Here Goes
Comments
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Hello @TabooGal sorry to hear of your recent experience, how scary for you! Look after yourself and keep your doctors posted if you have any concerns.0
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@Giovanna_BCNA. Thanks. Almost took myself back to ED tonight. I really don't think I should be walking around with a blood clot in my neck and feels like it's getting bigger. I have a 9am app to meet Rad Onc tomoz. Might get some action from him.0
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Eddie is a star ( I assume that is who you are seeing) @TabooGal tell him everything --write down all the details so you don't forget. Do you know how to get emergency departments etc to send through any results to your medical team? If you have scans or tests tell them to cc your oncs, surgeon and GP. I just write the names on the referral myself. Some door bitches can get sniffy about it, but insist. None of this ''' will be on your health record' nonsense, sent directly, thanks.1
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Good point @zoffiel - never forget that you can ask for copies of your results to get sent to whoever you want them to be. My GP asked me to include him as GPs are generally left off the list but he's the one who is likely to see me as a first port of call given the distance we are from a real Emergency Room.0
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@zoffiel Just got back from initial appointment at Radiology. Craig someone. (chemo brain).
He calmed me about the blood clot thankfully and I should see some change in the next 24-36 hours.
30 rounds of Rads plus boosts. starting end of Sept.
I'm already having carpark anxiety. Craig mentioned that they will be extended service to 7pm so I might get on the late appointments with a better chance of getting a carpark.
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@kmakm I love it Yaboo! yep. I even get to appointments more than an hour early so I can get a carpark and time to recover from the anxiety of finding a carpark. My daughter tells me to talk to the Carpark fairies before I leave. It works sometimes and sometimes not. Go figure! lol
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I love the car park fairies. Nearly always works. You have to really believe. Lol
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I never had an issue parking there, sometimes I was a bit further away, but it wasn't stressful. Mxx
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I expected to have so much trouble parking at the RAH but it's been so easy. But then I sometimes have a giggle to myself when I watch people circling around to get a park by the lifts when there's heaps of parks further away.1
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I too had car park anxiety !!! ok if you wanted to pay heaps !
So much so that most days my husband drove me and he did laps ! your in there for such a short time !
The days I did drive I found a park straight away & one particular day the carpark fairy came & even gave me a ticket with 2 hrs left on it ! go figure lol !!
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@tigerbeth I want your carpark fairy. lol1
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Hey @TabooGal just catching up with your scary experience!
Amazingly, the woman sitting next to me at chemo this arvo had exactly the same thing happen to her! She also had a DVT and has to give herself clexane injections and was showing us her bruising.
So glad to hear you went back to the hospital. If there's one thing that I've learnt from this BC experience is that you have to push to get listened to! So many of us have been diagnosed and have received the correct treatment by being insistent. We know our bodies better than anyone else, and have a sixth sense when something isn't right.
Hope it's all smooth sailing from here on. xxx0
