Who else can't sleep?
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Am thinking of getting the knitting needles over here in the Hills myself @ Zoffiel 3 -
This is so not becoming enjoyable - can’t remember the last time I had a good sleep - I think endone could of been involved and even then I still woke up during the night. Makes it very hard to get through a long day at work.
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Not even got to sleep yet!0
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That’s not good - at least I have had 4 hours. Don’t want to take a sleeping tablet as I haven’t taken one before and don’t want to feel worse when the alarm goes off in 3 hours 0
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Hope you got to sleep, ladies. Tired as but I'm awake now - neuropathy's getting worse and I can't keep my mind off it.0
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Hey @sister. Keep those hands warm that’s what helped me. Have you seen the physio ? Mine was great with advice to help the neuropathy in my hands and also had a wax bath there to soak my hands in it was bliss. Keeping them moving helped too. Painful at first but got better. But I heated them up first. Do you have an electric blanket or get a hot water bottle to help warm them up. When’s your next chemo and how many do you have left ?? Big hug. Margie xx
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I've been trying to keep them warm. 4 left if I can go the distance - apparently the next one is the magic number so I'm hoping that I can have that. They may give me a week off if necessary.0
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@Sister that sux. I have a little bit in my feet still after chemo and that was annoying me this morning plus my sore muscles. Has anyone else had really sore muscles post TC chemo?? I got about 1/2 hr between 3 and 4 and then an hour somewhere between 4.30 and the alarm going off at 6. Feels like I was up drinking all night without the fun!!0
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No sore muscles on TC here @Kiwi Angel. Just killer ankle pain. Couldn't get to sleep last night either. Lay there worrying about the joint pain, how busy today is, recurrence, and.then worried about getting to sleep. Everytime I started to drift off I'd get a huge hot flush. I couldn't get on to the forum as it was "over capacity'" After about two hours I gave up & took some Valium. Still woke up intermittently all night. This is a rubbish way to live.
Sorry so many of us are struggling with night time at the moment. Hope tonight is better for us all.0 -
@kmakm - wow - over capacity- never had that but it gives u an idea of how many of us are struggling!! Hopefully exhaustion kicks in tonight. Sorry u r still struggling with the ankle pain xo0
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@Sister I hear you LOUD and CLEAR. My neuropathic feet are yelling at me most of the day and night. It just got cold here in Perth and last night I had to put on 2 pairs of socks in bed to warm my feet up so I could get to sleep. Then woke up with a hot sweat and had to rip them off...then repeat...then repeat.
Also end up with pins and needles in my hands if U skeep with my hands under the pillow level with my head. I have to have them lower than my heart these days.0 -
Neuropathy sucks.... I am sitting here with a lavender heat pack on my lap which while I read I have my hands curled around it .... then put on lap while I type only way I feel my fingers through winter ....
@kmakm Over capacity .... thats a joke when I was on with Kiwi Angel there were 2 on the network us both !!!
Keep moving your hands and fingers @Sister
my boots have wool liners and thick warm socks and I still struggle with my feet through winter.
@Kiwi Angel
I put on my Ipod with my mediation app to get me off it had not worked an hour earlier but must of worked as I woke at 7am with a start...
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0.3oC here last night but has now reached the lofty heights of 8oC. I've pulled the armchair up to the fire, having hot soup for lunch, with a wheat bag on my feet (can't stand the uggies at the moment because they put too much pressure on my toenails) and a nanna rug over my knees. I'm such a go-getter.4
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