The “journey” begins.

JenD · January 23

Hi, sounds like you are very fortunate for such quick action. So far from tumor diagnosis at breastscreensa on 22/12 with idc grade 3, er and p + and her-neg, I went straight to dr for referal. First appt at clinic jan 10 (mammagram done which ruled out to only 1 side tumor and calcification). Jan 15 ct scan, blood tests and bonescan, and then a 9 day wait till next appt for results on 24th jan..in 2 days time. Xmas is hard to find out bc news and Im just trying not to let my imagination totally trip out while I wait. Thanks for sharing your journey so far. The anxiety of unknown is very challenging, so reading and knowing there are lots of others feeling this way is calming me a little.

arpie · January 23

Sorry to see you join our select little group, @JenD .... If you copy your comment & put it into 'Newly Diagnosed' ..... you'll get more specific replies to your thread & it can 'sort of' be a diary of your treatment from now to the end of 'active treatment' .... just adding comments (like your results & game plan) as & when you receive them along the journey. xx

You've had all the tests done, good luck with your results - make sure you have someone with you at all your early meetings, and also consider recording them on your phone, for later reference. It is very difficult to recall ALL that is discussed in the meetings, even if you take notes at the same time xx

Take care

MrsMorrisey · January 23

Oh my goodness. My appt has been brought forward from 5th Feb to tomorrow!!!

Keen but not keen. 😱

cactusk · January 23

@MrsMorrisey It will be good to hear the results of your pathology and the proposed path for treatment. I know for me at least, once I was aware of what the next steps were, I could start to plan and prepare myself. Do you have someone to go with you to the appointment? My best friend came and took notes for me, that way I made sure I didn't miss anything. Hopefully you'll meet or be assigned a breast cancer nurse soon too - so far they've been very helpful at answering questions I forgot about or only thought about afterwards.
Best of best of wishes for tomorrow - do let us know how you go (when you feel ok with it of course)
Kelly

MrsMorrisey · January 23

I certainly will. I have my friend coming with me.

My husband is not the best for these things, he’s a hands on man not a listening to results man.

I’m so surprised everything is happening so quickly. I was quite enjoying this time after surgery cos I didn’t have to think.

At least the surgeon can take my dressing off instead of me.

It’s going to be good news. 🙏🙏

iserbrown · January 24

Best wishes for your results tomorrow @MrsMorrisey

iserbrown · January 24

Understand your breast cancer pathology report (bcna.org.au)

The link above, if you haven't seen it already, will help to understand your pathology results as a result of your recent surgery

Take care

arpie · January 24

All the best for tomorrow, @MrsMorrisey .... make sure you ask for paper copies of your pathology & ALL reports (and that they are sent to your GP too.)

Mine was brought forward too, and it was great! Less waiting & worrying!

take care

MrsMorrisey · January 25

Well that wasn’t what I expected

My surgeon has removed the IDC but the margins were not clear and some DCIS remains so I have to have more surgery.

I’m really upset about this.

She said I need to see the oncologist next week to make a plan preferably before surgery. Not sure why.

She said radiation will be happening and hormone therapy.

The grey area is chemo where we need to have discussion on whether it’s required.

How on earth am I supposed to make that decision.

It’s so tricky working out how to feel going into these appointments because you don’t want to get your hopes up but you need to stay positive.

Feel really crap now.

At least I know what to expect from surgery.

arpie · January 25

Oh FUDGE @MrsMorrisey!! That is not what you wanted to hear xx ..... Sadly, it does happen to quite a few members xx. Take lots of Deep Breaths, pull on the 'big girl pants' xx. If this is what is needed to get the sucker out .... you do have to roll with it xx

Did they give you a copy of your pathology? It should give your grade & stage & other info ....

I was lucky & didn't need extra surgery, tho one of my margins was 'only just' clear ....

take care, thinking of you xx

nicmaree · January 25

@MrsMorrisey, sorry to hear this news. Try and keep a positive mindset . My go to is walking, music and fresh air
Get in to see your onc asap . Take a friend . Ask lots of questions. Sending hugs. Xx

MrsMorrisey · January 25

I’m really angry now. Not sure why.

Afraser · January 25

@MrsMorrisey

Have a bit of a vent - we all hope to act like reasonable rational people and sometimes you just don’t want to do that any more! There’s no problem in letting it out of your system, reasonable and rational can wait till tomorrow. Your team are doing their best, as @arpie says this situation is not uncommon. Keep all the other thoughts till your next discussion. Although remembering how angry you feel at not getting rid of the cancer in one shot may help you consider what treatment you are willing to do to achieve that end. Best wishes.

MrsMorrisey · January 25

I’m so having a vent.

I’m so sick of people telling me to be positive.

All I do is say it’ll be ok, everything will be fine. Well I kinda feel like it’s not fine.

And I know my situation is better than others but it’s mine and it sucks.

If I have one more person tell me you want to limit the amount of drugs you put in your body I’ll scream.

I’m the last person who wants to take all the drugs so by telling me “oh you don’t want chemo.”

No shit, neither do I!!!
I just had a vent at my family and now I feel like I need to make them better.

I understand my husband is going through this but it’s my body. Would be nice if he said something comforting.

So over it all.

MrsMorrisey · January 25

I need to stay away from my husband cos I’m gonna start a fight.

The “journey” begins.

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