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Venetoclax Clinical Trials
Hello everyone, I heard about this research on Friday last week and have posted some information below. It sounds like a very interesting clinical trial, in the very early stages and aimed at assessing safety. We will keep our members updated about any other developments regarding this research. If you would like more…
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Fasting for improved health
Hi everyone, im new here and have a fairly recent stage 4 bc diagnosis. I’ve heard 72-hour water only fasts can be efficient to kill tumor cells and help protect your healthy cells from chemo. Does anyone here have experience with this? I’m also open to hearing the view from a BCNA staffer or nurse. My bc nurse didn’t…
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Summary from BCNA metastatic breast cancer information forum Saturday 13 October 2018
Hello eveyone, Find attached the summary of the metastatic breast cancer information forum held on Saturday 13 October 2018. Regards Giovanna
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Article from USA re patient advocacy & metastatic bc
Thought this article was topical given some of the issues expressed on recent threads. Patient centred care and engagement with consumers to inform practice, research and priorities is the way ahead to create better outcomes for all. Best wishes to everyone for festive season. 🎄🌈…
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Information access on the Metastatic breast cancer information forum for those that can't attend.
Please can we get a video done and put up on the website on the sessions at the Metastatic breast cancer information forum that is happening in Melbourne on Saturday. I can't get there but I really want the info on the emerging strategies for metastatic TNBC. Surely in this day and age the technology is available and it's…
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Radiation on hip bone.
Hi, have metastatic breast cancer , left breast, left lymph and two lesions in hip bone, just finished six months chemo, 4 AC/T and 12 Taxol. no change , so semi good news. Have a lot of pain in my hip even if keeping very active , onc. suggested radiation for pain , now he is saying it can kill or slow down tumors in hip…
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Two steps forward, one step back – news on access to CDKs in second line treatment
Hello everyone, BCNA has an update on access to CDKs as second line treatment. Pfizer have this week advised BCNA about a new capped access program for the CDK inhibitor palbociclib (lbrance) which will be available from October 1, 2018. This means you still have to pay for around 8 months of treatment (at a cost of around…
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Plan C Conference 11 August 2018 Summary
Hello everyone, Its been a long time coming and I do sincerely apologise for the delay in posting this summary. Please find attached the summary from the Plan C Conference held on Saturday 11 August 2018 at the Glasshouse in Melbourne. If you have any questions or concerns, please dont hesitate to call our helpline on 1800…
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Feels like a brand new diagnosis 😫
Hello, Although I have been aware of these groups I have been too afraid to post. Posting meant I truly had cancer. Everything happened so quickly it still feels like a dream. After finding a small, red, angry lump on my left breast, I plucked up the courage to visit my GP. He straight away organised a mammogram. On…
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Continue the Plan C discussion in the metastatic group
Hi all, A big thank you to @MoiraC who ran the discussion session at the end of the Plan C. It was very well attended and started some importance conversations regarding access to treatment, talking with family/friends about MBC and the loneliness that can be experienced. We would like to continue the discussion in the…
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Am I expecting too much?
Firstly a bit of background Lumpectomy from right breast March ‘18 came back positive All 40 nodes from right armpit removed April ‘18 came back positive. Bone scan found two ‘spots’ on T11 vertebra and two more on my skull. Had radiation for five weeks focussed on right breast. On Letrozole and Kisqali Saw Radiology…