Someone to chat with

2456789

Comments

  • Wendy Stip
    Wendy Stip Member Posts: 57
    edited March 2015

    Sorry you have to join the club, but all these lovely ladies are or have been in a similar situation to you & have been a real help to me in my journey. Take their advise & keep thinking positive thoughts.

    Wendy

  • Wendy Stip
    Wendy Stip Member Posts: 57
    edited March 2015

    Sorry you have to join the club, but all these lovely ladies are or have been in a similar situation to you & have been a real help to me in my journey. Take their advise & keep thinking positive thoughts.

    Wendy

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Just wanted to say thank you to everybody for your support. Had a  bad day today not feeling well.

  • JJoy
    JJoy Member Posts: 350
    edited March 2015

    I have just had my partial mastectomy, I got an even bigger shock to find I have to go down the Chemo road - this last couple of months have been doing my head in.  Tomorrow we are off to a large regional hospital for the bones scans etc....big breath!

  • JJoy
    JJoy Member Posts: 350
    edited March 2015

    I have just had my partial mastectomy, I got an even bigger shock to find I have to go down the Chemo road - this last couple of months have been doing my head in.  Tomorrow we are off to a large regional hospital for the bones scans etc....big breath!

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Thinking of you , hope all goes well. Debbie

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Thinking of you , hope all goes well. Debbie

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Trying not to think about it , but very hard, feeling really scared . Fear of the unknown.

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Trying not to think about it , but very hard, feeling really scared . Fear of the unknown.

  • moira1
    moira1 Member Posts: 449
    edited March 2015

    just wanted to say good luck tommorrow, do you live in a rural area, do you have far to travel for your chemo, please let us know how you get on, we will be thinking of you. Moira X

  • moira1
    moira1 Member Posts: 449
    edited March 2015

    hi Debbie, just wanted to welcome you to the group, nobody wants to be a member of, but which we are so lucky to have, all the ladies on here have been through the journey, as a patient or carer, and we have ladies who have just been diagnosed like yourself, through to ladies who have been clear for several years, so from this we have a wealth of information and support, so we all know how scary it is when you are first diagnosed (my 1st question was :am i going to die, and my surgeon replied, this is a like threatning disease, but it's not necessary a life sentence, and although i was worried sick, i clung to his statement, once you see the specialist and get a plan happening, you start to feel a bit more in control, i did read one of the ladies telling your about the free my journey kit which can be ordered from this site, i know you are probably inundated with information, but this pack, has been done with the help of people who have gone through bc, and also has useful information for you family and friends, in a language we can understand, so please make sure you order it. Also if possible, always have someone with you to ALL appointments, as i felt while i was sitting in the hospital, i thought i knew what was being said, but on leaving there, i couldnt remember a thing, so always good to have an extra pair of ears with you. We will all be thinking of you, feel free to add me to your contacts list, and stay in touch.... Take Care Moira X

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

     Thanks only have to travel half hr , if that live in Newcastle  N.S.W.  Will let you know what happens with the surgeon .  Debbie

  • Debbie J
    Debbie J Member Posts: 322
    edited March 2015

    Well my day finally arrived , met my surgeon yesterday. After being a basket case all week , I was so suprised that I was so strong and had this inner strength  to deal with it.

    Well so far my results are looking better. Not  2  lumps but 1, it is bigger 3cm - 4cm at this stage and my  Dr said he is 85% sure not in my lymph gland, but will know more once he has done the operation. Now I have 2 choices , this is were I would like some feed back. 

    (1) Have the breast off and all lymph gland and nodes removed.

    (2) Have lump and margin around it removed, then tested for cancer. Dye put into lymph area and see what needs to be removed.

    Anyone that has had to make this decision I really would like your input.

    My gut feeling is to have my breast off,the gland and nodes removed. The big day is next Wednesday.

    Thanks once again ladies for all your support .  

    Debbie. xxxx

  • TonyaM
    TonyaM Member Posts: 2,836
    edited March 2015

    Hi Debbie,

    These are awful decisions to make -collect all the info and personal stories but ultimately go with what sits right for you.I had lumpectomy,full node clearance and radiation in 2003 at the age of 47.I was presented with the same choices and at the time I wasn't ready to lose a breast.However,last year cancer came back in the same breast,same spot.I was in the unlucky 8%who get cancer back despite radiation.I had no choice this time but to have a mastectomy followed by chemo.I accepted losing the breast this time and I don't know if that's my age(55)or what.After radiation my breast was never the same- always a discomfort and alot smaller than the other. But at least it filled the bra and even had abit of cleavage.It was just for show .With a mastectomy,it's harder to look down and see nothing where your boob used to be.You can't wear any low necklines but the prothesis is really good.I'm reluctant to have a reconstruction at the moment cos I can't stand another op.(4 in last 3yrs)and I am paranoid cancer might come back along the scarline.So am watching it.Down the track I may change my mind I probably don't have much elasticity in my skin because of the radiation.

    So you see,either way has it's pitfalls and advantages.I would say this though- chemo was by far the worst treatment.If I could have avoided that then I may have had a mastectomy 7yrs ago.But you just can't predict ahead.Good luck with your decision.

                            Tonya xx

  • TonyaM
    TonyaM Member Posts: 2,836
    edited March 2015

    Hi Debbie,

    These are awful decisions to make -collect all the info and personal stories but ultimately go with what sits right for you.I had lumpectomy,full node clearance and radiation in 2003 at the age of 47.I was presented with the same choices and at the time I wasn't ready to lose a breast.However,last year cancer came back in the same breast,same spot.I was in the unlucky 8%who get cancer back despite radiation.I had no choice this time but to have a mastectomy followed by chemo.I accepted losing the breast this time and I don't know if that's my age(55)or what.After radiation my breast was never the same- always a discomfort and alot smaller than the other. But at least it filled the bra and even had abit of cleavage.It was just for show .With a mastectomy,it's harder to look down and see nothing where your boob used to be.You can't wear any low necklines but the prothesis is really good.I'm reluctant to have a reconstruction at the moment cos I can't stand another op.(4 in last 3yrs)and I am paranoid cancer might come back along the scarline.So am watching it.Down the track I may change my mind I probably don't have much elasticity in my skin because of the radiation.

    So you see,either way has it's pitfalls and advantages.I would say this though- chemo was by far the worst treatment.If I could have avoided that then I may have had a mastectomy 7yrs ago.But you just can't predict ahead.Good luck with your decision.

                            Tonya xx