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New here...my story so far
Hello, I’m new the group and haven’t shared my story yet. It’s taken
me a little while to be able to read some of your stories and not have ‘freak out’
moments. Thank you to all of you for sharing your stories. It is important to
see the full gamut of what is happening and what is to come. In my initial
moments I was…
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Newly diagnosed and Menopause
Hello everyone, My name is Kate, and I recently turned 48. Just a few weeks ago, my world shifted dramatically when I was diagnosed with breast cancer. After discussing options with my doctor, I've decided to start chemotherapy soon. It’s all still a bit surreal, and I’m doing my best to stay positive and prepare for…
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Breast removal
Hey all last Tuesday I was meant to have surgery just to remove the lump but decided to have the whole breast removed hoping that I could avoid chemo and radiation they also removed some lymph nodes due to some being a bit lumpy hoping they aren’t bad when I go back in 2 weeks for the results went home day 3 with drains in…
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High Grade DCIS - radiotherapy
Hello, I have been diagnosed with a small 4mm high grade DCIS. I am very anxious about Radiotherapy and was keen to avoid it, so took the DCSIONRT test. The results can back with a rating of 5 out of 10 (so not low risk and not high risk) and now I am having a hard time trying to figure out what to do. I am trying to…
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Shock is settling
it’s been two weeks since my diagnosis. I live in regional coastal NSW and I’m going to start here by being very grateful for the speed of testing and action down here. Unexpected really. I found a lump but it turns out it’s an undefined tumour about 2.5cm. Some stuff is still not definite because I can’t have an MRI…
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Newly Diagnosed - Intro
Moderator moved @OTISMYCAT post to dedicates post in 'Newly Diagnosed':
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Newly diagnosed metastatic cancer
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago after unrelated investigations it was discovered that there were mets in my vertebrae so I have been upgraded to stage 4. My…
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Chemo tips / hacks?
Hi, lovely ladies is update from me I done my pet scan and have good results and I got a call from my day oncologist today and they already set my treatment dates.Starting next week with paclitaxel weekly for 12 around and carboplatin. Pertuzumab,trastuzumab three weekly so 4 round Is there anything I have to bring during…
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I have my Oncologist puzzled - Oestrogen has increase post menopause
Hello lovelies. This is my first post so my story first - apologies if I don't have all the medico lingo down just yet. I am 53 years old and went through menopause in 2021. Diagnosed 02.09.24 with ER+98%, PR+95%, HER2-, 30mm tumour in my right breast which I found in the shower. Mastectomy 19.09.24 - 2 nodes removed which…
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With BC being hormone receptive what do you do/take for menopause symptoms
Hi ladies, I have been searching through old posts trying to see if there is any products that help with surgical menopause symptoms (aches and joint pains are my worst) that does not fight with your hormone blocking meds. I was on a terrific herbal concoction which was great but was told to come off it by my Onc as she…
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Cold Cap availability in public centres in Sydney/Newcastle
Hello everyone I was recently diagnosed with T2 (2.5cm), grade 2, HR+, with micrometastases in one sentinel node, which officially put chemo on the radar for the treatment plan. I pushed for the Oncotype DX but the advice from my treatment team was that as I had a couple of red flags (I'm premenopausal, have a slightly…
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New Diagnosis - Should I be more emotional??
Thought I should really get my act together and finally have my first BreastScreen (South Australia) - age 53. Didn't think much about it and was preparing to book a family overseas holiday when suddenly I found myself with Left Breast DCIS and Right Breast ADH. Saw a wonderful surgeon on 3 Oct and was booked in for…
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It’s a balancing act.
Hello, after a whirlwind 6 weeks of tests, scans etc. I have been diagnosed with stage 3 high grade left breast carcinoma with auxiliary node metastasis, oestrogen and progesterone positive. To say it’s been a shock is an understatement especially after recently having 10 year all clear of a previous cancer. I have…
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New here
hello everyone my name is susan I’m 51 and live in Tasmania just been diagnosed with HER2 positive stage 3 was abit of a shock have had a full on mth of test scans ultrasound pet scans ect having surgery on the 29th followed my chemo and radiation.its great to have somewhere to go for information and others that are or…
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Radiotherapy - breast pain at night
Hello, I have heard a lot about skin changes and fatigue with radiotherapy but not much has been said about breast pain. I have only had 5 sessions, and I am having strange pains in the treated side - mostly at night. Looking for your experiences and of course will speak to my specialist. Thanks