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New to sharing
Hi all, first timer here I was first diagnosed May 2013, 6 rounds of chemo, 30 radiation treatments, then Tamoxifen til 31st Oct 2017 when my world fell apart, bone , lung, and a few other places mets, nail inserted on 24th Nov, lucky to get a place on the ribociclib compassionate access program, combined with letrizole…
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Research
Today I have been in touch with a friend who is the director of a research institute. I asked him about funding for metastatic breast cancer: if there was 30% of research devoted to metastatic breast cancer. He was non commital. He did however tell me that 2 oncologists associated with his institute were doing research…
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Treatment query
Hi folks, I'm very new to the scene. My elderly Mother has recently been diagnosed with HER2+ breast cancer, and after a bad introduction to Chemo, has now moved onto the more specific treatment with Herceptin/ Perjeta/ Paclitaxel. She has just had her second dose and I couldn't seem to get a sense of how vulnerable she is…
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Migraine
I am currently on tamoxifen after recently being diagnosed with Mets. I am 49 and this was my first diagnosis. As I am not post menopause my Oncologist has put me on this medication and a planned surgery to remove ovaries in next month. I have developed a horrible migraine slowly over the last 2 days which has worsened…
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Travel insurances
I have been diagnosed with metastatic breast cancer in the bone. Lesions in hips & neck of femur. Other lesions in the thorax but not necessarily breast cancer. My Oncologist has advised that it’s ok for me to travel nationally and internationally. Can anyone advise which Travel Inurance company has the most understanding…
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New to the group
i live in a country town where they have no groups for Metastatic breast cancer it is more first women that have been early diagnosed. So when i was told that group was on line i was really pleased reading so many out there are the same and your not alone. Was diagnosed in 2009 with stage 3 and 19 lymph nodes taken out…
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THANK YOU, BREAST CANCER NETWORK AUSTRALIA NETWORK
T My name is Karen Cowley and I have been living with Advanced Breast Cancer for 12 years. I am also a very proud BCNA Consumer Representative. On Thursday 5th April, 2018 I was privileged to be invited to a very auspicious occasion at Victorian Government House hosted by The Honourable Linda Dessau AC to mark the 20th…
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Finding some inner calm with yoga.
Melbourne women: Counterpart (formerly Breacan) is holding a gentle yoga session tailored for women with advanced disease on Wednesday April 18, from 10.30 till 12. Further details and registration on the Counterpart web site.
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Join our campaign to have ribociclib and palbociclib subsidised in Australia
BCNA is calling on its members and their supporters to write to their local federal Member of Parliament and state or territory Senators to urge them to support the listing of ribociclib and palbociclib on the PBS. Information regarding the campaign including letter templates and a list of federal members and senators can…
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Wanted someone who cares!
Today it really hit me .....I have no one that cares not one person. Coming up to my cancer 2 year diagnosis life goes on and I'm in it but so alone . I cook clean straighten hair do nails but still no one cares enough to say how are you mum . I am so very lonely . When my husband gets home late he eats and watches tv if I…
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IT'S SCAN TIME AGAIN....
It has been about 8 months since my last CT scan (and over 2 years since my last full strength chemo) to see what "marvin the met" has been doing in my vertebrae. Going for regular treatment, blood tests, heart scans etc everyone around me is now pretty used to it and thinks nothing much about it anymore. I know you guys…