Who else can't sleep?
Comments
-
Fuck im up again. Haven’t been on for a while up Since 2.30. Got heaps going on. Don’t want to put it on here though. @Giovanna_BCNA. Perhaps there can be another closed group started to discuss more private matters and seek opinions. So pleased you got to ring the bell @Kiwi Angel Margie xx0
-
@onemargie I thought you had been riding a wave of action and positivity. Not sure what's going on for you but thinking of you. Gaye0
-
@Sister - good luck for today. I totally get what u mean about the commenting - I have been feeling the same the last week - I just feel drained.
Managed to sleep a little better last night - still tossed and turned but the hot flushes were not quite as bad, as we the husbands snoring.1 -
@onemargie. Thinking of u xoxo0
-
The nice thing about the site is there is always someone who responds in a sensitive way @sister There are new people all the time, sadly, and many take to the supportive role like ducks to water. I used to always respond to new diagnosis posts, I don't often now--i can't keep track of things so tend to just stick to a few threads. Sometimes we help, sometimes we need assistance. That's the way it rolls.3
-
@onemargie That's no good! Of course I noticed you weren't about but I presumed it was gala drama. I missed you! So sorry to hear you've been having a difficult time. I hope things turn around for you soon. Kate xox0
-
Dear sister, I love your post! I think just by your post you actually are a great support, it allows me to feel bad or deal with feeling bad. Otherwise one starts to feel guilty about not "being a good sport". I find sometimes it is confronting to see all these smiling happy faces especially when one is down at the time. I can relate to your feeling of reading a post and just feeling speechless. Behind every post is so much, and behind every non-post or very short one is even more. Thinking of you....
4 -
@Sister
and @onemargie
inboxing you both....
sister is it very normal to get to this point where you feel you have nothing to say ..... you are tired ... often more than you realise. I retreat in winter a bit as my computer room is freezing as it is all glass room so in Bathurst winters its like a freezer box...... and then my neuropathy plays up with being cold.... ah the joys....
I had 6 before they stopped my paxit.... I looked like jumping jackson I shook like a addict on something weird. I had NO feeling in either my toes or my fingers all the time....
I believe IF it is disappears quickly they like to continue your doses until they negate the risks to long term health.
Breathe allow the emotions the feelings of nothing to give at the present it will pass but you must look after you ... Now is the time to put you first.
Hugs
Soldiercrab
1 -
@Sister - your contributions are always so worthwhile - you always 'speak' from the heart and from your real-life experiences. It helps enormously to get an incite into what people are experiencing day to day - but I think we all just jump on here when we can (I'm being incredibly naughty these days and have the BCNA discussions page open on my computer while I'm at work so I can check in during the day) and yep, sometimes it's really overwhelming to login and find a ton of notifications - as @Zoffiel says, one of the best things about this discussion board is that no matter what time of day or night it is, there's always someone around to lend an ear or offer support.
Hopefully by the time you read this, #7 will be done and dusted - I can't wait to be where you are! I've just done #3 AC so I'm way behind you and you are a HUGE inspiration!
@onemargie - sending you lots of positive thoughts and hugs - sorry to hear you're having a bugger of a time at the moment xxxxx
1 -
@Sister hope today's chemo was swift and as good as one could hope for.
Do watch that peripheral neuropathy. My last Paclitaxel was modified slightly, so as to lessen the chance of permanent neuropathy.
3 months post chemo now and I still have it in my feet, mainly the left. Never did get it in my hands. You only have 2 left by the sounds - but don't be afraid to tell your oncologist what is going on with your neuropathy, it can be a long lasting side effect and debilitating and painful. Hoping for the best for you. x0 -
Hi @Eastmum. I am doing pretty well. Uncomfortable foob with hard lumpy bits.....and a VERY tight abdominal scar hip to hip, but healing is going well. So far, so good. Walking around the neighbourhood and doing most normal things, except lifting and stretching out flat when lying down. Just over 2 weeks now since single DIEP. Sneezinf, coughing and laughing are anxious moments!
I am pretty happy with the results so far. Thanks so much for asking and checking in on me. x2 -
Sounds like you're doing great @JJ70 - so many other DIEP gals mention the tight abdo scar - I'm pretty sure that lasts for ages. What do they say about the hard lumpy bits? Where are they from?
I'm not going to have recon until sometime in 2019 because I'm going to have radiation after chemo - my plastic surgeon (who I love) is very conservative about recon on radiated skin. He told me that he'll consider doing a DIEP around 6 months after my rads finish, or if I opt for a transfer to implants then it will be around 12 months after rads. I'm only due to finish Chemo at the end of September and then radiation will be in October/November.
Hopefully the expanders will stand up to radiation - they're supposed to!
My healing colours head wraps arrived yesterday - they're so gorgeous!! xx1
This discussion has been closed.