Member: Zoffiel | BCNA Online Network

User Widgets

Contributions

Re: After 13 years and 2 diagnoses today the biggest celebration yet...
@lrb_03 I'm still going. 8 years since my reoccurrence I've stopped taking everything too. My onc would have liked me to take the AI for ten years, but 7.5 was enough when my bone density started to plummet. I'm still working full time and it's a 120km daily round trip to the office. Except for this week. I've got bloody COVID and am sitting up in bed death scrolling the internet. I've run out of tissues and I'm reduced to a roll of toilet paper to try to deal with the remarkable amount of phlegm my body has decided to produce. I mean, really? It's the glamour of life that keeps you going. Luckily I have a thing for good quality bog roll. I'm thinking I'll go online to see if I can get a home delivery of the essentials and a bottle of brandy for medicinal purposes.
2 years ago Place Managing stress and anxiety
Views
1like
Comments
Re: After 13 years and 2 diagnoses today the biggest celebration yet...
Good on you Mel. I rarely visit here anymore so it was nice to log in and see something positive. MXX
2 years ago Place Managing stress and anxiety
Views
2likes
Comments
Re: Extensive DCIS
@Leach learning that you have a malignant boob is a life changing experience. I immediately distrusted the other. I can honestly say that the distress at loss of my breasts has been more than offset by the relief that I don't have to monitor them any more. Mxx
3 years ago Place General
Views
2likes
Comments
Re: Extreme weakness!
Don't discount the emotional and psychological toll committing yourself to chemo can have. It's a big deal. When I get super stressed I present with the classic fight or flight responses--I either start climbing the walls and attacking everything that moves or retreat to bed and assume the foetal position. Everything you feel is real and valid. Try to view this as a very interesting personal experience which will pass. Keep plodding forward and you will eventually trudge out into some form of normality. Albeit with dodgy gut flora and wonky feet (in my case) It's all pretty shit, but it is our best chance of survival. Mxx
3 years ago Place General
Views
1like
Comments
Re: Regional and Rural Information forums - We want your feedback!
It's a shame that anyone who is still working is excluded from these discussions. Thus it has ever been, and you wonder why you get such a narrow demographic involved. Guess it's easier for the staff.
3 years ago Place News and events
Views
0likes
Comments
Re: I think it’s come back…
@Teabaglady, I reckon the little bell that rings in our heads sometimes is the last vestiges of our primitive selves. It's giving us a warning that something is wrong even though there is not yet any evidence to support those feelings. You've listened to your bell, you've followed up on it. Well done. Your fears are valid and now you have had them addressed. Never feel bad about asking questions. The pain is a 'thing'. Very difficult to keep track of it and scarring changes over the years which means you can never be sure what is a natural progression and what is new. Keep listening to your bell. Mxx
3 years ago Place General discussions
Views
1like
Comments
Re: Big happy birthday @Zoffiel
Thank you @gumnut for keeping track of us all and thanks to all the respondents. Did you know you get $8 off a movie ticket if you are officially a senior? Tis a grand thing, but I'd rather be able to walk down the stairs without worrying about faceplanting :)
3 years ago Place General discussions
Views
1like
Comments
Re: Brain Fog
Nice to see that someone has decided it's actually a thing, rather than all in our heads....
3 years ago Place General
Views
2likes
Comments
Re: Feeling alone and scared
@Lauren11 I was 43 at my first diagnosis; also a sizable lymph involved lobular tumour. That was nearly 17 years ago. I did have a local recurrence at the 10 year mark (there really is no point in sugar coating this shit) but I'm still here. Chemo sucks for a week a month, rads are a lottery--you either cruise it or end up so resembling a roast chicken that you attract stray dogs-- and the hormone stuff is moderately horrible at first but you get used to it eventually. Don't get too involved with the timeframes for treatment. That time would pass anyway. Just keep plodding forward. Mxx
3 years ago Place General
Views
2likes
Comments
Re: Choosing to stop treatment
@ilovewhenitrains you do whatever you want to now. If you want to stop, stop. Think of what you told yourself when this started, and follow your heart. Best wishes MXX
3 years ago Place Living with metastatic breast cancer
Views
1like
Comments

Groups

Work and breast cancer
PUBLIC GROUP - This is a space to connect around the challenges and questions that come with managing work and breast cancer. Whether you're navigating time off, returning to work, dealing with workplace conversations, or exploring your rights and options, you're welcome here. This group is open to the public (not just members of our online network) to help broaden access to important information, practical advice, and peer support.
1 month ago17 Posts
Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.
Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.

User Profile

Zoffiel

User Widgets

Work and breast cancer

Let's talk: vaginas, menopause & me

Choosing breast reconstruction