New and so confused
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Yep, just do what you've gotta do and know that you've done your best, @Newby24
There are no guarantees in life, sadly even if you throw the kitchen sink at it.
There will still be a percentage of us who may go on to a more serious condition - tho we just hope it isn't 'us'!
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Update - I am going ahead with the chemo next Wednesday. I am going to throw everything at this. Thank you to everyone on here, as, at the moment you are all my besties who I feel can understand exactly what I’m going through.7
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Best of luck - now you know you are doing everything you can. Cross fingers for a not too rocky ride.2
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It's good to come to a decision you're happy with. All the best for Wednesday.1
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Sorry I missed your post but been off line. I look at it like this....you get one shot at a cure. After that it's just keeping it at bay.
As to family history...pre bloods and full workup is good. We don't always follow our family...it's not always genes but fsmily lifestyle factors that contribute and we can focus on reducing those risks as much as we can. Great job on your decision, asking questions and talking to a dietitian. Sounds like your right on track. Best of luck for your 1st treatment. Kath x1 -
Thank you everyone and even though I am terrified, I do feel better for actually making the decision and feel ready to do this shit. I’m going to cut my hair very short on Tuesday cause I don’t think I can hack it falling out in lumps. I’ve sat my 16, 15, 13 and 10 year old grannies down n given the heads up as to what could lie ahead and they make me so proud. My two daughters have come to every meeting so they are aware and I have moved in with one daughter but other daughter lives about 5 houses away. My cancer nurse is amazing and is always on call to answer any questions I have. I actually use this network more than Facebook 😂 so it is what it is but I’m ready for the fight for my life.4
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Making decisions can be the hardest part (apart from the bloody waiting) @newby24. Cutting your hair is a great idea, you will probably want to buzz it off completely about day 14 when it starts to fall out, don't be surprised if that feels like its being pulled out, it can be quite painful for a couple of days.
Take care of yourself in the coming weeks, it's tempting to try to be wonder woman which, as many of us can attest, is setting yourself up for failure. Delegate and accept any offers of help that are actually helpful (sometimes people get it completely wrong, bless them) Rest when you can and remember there are no stupid questions. Good luck, you've got this, Mxx4 -
Now that the decision has been made, I'm sure some of the anxiety of should I ? shouldn't I ?, has reduced. Of course we all know that this will be replaced by all sorts of other stresses, concerns and worries, and this is the place to bring them. We, your fellow tribes members, will always be here to hear you. Really hear you and get you. You have your combat boots ready and polished and ready for battle and that is a good thing too. I wish you all the very best with your treatment and am sending you a big cyber (((hug))). Ally.6
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Thanks Ally 🙏🏼0
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@newby24 If you search the discussions, you will find out a lot about chemo and other treatments. Just try not to get too anxious before you know how you're going to react. It's not a fun time but for most of us it's doable. I found it helpful to keep a notebook on the bench to record how I was feeling + temps and meds that I'd taken (I would have forgotten, otherwise). That will help you to get a handle on how the chemo affects you over the course of the weeks and is very useful when you see the onc. The other thing is, don't suffer in silence! If the meds they send you home with don't cut the mustard, ring the clinic (even on the weekend) and tell them. I made the mistake on my first time of thinking that I couldn't do much about the nausea on the weekend and suffered until the Monday when I didn't need to. And the new medication sorted me out straight away.
The other thing I found really useful was to get a zip-up folder from Officeworks (I started with an ordinary sized folder but ended up having to upgrade to a lever arch), a couple of packets of plastic sleeves and some dividers. I filed all of my paperwork in this so everything was in one place and easily portable. Because the folder zipped up, I didn't need to worry about things falling out and I could also slip in the odd thing (like cold cap headband).3 -
Your kids sound fantastic, @Newby24 - and great that you a re moving in with one daughter & the other just down the road. They will be terrific support for you. Terrific idea to cut the hair. Maybe even take 'before' and 'after' pics - sometimes the hair can come back as 'curly' after chemo.
All the best as you start your treatment ..... throw any questions that you may have & the girls will have an answer for you xxx Take care xxx
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Good on you! Well done. It's a difficult time but it sounds like you're well supported. The folk above have given you some excellent advice. You've got this, and we've got you. Big hug, K xox1
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@Sister Thank you for your advice and I have already started to file all paperwork so it is together and I will try to start writing everything down or just record it somehow 👍🏼 @arpie yes my two girls n grannies are my life and from first minute have been strong for me 💕 @kmakm Thank you and yes everyone on here is fantastic and really are supportive. Even though we are all strangers, I feel like we are so close because of the circumstances we have been thrown into 🥇4
