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EXPERT Trial
Hi, New to this .... post Lumpectomy Stage 1/2 12mm, I have just been asked if I would consider joining the EXPERT trial. I can't see any recent posts since the thread from 2019. I have lots of questions (which I will ask the radiation oncologist) but would be interested in others point of view/concerns etc. thanks
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How quickly can a tumour show up between scans?
If I had a PET/CT back in early July that was clear, surely it would be almost impossible that a lump I can feel in my BC breast would be a new tumour? I know there was a FA in the same area of breast back in 2021 and 2022 when I was diagnosed and had 12 month scans (latest one in 2022 showed it had gotten smaller). I’ve…
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Breast Cancer Risk in Survivors of Hodgkin's Lymphoma
I discovered this resource from Hodgkin's International titled "Breast Cancer Risks For Hodgkin's Lymphoma Survivors" https://youtu.be/YRp4NLcS4Os?si=QwtFipIn5q4LGrNW At 15:22 on the video, the surgeon discusses The National Comprehensive Cancer Network clinical guideline on breast cancer screening for people who have…
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Happy birthday wishes to @Alcaye
Wishing you a very happy birthday 🎂 @Alcaye
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Happy birthday to @JulieVT11
To dear @JulieVT11 wishing you a happy birthday
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Flat chest scars - restrict movement or very tight? And did you have radio before going flat?
I'm in discussions with two surgeons (initial and then second
opinion) about removing my 10-year-old textured and radiated implants and
either going flat or replacing implants. I posed a similar question on the 'Flat Chat' group - I'm hoping this main chat has some more people who can share their experience on flat scars…
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Have you replaced implants after radio? What's your experience/issues/advice +capsule (kept /rem'd)?
I'm in discussions with two surgeons (initial and then second opinion) about removing my 10-year-old textured and radiated implants and either going flat or replacing implants. I posed a similar question on the reconstruction group - I'm hoping this main chat has some people who have faced re-reconstruction. I was first…
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Mamagram post diagnosis
Hello, 7 year post Her2 + diagnosis. All going well. I have had a mammogram and ultrasound each year post diagnosis however not this year(7) just wondering is this an oversight or normal?
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What would we do without BCNA?
I wish I had never heard of or joined this network, but now, when I need it, I am glad to be part of it. Every time I feel upset and vulnerable, I turn to the BCNA. I am just thinking about how people with breast cancer are supported without BCNA. I would definitely struggle. What about those who don't use computers or…
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Swollen Parotid and possibly the Tonsillar gland
I felt sore on the right side of my face when I washed it last night and this morning it was a hard lump, some swelling and also sore at base of my ear...not like blown up but very tender and swollen...I did pop to a GP I've not seen before...he reassured me which was nice as I started to blubber as I'd panicked. He said…
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Breast Cancer Prevention Research
Women who have undergone chemotherapy and radiotherapy for Hodgkin's Lymphoma (particularly those treated at a younger age) have an increased risk of going on to develop breast cancer. What is BCNA doing to advocate for research into the prevention of breast cancer in this patient cohort? For example, is research being…
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Happy birthday to @Mrs_H
To dear @Mrs_H wishing you a very happy birthday for today
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Happy birthday to @Brianna
To dear @Brianna 10 November is your birthday 🎁 and somehow we missed sending you special birthday wishes. I hope that your birthday was a wonderful one best wishes <3
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Wigs - where are the best places to get them in sydney
Hi ladies. I need a wig asap as the one I ordered online has not arrived. And I really do not want to walk around bald. I know that that seems silly and I can just wear a cap or something I'm.just not mentally ready for that yet. And I have been lucky enough that 14 days in my hair is still intact but I'm guessing not much…
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Calcification after cancer removal
12months ago i had lumpectomy to remove cancer in my breast. I then had chemo and radiation. Before going to the Breast specialist in the begining of this month i had a mamogram and they have picked up "suspicious" calcifications near where the cancer had been removed. There are many reasons for calcification. Has anyone…