2 year all-clear, 2 year all-fear.
Comments
-
@Marianne_BCNA 'So Now What?' was my suggestion. I think the truncation to 'Now What?' is good as well. However I insist upon the question mark!! Punctuation pedantry aside, it indicates the genuine bewilderment and questioning that many of us have about what happens after active treatment, stuff we weren't told about, things that we have no idea how to improve, and the genuine concerns about recurrence that lead us to question pretty much everything we feel and are told. K xox5
-
Hi @kmakm, I think a couple of them were your ideas. I just listed the suggestions in the thread. If everyone is happy with 'Now what?' I can create the category tomorrow morning
1 -
@Marianne_BCNA Awesome sauce. 1
-
@Marianne_BCNA
I'm happy with Now What?
Also like the idea
"Survivorship struggles"
Not sure what others think.1 -
PrimeK maybe Now What ? - Survivorship struggles.....
1 -
Everyone looks , I don't even know why they bother to seal the results, duh !!
Finished radiation to chest and hip area 3 weeks ago and feel like a wet rag, (after chemo and bilateral surgery).
Saw my Onc today , complained about tired , pain, headaches and hot flashes/sweats(tamoxifen) ,his comment .
'suck it up " , I'm tired of being tired,and it looks like it doesn't improve much , but keeping fingers crossed that I can at least kick the pain killers down a notch in about another 8 weeks or so when the rad to the hip met should start to work and I can walk without limping and flinching everytime .
Such a horrible disease to live with , rrrrgggghhhh ........4 -
Just tucked myself up in bed with another bloody headache and feeling sorry for myself for feeling absolutely exhausted after another day at work. Always does me good to check in here, makes me feel not so alone and makes me remember all of us are going thru the same struggles.
Fatigue is the killer for me, I blame it on Tamoxifen. Seems to be i handle it for a couple of weeks, then crash with a migraine..and im 4 years out! Love and hugs to everyone getting, up, turning up and just getting thru each day. Even tho I dont write here often, always a comfort to check in and know so many of us in this together xx10 -
@michelle B
I agree i too just hopped into bed aching!!! In pain and exhaustion with 1 more day to go. Yet i roll into work all smiles and nobody knows what i go through. Hard to find joy sometimes when quality of life has diminished . Well a good rest and onward we go because we do it so well!! X4 -
@melclarity,yep, that is what we do!! Have a great day tomorrow x1
-
2
-
Big hug to you too @Michele B. K
1 -
@Patti J I was going to comment yesterday but typing something on a phone just gives me the irks. Don't let them tell you what you can and can't do. If anyone diagnosed with bc thinks that there are guarantees out there that there, they're living in a dreamland. This is not a fluffy, pink disease. It sounds more like those giving the programme are scared. I think it's more important for those of us at a lower stage to know that life can still be lived at Stage 4. The only real reason they can give for you not doing the programme is if your current condition makes the exercises dangerous. Given that you sign a waiver and have to have medical consent makes this ridiculous.4
-
@Patti J sorry I meant to comment too, I've done the Encore Program and I liked it, it kick started me back, from there I found an exercise physiologist to work with. I THINK they have it all arse up personally...why isnt the time spent in all things, research and care, survivorship of Mets and Stage 4, to me this is more valuable and where we get the deeper knowledge and understanding of the disease. I also think too...BS!! discrimination and the benefits are enormous for you...please do challenge this as 'scare them away' I'm sure we can 'scare THEM away' if they don't! How dare they! and as others have said, as if people arent scared at any stage? please...they are ignorant and need to grow up. To me...what a great promotion for Stage 4. Hat off to you!! xx M4
