risk Breast Cancer…
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Recent diagnosis and new to the group
Good afternoon. My name is Jenny and I was diagnosed with Grade 2 cancer in my right breast on the 17 April. I had lumpectomy surgery on 4 May and a PET/CT scan last week as cancer cells were detected in 1 of 3 lymph nodes and results are pending. We met the Oncologist last Tuesday and due to several risk factors,…
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Some ideas on ‘keeping busy’ - a ‘Coping Calendar’ - during Covid but relates to any time, really!
I found this Calendar a little while ago - and thought it was quite good (even tho it related to Covid Lockdown!) Even if you only do a few of the things on the list …. It may help create new routines and hobbies!! And No - you don’t have to do one each day - just as you feel up to it!! Keeping busy & trying new things…
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Welcome New Members - 6th June 2024
A very warm welcome to everyone who has joined the Online Network recently: @snoozey_sister @KRW @Jade80 @ethereal @BernieWal @skinnygirl @ElenaD @Brooms @MadMum77 @emma79 @Melody @JenniJoy @janieboyd @emichacko @jamale @Sachs @Molly5 @AnnieG @hays @Rachelz @CCMA @kmorley55 @Shazmaree @HBK @m_m11 @Cricks @karolyn @SJG…
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Notifications for new posts in Groups feature!
Hi Members, Hi Members, I am happy to share that a feature many of you have had on your wishlist is now available. Notifications for new posts in Groups A new notification option, allowing users to be notified when there are new posts in their Groups. The new notification setting will be available on your Notification…
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New here, Phylodes Tumour
Hi Everyone, I am 56, mother of two adult girls. Mid April I was referred for an ultrasound on a hard lump I found in my left breast. I was shocked to receive a phone call from my GP saying I needed to see a breast surgeon. All tests, scans and biopsys finished, to be told my only option is simple mastectomy. The surgery…
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Q&A – TRIPLE NEGATIVE BREAST CANCER on Tuesday 24th October from 4:30-6pm (AEDT).
Register for the Q&A on Triple Negative Breast Cancer (Submit a question.) https://www.breastcancertrials.org.au/news/qa-events/qa-triple-negative-breast-cancer/ Triple negative breast cancer accounts for approximately 15% of all breast cancers. As the name suggests, triple negative breast cancer does not have any of the…
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Q&A on Wed – IS LESS MORE: RETHINKING BREAST CANCER TREATMENT - book your spot.
Join Q&A on Wednesday 12 June from 5-6:30pm (AEST) for a free online Q&A, where leading researchers and women with a history of breast cancer will discuss a ‘less is more’ approach to treatment. On the Panel discussing this topic: Book your spot here:…
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Any regrets after going flat?
I'm seriously considering having my other breast off, and going flat. I don't have a cancer gene, and have not had this recommended for that reason. But I am finding my remaining breast a nuisance. My bra is always twisting, and when bra less, I have one big boob. I'm considering no precise reconstruction and breast…
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Seven year mammogram and ultrasound and......all good!
Seven year mammogram and ultrasound after lumpectomy, chemo and radiation in 2017 and......all good! Yaaay! Best wishes to everybody
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Dizzy turns - BC Trip Negative diagnosed July 2019
Hi ladies! I thought I’d reach out & ask if anyone is going through same thing as me! As I don’t feel I’m getting anywhere at the Doctors even though tests done, bloods, heart monitor & all come back ok!?!?!? So I had a bad dizzy turn back in 2021 at work & ambulance called. Nothing for 2 years then from Jan ‘23 to now I…
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First chemo
How to navigate through fatigue upset tummy sickness no appetite ??????
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Perinueral invasion. Confused
Hello beautiful people, My oncologist does not like to really do staging etc. However he has recently had to send me a Dr cert and on it states “ Perinueral invasion present”. I am hoping someone could explain to me what this means if they have had the same. I am also grade 2, ER and PR positive, clear margins, Ki 30-40%.…
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Victoria is doing an Inquiry into women & pain - feel free to participate!
If you live in Victoria you may like to take part in this survey if you have/do experience pain of any sort - whether from your BC or anything else. .... The survey is open until 31st July 2024 ... The government wants to know what your experiences are with pain and accessing care for your pain condition. Understanding…
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Veoza for hot flushes
Hi, my GP gave me a call last week suggesting this new medication Veoza for my hot flushes. It was only approved by the TGA in February this year. It’s apparently safe for hormone positive breast cancer patients. Given we can’t take hormone replacement therapy it sounds like an interesting option. After 4 years of…