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Silba
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Joined 8 years ago
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Re: Rare breast cancer - Metaplastic
cd85, I just finished 6 weeks ago with 6 months chemo after total lymph nodes surgery , which was diagnosed as triple negative, however I also have mets which I have been living with for the last 4 years. My onco has decided to just monitor every 3 months as I have have lesions on hip bone and a small one in the lung. So the first time 2018 I had , 6 months chemo, bilateral mastectomy,partial Lymph nodes removed, radiation, Xgeva and Tamoxifen for 3 years, then went onto Femara , had just made it to my first 6 month ( 2022)check up when the triple negative showed up in my remaining lymph nodes ( very quick growing and aggressive in six weeks went from 4 cm to 9 cm) and the lung lesion ( at the beginning unknown whether triple negative or mets ) , can't have radiation again on the lung as it's in the same area I had it for the Mets breast cancer.so we are just going to continue with the Femara and Xgeva. Second time around of chemo has really done a number on me, but taking it one day at the time, as second chemo was a different cocktail of drugs which will affect only the triple negative cancer. Your oncologist will talk it over with you , I'm not going to lie and say it was easy to go thru chemo again , but if it buys me another 3 -5 years its worth the effort. My onco has requested 3 monthly scans , you can talk to your one about it too. Good luck5Views0likes0CommentsRe: Trple neg mets bones and lungs
Hi Sorry @Suzi14 about your news , but you're not alone , my new cancer is also triple negative, had all my scans and having surgery this coming thursday to remove all the lymph nodes on my left side ,there is also a new little spot in my lung, which apparently oral chemo should control (fingers crossed ) I have mets in my hip which is hormone positive, but that is apparently holding for now. You would think that dealing with one would be enough but hey let's throw in another one...so after bilateral mastectomy, chemo radio and a hip replacement , more surgery , oral chemo ( not looking forward to that) but better than IV ,I hope. Worst thing, I'm now getting a phobia about needles , my one arm has had enough , the veins see a needle and they collapse.....which makes for several stabs at it and a cringe at the " it's just a little pinch" Hang in there, we have a lot to live for yet , just think we might see the end of COVID .... Keep smiling.Re: My husbands lumps
I am sorry to hear about what your husband is going thru, yes there is little acknowledgment for the males in his situation , but he has you , just like I have my husband , the best is to have a rock to lean on and a partner who cares . Feel free to ask any questions we have all been thru all the treatments in various shapes and forms , and there is a few guys on here that will be happy to help . All the best to both of you ,Re: Feeling a bit down
Hi, I'm just pass my 2 year mark with MBC, had the usual rounds , chemo , double mast, radio, I personally found getting over the radio more difficult than anything else, I too was force into early menopause and will add a hip replacement on top (at 51)and now going through a change in medication. I talk to a psychologist every 4 weeks or so and she is a great help, the patience tanks rans low , the lack of sleep doesn't help but it could be your medication menopause does it too , talk to your cancer nurse there is stuff you can take short term to get your sleep pattern back, the mood swings I was cautioned about and I don't get angry ,I cry at the drop of a hat, ( commercials for" we''re all in this together ") wish they would take them off the air. Disney movies , forbidden in my house. But I agree with Lythe pick something to be grateful for each day and if you smile at least once a day that is a great thing, eat , cry , be mad , give yourself a break about processing all the crap you have been thru, when I am really down ,I go on here and read the friday funnies. Hang in there ......8Views4likes0CommentsRe: Advice on ceasing treatment
@Mellyb my sincerest condolences to you and a thank you for understanding the crappiness of MBC , I'm only 51 and have been fighting this for 2 years I guess the main issue is to continue to raise the issue in the community and to anyone that listens. I'm very honest when people ask me how I'm going and my response is usually very confronting as you said at the start , this is treated as chronic disease but it's not , it's a roulette game that we play with the drugs , treatments and emotions. Be comforted with the memories, you stayed strong for your mum and that gave her strength to keep fighting as long as she did, keep moving forward and talk about it to anyone who will listen and keep talking to your Mum she's inside of you .... lots of love ....Re: What doesn't kill you makes you stranger. And strangely more able to cope.
@cranky_granny Thank you I will look into this, however I just tried to sign on for the 'Vulnerable" online shopping at Woolies, but I don't have a health card or pension card so can't get that either ........23Views0likes0CommentsRe: COV-19 and shopping
Good info to know , my boys have been doing the running around but with so many things out of stock , they don't quite know how to improvise, this is a good learning curve though...... My breast surgeon is doing a telephone follow up appointment instead of face to face , we'll see how that goes......
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.
