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Radiation on hip bone.
Hi, have metastatic breast cancer , left breast, left lymph and two lesions in hip bone, just finished six months chemo, 4 AC/T and 12 Taxol. no change , so semi good news. Have a lot of pain in my hip even if keeping very active , onc. suggested radiation for pain , now he is saying it can kill or slow down tumors in hip…
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Two steps forward, one step back – news on access to CDKs in second line treatment
Hello everyone, BCNA has an update on access to CDKs as second line treatment. Pfizer have this week advised BCNA about a new capped access program for the CDK inhibitor palbociclib (lbrance) which will be available from October 1, 2018. This means you still have to pay for around 8 months of treatment (at a cost of around…
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Plan C Conference 11 August 2018 Summary
Hello everyone, Its been a long time coming and I do sincerely apologise for the delay in posting this summary. Please find attached the summary from the Plan C Conference held on Saturday 11 August 2018 at the Glasshouse in Melbourne. If you have any questions or concerns, please dont hesitate to call our helpline on 1800…
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Feels like a brand new diagnosis 😫
Hello, Although I have been aware of these groups I have been too afraid to post. Posting meant I truly had cancer. Everything happened so quickly it still feels like a dream. After finding a small, red, angry lump on my left breast, I plucked up the courage to visit my GP. He straight away organised a mammogram. On…
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Continue the Plan C discussion in the metastatic group
Hi all, A big thank you to @MoiraC who ran the discussion session at the end of the Plan C. It was very well attended and started some importance conversations regarding access to treatment, talking with family/friends about MBC and the loneliness that can be experienced. We would like to continue the discussion in the…
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Am I expecting too much?
Firstly a bit of background Lumpectomy from right breast March ‘18 came back positive All 40 nodes from right armpit removed April ‘18 came back positive. Bone scan found two ‘spots’ on T11 vertebra and two more on my skull. Had radiation for five weeks focussed on right breast. On Letrozole and Kisqali Saw Radiology…
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Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe? On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it…
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ABC Global Alliance Executive Committee Webinar
Hello everyone, Following a meeting of the Advanced Breast Cancer (ABC) Alliance Executive Committee, we have been asked to distribute this webinar link for some consumer feedback. I have only had one reply so far and was hoping that some other members of our online community would be able to review this webinar and…
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Is there an information day in October for metastatic breast cancer and latest research?
hi folks, just wanting to clarify, is there an information day coming up in October regarding metastatic cancer and latest research etc? I can’t find anything on the website and now thinking I might have dreamt it
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newly diagonosed
Hi all. I have been diagnosed with st4 breast cancer going to the t4 vertebrae. This was found after I had been found to have a pathological fracture of the back. This has now travelled to my t3. My t4 has collapsed and the tumor is sitting very close to the spinal cord.The neurologist wants the oncologist to try to shrink…