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secondary cancer
hi all some if u may remember me i started this group in 2011 when i was diagnosed with breast cancer i m glad to c the group has taken off good on u all. i had to resign from the group as my husband became unwell and passed away in august. during that time i was feeling stressed tired and a bit unwell around a month ago i…
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Secondary breast cancer
Hi this is my first blog, I have been living with mestatic breast cancer for 4 months now, well that is when I found out that the cancer had spread to my skull, spine, pelvis, ribs, throat, chest wall and 2 weeks ago I was told that it is now in both my lungs. I am still working full time, now that the pain has been…
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Secondary breast cancer, Frankston
Hi, I was recently diagnosed with advanced / metatastic breast cancer which has spread to my Liver. I live in the Frankston area and despite a number of hospitals providing treatment there doesn't appear to be a local group for those with advanced disease. If you would like to join this group with the view to meeting up -…
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Update on data collection on secondary breast cancer
Hi all, A few weeks ago some of our members in the Online Network were discussing concerns about the fact that data is not routinely collected on secondary breast cancer, the way it is when women are diagnosed with early breast cancer. For those who aren't aware of this issue, when a person is diagnosed with cancer…
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Proper Introduction
It occurred to me I hadn't done a proper introduction on here yet so here goes. I'm the mother of soon to be two year old Amelia and the wife of my very own Magic Mike ( not a stripper of course but magical for all the very right reasons). We started on this detour late August after I had some lumps we discovered…
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Not What we wanted to hear
Hi all, It's been a while since I last posted. I started 6 months of chemo on April 30. I am about to have a mastectomy Tuesday Oct 22, 2013. After cycles of FEC and Docetaxel, it appears they didn't do what we expected. Minimal change to the tumour - but it also spread to the liver. Oh dear! I started the monthly…
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EMPathy BCN: Research into secondary breast cancer continues ...
As a BCNA Consumer Representative with the EMPathy Breast Cancer Network, I hear about some amazing research into advanced breast cancer. This Australia-wide team of scientists, surgeons and oncologists are dedicated to researching cellular changes that may underpin secondary breast cancer. Please visit the EMPathy BCN…
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2 years on!
Two years ago today I received news that would change my life forever... I was told I had breast cancer AGAIN (almost 3 years after my first diagnosis), this time throughout both lungs. I was told surgery was not possible due to the extensive spread of the cancer, and there was no cure...my condition was terminal. The goal…
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Searching for new drugs to prevent recurrence of breast cancer – Well worth a read
The EMPathy Breast Cancer Network needs little introduction within breast cancer organisations and scientific circles. This Australia-wide team of scientists, medical oncologists and surgeons is supported and funded by the National Breast Cancer Foundation (NBCF) to investigate the role of ‘EMP’ (see below) in breast…
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birthday
Hi all, Its my daughters 8th birthday this weekend. Usually for me its a happy time. This year is my first with ABC. Now its a scary time with me wondering if I will see her grow up. I feel I will fail her if i dont as I know I mean the world to her. I am trying to not let my fears ruin it for me but I am having a hard…
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Always hope
Thank you all for sharing your thoughts and stories. I was diagnosed with secondary breast cancer in January, this was my first diagnosis. I finished 6 months of chemotherapy in July and was lucky enough to still work full time whilst having treatment. I have viewed many blogs and they have helped me to stay positive and…
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My story
After having clear scans in Nov 2012 and a clear breast check by a Dr on Gynae ward of local public hospital in Feb, I found a largish lump in my right breast in April. Was diagnosed with Grade 3 IDC on 24/4/13. Had surgery to remove a 5+cm tumour on 9/5/13. The breast was preserved. Not sure if that's a good thing or not…
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Acceptance
It has come to be in the past week that I need to accept decline. I, once again am faced with a choice. To live in sadness at what is happening to me or cherish the moments I have. The decline in my quality of life in a short time is difficult to accept. I have lived with this disease for 2 1/2 years with minimal, though…
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BCNA forums-Sydney
Hello, Just to let you know if you are around Sydney that BCNA is holding two forums next month. 1. Wed 9th October 10-3. Early breast cancer 2. Thursday 10th October Advanced breast cancer Held at Australian Technology Park, Eveleigh(near Redfern). If you wold like to come they are free and you can book on 1800500258, or…
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six months later still on the road to nowhere
hi just having a vent six months after finding a lump on my neck on the left hand side just near my collar bone dx with locally advanced breast cancer feb 13 had chemo a/c 4 rounds taxol 12 rounds about to start radiation 19 th sept 33 zaps i can feel the lump and see that it is regrowing due to pain increasing and size of…