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Flaneuse
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Joined 8 years ago
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Re: Chemo drug CYCLOPHOSPHAMINE and bladder cancer
Thank you so much for messages of support. Surgery over, and home again. All went well. Now the wait for two weeks or so until histology arrives. Miraculously, the terrible lower back pain I've had, mostly centred on one side (a known symptom of bladder cancer) has disappeared. Wonderful. Very little abdominal discomfort remains. I'm told to behave "like a fragile patient" for two weeks. :)Chemo drug CYCLOPHOSPHAMINE and bladder cancer
Hi folks, I'm back to share my current experience. I have bladder cancer. The tumour is being removed on Wednesday. There's a list of potential causes. Apart from "old age", the only other one that fits me is having had cyclophosphamide; I had eight doses of it over 20 weeks during chemo after my mastectomy in 2018. Histology report will take two weeks. I'll be nail-biting of course, waiting to see if I need further treatment. Concerned of course that it might be a secondary from the breast cancer. The urologist is also going to refer me for a full-abdomen CT scan after my recovery. That will be welcome, to see if there's anything else.Re: My peripheral neuropathy is back with a vengeance
@Zoffiel - Great to hear from you. You've always been my greatest good vibes voice ! Thanks for the tip on epsom salts. There's a stock feed place not terribly far away. I used to go there for chook pellets for our community garden. I agree re the hug thing. It always bugged me when I lived in France that people thought it was ok to do the double-cheeked kiss thing, even though I was a total stranger. I've got one of the foot vibrator things. My daughter gave me a hand-down one. I actually thought they were NOT good for PN - don't know where I got that idea from. So I'll dig it out of the cupboard again. Interesting that the residual PN is there for you too. It's shitty that so many elements of our treatment and side-effects are here forever. I used to love painting my toenails and having them nice. Mine are still raised, ridged and horrible. And my hair is becoming increasingly straight. Fortunately I've discovered a new hairdresser with magic hands, who makes it look decent. Hammer toes are a horror; poor you. A friend who's a paramedic had hers operated on last year. She'd got to the stage she couldn't walk in her work boots. Rabbits among your pesky wildlife now! I didn't realise they would burrow under a house. Little buggers. They're illegal in Qld. I love eating rabbit and we can only buy them frozen here, from specialist butchers. Take care. Fran
Groups
Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.Invasive Lobular Cancer (ILC)
This group is for anyone diagnosed with invasive lobular breast cancer (ILC), which begins in the milk-producing lobules and accounts for around 10% of invasive breast cancers (US statistics). Connect with others, share experiences, and access peer support from people who understand the unique aspects of an ILC diagnosis.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.
