Who else can't sleep?
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@SoldierCrab I do sometimes.
-1° here on my Otis Foundation retreat last night as well! Made sure I didn't drink too much before bed so I didn't have to get up in the middle of the night!1 -
@SoldierCrab - no I never drink during the week when I have to work the next day. Just dinner and water.0
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So sick of not sleeping properly. Stayed awake till just about 11 last night hoping I would sleep better but just woke up in the middle of the night an hour later. Get my first hot flush about 11ish wish wakes me a up and then arthritis aches and my own snoring is waking me up. Starting to affect poor hubby too. 0 -
It's terrible eh? So sorry hun. K xox
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@kmakm - ha! This was me night before last. Had a solid one last night - yay! Didn't even hear hubby get up this morning at 530.
@Kiwi Angel hoping for a better night for you tonight. You turning off screens at least an hour before bed? Could help. Although, as you say, it is the hot flush that wakes you. I am having less of those the further I get away from chemo (nearly 3 months now). I am sure when I start Tamoxifen on Monday I will be back sweating it out with you.
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@JJ70 @Kiwi Angel I'm having fewer now as well, the further away from chemo I get. Letrozole doesn't seem to have increased them, though they seem to pump out more sweat than before.0
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@Kiwi Angel @kmakm @SoldierCrab and anyone else on this thread....what do you all think of future bone scans and MRI's etc? I have always been proactive, rather than reactive about my health (this is how I found this BC, by having mammograms since 40). My oncologist and BS say I don't need them. Easy for them to say from their POV? I wonder about the radiation dose v's chances of actually finding a recurrence.
As I understand it, the further away I get from 2017, the less chance of a recurrence. I am thinking I'd like another whole body scan in a couple of years. What are your thoughts?0 -
@JJ70 I have a CT scan every 3 months but I have metastatic breast cancer. I have also just had another bone scan 8 months after my initial bone scan.
My oncologist was originally talking about a breast MRI but I think she is trying to get my mets under control.
I think any test that can inform our doctors is important.
Then again, I wasn't tested as regularly with my primary diagnosis.1 -
@JJ70 - I’m all for testing - my oncologist said I can have another CT scan on my 1 year anniversary as she wants me to be able to sleep at night which is nice. I don’t know how often she will do this though as it is equivalent to 500 X-rays. I have always been incredibly proactive with my health - always have all my regular tests and get screening bloods once a year so I will be annoying shit out of all the medical professionals in my life from now on to get stuff done.1
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Well I am about to have the equivalent of 1000 xrays over 2 days, I had a ct scan last night and have to have another on friday, and I have pneumonia on top of that as well, it's a neverending story but without the happy ending, for me at least.0
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@Kattykit so sorry to read your story. Thinking of u for your scan tomorrow and I hope u manage to get on top of the pneumonia xoxo
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Thanks, I don't want to go to hospital, I was in the ED last night for hrs, they did all these tests, then sent me home saying I was good to go, when I saw my oncologist today she told me I had pneumonia, I don't know what would have happened if I hadn't seen her today.0
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It's not that they didn't give me results, they told me there was nothing wrong with me.0
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