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Non BC Vent.
Hi folks, excuse my for being a bit off topic but I am SO BLOODY PISSED OFF that I need to let off some steam and I think my tribe will get this. I've had a crappy little 'thing' on my face for years and years, Neary two decades. A tiny sebaceous cyst that then became a small cluster of tiny lumps. Every now and then, one…
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Scanxiety and moving forward
This year has been pretty full on. My job responsibilities have increased and I suddenly became one of the most senior clinicians in my team after a number of people retired and there I was acting manager when covid19 hit our community and I was left to completely restructure our workforce and way of working in 2 weeks.…
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The Breast Cancer Trials Q&A event - Breast Cancer 2020: The Medicine, The Myths and The Mind
Hello all, I found the following online discussions very interesting, and somehow reassuring.* Breast Cancer Trials: Research Update – Associate Professor Prue Francis * Breast Cancer Myths – Dr Nicholas Zdenkowski * Mental Health and Breast Cancer – Associate Professor Lesley Stafford * Breast Cancer Recurrence –…
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Intimacy after Breast Cancer - Adelaide Presentation
This came up in my fb feed - I'm not able to go as it's during work time but I thought others might be interested.
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Letrozole - Is there a light in the darkness?
I'm very, very cautiously expressing hope that things may get better on Letrozole. Some of you may know that I have been one of the unlucky ones to have very severe side effects from the AI. Joint pain, soft tissue pain and injuries have been hugely debilitating for almost the entire time I have been on it (ticked over 2…
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Sex post breast cancer
Liz O’Riordan a British breast surgeon and herself a breast cancer survivor has written what may be helpful information on twitter today.Here is the link and hope those interested can access it and it’s useful. https://twitter.com/liz_oriordan/status/1309148050275917825?s=21
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Sound familiar?
This morning on the radio, a lady was complaining that six months after her diagnosis she felt she was getting ignored and left behind. She was fatigued, had shortness of breath and brain fog. The doctors would not do anything more for her and were blaming those things on other underlying issues. She said the doctors were…
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Yay..last visit to oncologist
Today, was my 6 year mammo and ultrasound check. Both clear...yay!! Also visited my oncologist who has supported surgeon's advice in Feb to stop taking AI's given osteoporosis and joint issues, and that i only had micro mets to one of four nodes. Even though there will always be fear lurking in the background, I finally…
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Study on Diet and Cognition after Cancer Treatment
For anyone who is interested, a small study of diet and cognitive function through University of SA...and if you have access to Wiley Online you can read the whole paper.The Perceived Relationship between Diet and Cognitive Function in Breast and Colorectal Cancer Survivors: A Qualitative Study - Summary of main findings –…
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Thankfully I know more this time.
So, 7 and a bit years after a Stage 3 E+ PR+ breast cancer diagnosis in the left breast, I am facing some changes in the right breast. Picked up in yearly mammogram/ultrasound. Nobody has suggested it is cancer just yet but given my history I am booked in for a core biopsy next Monday. I am very clear in my head about what…
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Hair Diaries
After around week 3 of starting chemo,I started loosing chunks of hair in the shower.It started to feel so dry and unhealthy,not to mention messy! It was upsetting me So I decided to shave it all off. I felt relieved after that. It was one less thing for me to deal with. I started losing my eyelashes and eyebrows From…
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Tattoo complete
Back when I decided that I would get a bilateral mastectomy with no reconstruction in 2018, I knew that I'd get my chest tattoo'ed to cover the scars. Not because I hated the scarring but because it was the perfect canvas on which to do the memorial tattoo for my grandparents that I'd been wanting to do for 20 years. It…
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Letrozole tablet concerns???
Hello, I am her2 menopausal. Had lumpectomy surgery, 17 chemos and radio. My oncologist wants to start me on Letrozole tablets next. I'm worried about getting osteoporosis?! I suffered a fair amount of joint soreness thru my final chemos. Anyone else take letrozole and get joint or bone side effects from them???
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For those doing it tough
I have a buddy who is doing it very tough just now ..... so to all of you out there .... we are thinking of you xx
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The tears are driving me mad
Hello i am 4 year survivor and have been on tamoxifen the four years. i am fed up with flushes, feeling like utter crap, NO libido (can’t remember what intimacy with my husband feels like) mood swings and generally just over life. unfortunately I also have rheumatoid arthritis and type 1 diabetes so completely over…