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Devastated
This is the first time I've posted anything but I don't know who else to turn to. I initially had early breast cancer June 2010, treated with lumpectomy, lymph node clearance left arm,chemo and radiation. Took tamoxifan for 6 years. Got to my 5 years and me and everyone else went "woohoo!!". Planned the rest of my life…
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Surgery Option or Not?
Hi Everyone, I was diagnosed de novo Stage 4 with breast, lymph node and bone/spine mets in Oct 2018. I've had really good response to treatment with Letrazole/Ribociclib/Denosumab whereby the breast lesion and lymph nodes are barely visible on my last CT/Bones scans in May, they've shrunken significantly. My bone/spine…
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How long should you keep working.
Hi everyone, I was diagnosed with Mets in December 2018 and am having pleasing results to date, however I’ve been told that Ribociclib is only effective for a year, I’m hoping my Oncologist is wrong. I am working full time in a senior management position and feeling the effects of fatigue from the treatment. My work is my…
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A man living with mets.
@Chester80$$ gives an honest rundown about his late stage breast cancer https://www.facebook.com/BreastCancerNetworkAustralia/videos/1047726642083943/
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Faslodex
mmh43 I am about to start a series of Faslodex injections for my metastatic breast cancer in the liver, lungs and now bone spots. The liver and lung mets were discovered in 2006 and I have had several hormone treatments - Femara, Aromasin, Afinitor and chemotherapies - Xeloda, Caelyx and Eribulin since then. While I know…
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Mets in brain & liver after 5 yrs feeling good.
Just before Xmas I was diagnosed with Stage 4 breast cancer. To see my GP & later my oncologist so upset I knew it wasn't good. I have 40 tumours in my brain...after only having very slight headaches & 5 or so tumours in my liver...again only slight pain in my right side. My whole world was turned totally inside out. I…
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Progression Update - Good News!
Hi Everyone, just thought I'd share some good news, having seen some good news stories myself, they did make me feel better, so I just want to pay it forward :) I was diagnosed with de novo Stage 4 with bone/spine mets last Oct 2018. I underwent every scan and test possible and results were coming back…
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Xeloda working or not? The end?
For people taking Xeloda at some point, when did your doctor make the call that it was no longer working? And if it was deemed not to work, what did you get put on next? On Xeloda for 9 months with amazing results after been sent home to die. Xeloda was a last ditch effort and remarkably it reversed liver mets and got the…
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Today's election
I have just voted. My local member was at the poling booth. I told her that I would vote for her if she could guarantee that if her party was elected they would have more metastatic breast care nurses in the first month as government. She replied that she had done something about prostate cancer. She had also had some sort…
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Bloating and Iberogast??
Hi Wondering if anyone has tried Iberogast for bloating and if it can be taken with Tamoxifen and Prednisone , my chemist doesn't know and neither does my GP ?? I feel like a balloon and not really nausea but that kind of feeling ??
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Back to work
hi all, after 3 months off work, diagnosed with metastatic breast cancer, first cycle on Kisqali done, bloods came back as good, neutrophils were 1 so on the boarder so seeing my oncologist in 3 weeks to see how were going, but was give all clear to return to work yesterday, today was my first shift in, wow was I tired…
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Second Brain Tumour in 5 months
Hi everyone, I posted about secondary breast cancer which spread to the brain 5yrs after a mastectomy, hysterectomy, chemo & radiation. I had an MRI on Monday & have been told that this second tumour has grown in the last 8 weeks, I'm seeing the Radiologist tomorrow & the Surgeon on Tuesday. Apparently chemo is out due to…
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New Study for Stage 4
I was really heartened to read about this study in the metastatic area of breast cancer. "Stage Four Needs More" is a phrase I've heard a lot and I know several members here have voiced concerns about the number of studies being done. Hope it's of interest. K xox…