New and so confused
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Great news @ Newby24. Big hugs for today.1
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Hi all had another good day today but probably over did it a little. Got a date in early April for radiation and the shot for the immune system was very quick and all my panicking was for nothing lol the chemo nurse said my bones would probably start aching because of needle and that probably is why I am still awake. Although my bsl’s was high earlier n don’t know if it was because of the peach I had for afternoon tea or the needle. It is gone down now but my feet are aching and I think tomorrow is going to be a rough one. I have two more nausea tablets to take in the morning n then I probably just have to ride the wave haha that sounded a little funny as we have hardly any water in our rivers 😬 gee I must be getting tired lol I am going no where tomorrow and going to relax all day👍🏼 Day 3 coming up. Just a quick question we have two toilets and at the moment everyone is using one and I am using the other and taking all the proper precautions but how long before I start sharing the toilet again? Hugs to you all.1
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If you are running out of the spew pills, ring oncology and they will organise a script for you. Do not go without, just don't. It sounds like you are coping really well, so give yourself the best chance you can of being comfortable.
If, and it is an 'if' you end up getting bone pain from the Neulasta shot it will probably be on Sunday. Don't muck around with it, take what ever pain relief you can and if you are still in trouble on Monday, go back to the hospital and demand something stronger. Suffering is for saints, no need for the rest of us to put up with it.
Reactions to the colony booster (it stimulates your bone marrow to make more white cells) vary greatly; at least your nurse gave you a heads up. Some people have a bit of discomfort, for others (like me) it was a totally body toothache and I needed to pull out the big guns --targin is good-- until I found out about taking Claratyne to help reduce the pain. The theory is the pain is bone odema and the antihistamine reduces it. The key is starting the day before chemo and continuing for a week. Every chance you won't have any trouble, but if you do,, ask your oncologist if you can try it next round. It's standard practice in many clinics and others poo poo it and say it doesn't work. I had chemo twice in ten years, it worked for me.
Keep up the good work! Mxx5 -
@Zoffiel thank you for your advice it really is a matter of awareness and I truly appreciate any advice. Day 3 and nothing as yet just panadol for aching legs last night. Yes my cancer nurse came to my radiation mtg yesterday and said to make sure I have nausea pils on hand and take even at the slightest feelings.1
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we kept my toilet for me alone throughout my whole treatment we were in a house with 3 inside loos and 1 dunny
but we decided it best if mine was solely mine until month after last chemo....
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We didn't have two toilets, so I was just very scrupulous about cleaning and flushing. Curiously when my partner got early bowel cancer and elected to do a full course of chemo, he got no dire warnings about toilets. I know who's the least careful on the loo stakes in our house!!1
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This might be a silly question so I apologise up front.
May I ask why people are not sharing a toilet? Is this to do with your low immune system during Chemo?
I haven’t started Chemo yet, due to see oncologist at cancer clinic next Friday.
The more information I have the better1 -
@Shellshocked2018_ No such thing as a silly question!
As the chemo passes through your body, some of it comes out in your urine. These are highly toxic substances. You'll see the nurses wear thick protective gloves, glasses and gowns to handle it. You don't want anyone except yourself anywhere near the stuff. Almost all loos splash/spray when flushed. So keep the lid down and no drips! It's also why they tell you to use a condom if you have sex during chemo.
My husband and I still used the same loo but I was very very careful. K xox3 -
NO the toxicity of the chemo drugs
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Thank you kmakm that makes sense, did read about using condoms during sex when having Chemotherapy, not sure I would have the energy lol...
Lots to learn
Thanks again xx2 -
I accidentally sprang a chemo line when going to the toilet during treatment (in day oncology) - truly not my fault, the cannula was faulty. But much running in gowns and gloves and wellie boots, as you don't want this stuff on you. In you is a different matter! Same thing with toilets. Lid down and flush twice. If you are having three weekly chemo, problem abates a bit after the first 4/5 days. To be honest, I have never heard of anyone having a bad outcome so I think the scare tactic works a treat!3
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Can I ask another question, what if you’re out somewhere and you had to use a public toilet or a relatives toilet?
What did you lovely people do? Carry wipes, toilet seat covers?3 -
Wipes and flushed twice, same drill.2
