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I climbed Mt Kosciuszko
Thanks to the OTIS Foundation, I have been staying in Thredbo with my beautiful family for a much needed break together. I have been in so much discomfort in all of my joints, including hips and especially knees and lower back. I was diagnosed 9 mths ago & have stage 4 bc, it has spread across my entire liver. I thought…
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Strategies for those rough days
Hi everyone -Many of you have traveled this path longer than me -I am 10 mths in with no surgery but liver and bone mets and had several chemo rounds and now on Xeloda and coping better side effect wise apart from neuropathy and hot flushes made worse since I now take Exemestane. I am having a ratty couple of days -losing…
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Im new here
Hi everybody I was diagnosed with metastatic breast cancer in April 2016. I am on three weekly Herceptin and Perjeta plus Letrozole. I have tumours in both breasts, in lymph and lungs Its good to be here. My main problem is fear.
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New to sharing
Hi all, first timer here I was first diagnosed May 2013, 6 rounds of chemo, 30 radiation treatments, then Tamoxifen til 31st Oct 2017 when my world fell apart, bone , lung, and a few other places mets, nail inserted on 24th Nov, lucky to get a place on the ribociclib compassionate access program, combined with letrizole…
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Research
Today I have been in touch with a friend who is the director of a research institute. I asked him about funding for metastatic breast cancer: if there was 30% of research devoted to metastatic breast cancer. He was non commital. He did however tell me that 2 oncologists associated with his institute were doing research…
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Treatment query
Hi folks, I'm very new to the scene. My elderly Mother has recently been diagnosed with HER2+ breast cancer, and after a bad introduction to Chemo, has now moved onto the more specific treatment with Herceptin/ Perjeta/ Paclitaxel. She has just had her second dose and I couldn't seem to get a sense of how vulnerable she is…
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Migraine
I am currently on tamoxifen after recently being diagnosed with Mets. I am 49 and this was my first diagnosis. As I am not post menopause my Oncologist has put me on this medication and a planned surgery to remove ovaries in next month. I have developed a horrible migraine slowly over the last 2 days which has worsened…
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Travel insurances
I have been diagnosed with metastatic breast cancer in the bone. Lesions in hips & neck of femur. Other lesions in the thorax but not necessarily breast cancer. My Oncologist has advised that it’s ok for me to travel nationally and internationally. Can anyone advise which Travel Inurance company has the most understanding…
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New to the group
i live in a country town where they have no groups for Metastatic breast cancer it is more first women that have been early diagnosed. So when i was told that group was on line i was really pleased reading so many out there are the same and your not alone. Was diagnosed in 2009 with stage 3 and 19 lymph nodes taken out…
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THANK YOU, BREAST CANCER NETWORK AUSTRALIA NETWORK
T My name is Karen Cowley and I have been living with Advanced Breast Cancer for 12 years. I am also a very proud BCNA Consumer Representative. On Thursday 5th April, 2018 I was privileged to be invited to a very auspicious occasion at Victorian Government House hosted by The Honourable Linda Dessau AC to mark the 20th…