2 year all-clear, 2 year all-fear.
Comments
-
here is a hug for all you non huggers 
I truly believe only those who have been through BC roller coaster get it....
1 -
Hi @SoldierCrab
As Riki said above, we are very happy to create a new category for life after treatment. We think it's a great idea. We are just wanting to hear from the group about a suitable name.
Everyone, let us know your thoughts re the following options or any others you can think of
- Life after treatment/Life after active treatment (although a lot of you are still on some form of treatment after completing hospital treatment)
- So now what
- Life after...
Once we've decided on a name we can create the category immediately and you can get posting
1 -
So now what
seems so apt!
1 -
I am so lucky that both the radiology practices I have used tell me the ultrasound results when they have finished (all good so far).
As for life after treatment, it really does suck with the constant insomnia and tiredness. I could even go back to bed before 10am, having got up at 7.30 am. But then I would lose the rest of the day and toss and turn all night again.
I am am happy with any of the suggested names.1 -
@InkPetal I read my scan report the other day while I was waiting at the dentist. I had had them done 2 weeks before so liked to think of there was anything worrying someone would of called me!1
-
What does life AFTER treatment mean????0
-
I still have hope.
Hope that all will be well after I get this cancerous growth off my finger and a skin graft that I will be able to go fishing again.
Hope that my cardiologist when I see him for the first time will change my meds and give me something that works and doesn't sap my energy and have me dizzy all the time.
Hope that one day in the future at least half my pre cancer energy will return and stay with me.
Hope that my mind will return and I will have that willfulness again to do things I used to and maybe to try some new things as well.5 -
@Patti J
for those like yourself who are lifers with treatment so to speak it sucks also....
There are some of us who at the present time are LIFE after treatment ....
There are categories and groups for Mets ladies etc
What this would mean is that those of us who are presently finished active treatments (chemo & Rads).
We could have a category where we can vent and support each other without feeling like we are frightening the newbies..... It is hard enough when we are all first diagnosed to cope, without realising that we could/might have life long side effects from our treatments be it AI treatments or residual effects from RADS or Chemo....
BC is Shite and we all know it .... because the survival rate has gone up we now see more long term side effects in the survivors .... Are we happy to be alive and still with our families etc Hell Yes but it can be a real struggle for many.
I have a motto that "survivorship is hard a battle won every day..... "
@Marianne_BCNA
@Giovanna_BCNA
I like "Life after treatment - So Now What !!!"
But happy if it lets people understand in a heading what it is about.
3 -
@SoldierCrab. When I phoned the Encore program manager because I felt that this program wasn't suitable for me, she told me that some managers don't like people with mets joining in because we scare the newbies.0
-
@Patti J
Well that is a narrow view of what you could possibly offer in support to newbies ....
Life is about taking the good the bad and the Sh*te and working it into a beautiful tapestry .... by being kind and sharing and having empathy for others not everyone gets that unfortunately....
2 -
So now what? Sounds good.1
-
Well, as far as I'm concerned the managers can get stuffed @Patti J I certainly wouldn't want to participate in a program that discriminates like that. 'Scare the newbies' what a crock of shit. The newbies are already scared, or they bloody well should be.
Everyone has a right to try to improve their quality of life and being excluded like that makes a crap situation even worse. If you think you would benefit from that program, enrol in it. If they try to sideline you because you are living with the disease and technically you (like many of us, realistically) are always going to be 'between' treatments rather than ''finished', you let us know.
There will be a storm of indignation! Mxx7 -
Now what? suits me. There are so many ways to interpret that, depending on the delvery and where you put the emphasis.1
-
@Patti J, that's both discriminatory and stupid. The discrimination is pretty obvious, the stupidity is not recognising that models of how to take affirmative action in your life are important to everyone at every stage. I hope you have the energy to challenge that position. Best wishes.
4
