Night Howls

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  • JJ70
    JJ70 Member Posts: 983 ✭
    Fran...you are still tagging in someone else with the 33.  I never get a heads up on your replies dearest......I am JJ70. xx  I do love your idea of chocolate. @kmakm...leads me to thinking about those freeze-dried strawberries in white chocolate that are heading my way!!
  • Doin'it
    Doin'it Member Posts: 377 ✭
    Thought I’d be feeling highly elated about finishing chemo, but it’s not happening yet. Fatigue starting to set in etc etc & now I’m dreading radiation. Waiting to hear from them & whatever faces me with left side affected, not looking forward to deep breath holding & BC nurse said probably whole breast & because of size of tumour that was in the lymph node (12mm ), I’ll probably have to have radiation right up to my collarbone. Eek 
  • Flaneuse
    Flaneuse Member Posts: 899 ✭
    That's weird. I type @3370. Don't know what happens to it. Enjoy the chokkie! 
    @Doodoo I felt the same at the end of chemo. Though my chemo was cut short unexpectedly at 20 weeks out of 24. Oncologist just recommended that when I turned up for treatment, because of severity of my peripheral neuropathy. But then I thought I'd feel some sort of relief that it was all over. Instead, I just concentrated on getting ready for radiation.
    I've found the deep breathing fine. Just takes a bit of practice to get your method sorted. I'm four days from end! Then I hope I'll feel some elation.
  • Doin'it
    Doin'it Member Posts: 377 ✭
    @Flaneuse that’s good to hear about the deep breathing. All my family & friends were so excited for me to finish chemo & I had to pretend to be elated. I am happy to be be, but I can’t explain it. I guess most of us go through that! Here’s hoping you feel enormous elation in four days. Well done you xx
  • Flaneuse
    Flaneuse Member Posts: 899 ✭
    @Doodoo I believe that's one of the biggest challenges about this whole scene: we can't explain how we feel at various stages. We're just in a fog of feelings and expectations. It's hugely frustrating. xx
  • kmakm
    kmakm Member Posts: 7,974 ✭
    @Doodoo I was exactly the same at the end of chemo. Everyone was happy for me and felt just so down. It was slowly replaced with quiet relief that it was over.

    @Flaneuse Jo is @JJ70. No 3s required!

    Four days to go? Brilliant! What's next??
  • Sarnicad
    Sarnicad Member Posts: 318 ✭
    You’re all describing how I feel 4/4 chemo is done herceptin still to follow but everyone is that is easy no side effects but rads loom large and everyone wants to share their horror stories about that. But non bc people are all yeah the chemo is done and I’m yeah that ain’t the half of it 
  • JJ70
    JJ70 Member Posts: 983 ✭
    To top off my day my daughter just vomited all over the car....awesome!! :o
  • Sister
    Sister Member Posts: 4,961 ✭
    @sarnicad Don't stress about rads until you need to.  Yes, there's horror stories about burns but not everyone gets them.  I had what looked like sunburn a couple of weeks later and had to wear my bra over a singlet for a few days but that was it.
  • tigerbeth
    tigerbeth Member Posts: 539 ✭
    Thanks @arpie x
  • Kiwi Angel
    Kiwi Angel Member Posts: 1,952 ✭
    @Sister gorgeous- better than the crappy, rainy, Sydney view 
  • Sarnicad
    Sarnicad Member Posts: 318 ✭
    @Sister planning is Tuesday so it is close and I definitely have fear of unknown. 

    good to hear not everyone burns badly too - too many horror stories not enough moderate ones. 

    Nothing beats  your own bed home from a trip away slept on the couch in the afternoon staggered upstairs to bed last night about 10:30 and woke at 5:30 just laying here enjoying the sunlight and contemplating opening the cases to start the washing
  • Flaneuse
    Flaneuse Member Posts: 899 ✭
    @Sarnicad Try not to stress about rads. You'll get lots of good advice at your planning session. I have no horror story. I have three to go (out of 25), and so far it's been a walk in the park, in comparison with chemo.

    In preparation, continue to drink lots of water to help hydrate your skin, and moisturise well with a good rich moisturiser.

    My treated area is pink, but nowhere near what I feared. I've been careful to use the gel twice a day and make sure I get good coverage of the treated area. In the past week, on two evenings after treatment, have I felt it would feel nice to lie down on a towel with a washer soaked in iced water on my chesticle to ease the mild itchy sensation.

    I've stopped wearing a crop-top because the synthetic fabric irritated my treated skin. I now live in 100% cotton tank tops underneath loose cotton shirts. No bra.

    Other than that, yes, I'm very tired from the nearly two-hour drive every day, but I know that's nothing compared with the travel some people have to do for treatment.
  • kmakm
    kmakm Member Posts: 7,974 ✭
    Good morning!



    Last morning at the holiday house we've been lent. Making the most of the sunshine before I start cleaning...

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