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Instagram account
Hello all. So im thinking of starting an instagram account just to document some of the ups and downs i have with metastatic , being young, dysphagia, and everything in between but for the last few weeks i am struggling to come up with a name. I thought about living with metastatic breast cancer but i think its a bit long.…
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Mets to liver
Hi, first diagnosed with BC in 2012 (stage 3). Was on tamoxifen for just over 5 years until last Jan and then I started to feel unwell, weight loss and I knew something wasn’t right... after tests it was confirmed that it returned and this time it had spread to my liver. It’s been 12 months and still working full time -…
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Anyone on the AZTEC trial??
I have metastatic TNBC and have recently commenced treatment on the AZTEC trial. Is there anyone else here on that trial???
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Avastin
Is anyone out there with metastatic TNBC with skin Mets on chest wall using Avastin? could you tell me about your experience as this is about my last resort but onc doesn’t really give it a big wrap but I do understand it can only give me some extra time if it was to do something but that’s something I’m looking for whilst…
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Medication not available
Has anyone else been told that their medication hasn't been ordered and subsequently isn't available? That is what has happened to me this week. I was supposed to pick up my medication on Wednesday, but I still don't have it. I am thinking that perhaps I am cured and don't need any more medication. 🙄
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Time to own up to mets
Hi pink sisters I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas! Here it is:…
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ADVANCE NOTICE: Bellarine MBC Support Group
A new support group for women with Metastatic Breast Cancer living on the Bellarine Peninsula is being established. The group will offer support, information and resources, meeting monthly in Drysdale. It will be registered with BCNA and Cancer Council Vic. If you’d like to be involved in the planning stages, and be part…
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Advance notice: Bellarine MBC Support Group
A new support group is being established for women with MBC living on the Bellarine Peninsula. The group will offer support, information and resources, meeting monthly in Drysdale. It will be registered with BCNA and Cancer Council Victoria. If you’d like to be involved in the planning process, please contact me through…
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Advance Notice: Bellarine MBC Support Group
A new support group for women with MBC living on the Bellarine Peninsula is being established. The group will offer support, information and resources, meeting monthly in Drysdale. The group will be registered with BCNA and Cancer Council Victoria. If you’d like to be involved in the planning stages, please contact me…
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Perjeta access as second line treatment for HER2+ MBC - suggestions please
I was diagnosed with MBC in Nov 2011 (first diagnosis: mets to liver, bones, lung & brain), and have been feeling very well for years on Herceptin. However, this month, there has been new growth in the breast & supraclavicular lymph nodes - so there is some cancer that has become resistant to Herceptin. I would like to…
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Still crying
Hi Everyone, After 8 years clear I was diagnosed with metastatic breast cancer on the 19th December 2018 and I am devastated. You can imagine what Christmas and New Year celebrations have been like.... bloody miserable. I have been on the Ribociclib treatment since Boxing Day, the side effects have come in waves but not…
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New to Support Network
Hello I am 36 years old and was diagnosed with Stage 4 breast cancer (right breast and tumours on my left lung) in May 2018. I have been having chemotherapy since then and no end in sight so far. I have two very young children and I guess I was just hoping to connect with other women in a similar position as me or women…