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Progression Update - Good News!
Hi Everyone, just thought I'd share some good news, having seen some good news stories myself, they did make me feel better, so I just want to pay it forward :) I was diagnosed with de novo Stage 4 with bone/spine mets last Oct 2018. I underwent every scan and test possible and results were coming back…
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Xeloda working or not? The end?
For people taking Xeloda at some point, when did your doctor make the call that it was no longer working? And if it was deemed not to work, what did you get put on next? On Xeloda for 9 months with amazing results after been sent home to die. Xeloda was a last ditch effort and remarkably it reversed liver mets and got the…
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Today's election
I have just voted. My local member was at the poling booth. I told her that I would vote for her if she could guarantee that if her party was elected they would have more metastatic breast care nurses in the first month as government. She replied that she had done something about prostate cancer. She had also had some sort…
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Bloating and Iberogast??
Hi Wondering if anyone has tried Iberogast for bloating and if it can be taken with Tamoxifen and Prednisone , my chemist doesn't know and neither does my GP ?? I feel like a balloon and not really nausea but that kind of feeling ??
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Back to work
hi all, after 3 months off work, diagnosed with metastatic breast cancer, first cycle on Kisqali done, bloods came back as good, neutrophils were 1 so on the boarder so seeing my oncologist in 3 weeks to see how were going, but was give all clear to return to work yesterday, today was my first shift in, wow was I tired…
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Second Brain Tumour in 5 months
Hi everyone, I posted about secondary breast cancer which spread to the brain 5yrs after a mastectomy, hysterectomy, chemo & radiation. I had an MRI on Monday & have been told that this second tumour has grown in the last 8 weeks, I'm seeing the Radiologist tomorrow & the Surgeon on Tuesday. Apparently chemo is out due to…
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New Study for Stage 4
I was really heartened to read about this study in the metastatic area of breast cancer. "Stage Four Needs More" is a phrase I've heard a lot and I know several members here have voiced concerns about the number of studies being done. Hope it's of interest. K xox…
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Instagram account
Hello all. So im thinking of starting an instagram account just to document some of the ups and downs i have with metastatic , being young, dysphagia, and everything in between but for the last few weeks i am struggling to come up with a name. I thought about living with metastatic breast cancer but i think its a bit long.…
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Mets to liver
Hi, first diagnosed with BC in 2012 (stage 3). Was on tamoxifen for just over 5 years until last Jan and then I started to feel unwell, weight loss and I knew something wasn’t right... after tests it was confirmed that it returned and this time it had spread to my liver. It’s been 12 months and still working full time -…
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Anyone on the AZTEC trial??
I have metastatic TNBC and have recently commenced treatment on the AZTEC trial. Is there anyone else here on that trial???
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Avastin
Is anyone out there with metastatic TNBC with skin Mets on chest wall using Avastin? could you tell me about your experience as this is about my last resort but onc doesn’t really give it a big wrap but I do understand it can only give me some extra time if it was to do something but that’s something I’m looking for whilst…
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Medication not available
Has anyone else been told that their medication hasn't been ordered and subsequently isn't available? That is what has happened to me this week. I was supposed to pick up my medication on Wednesday, but I still don't have it. I am thinking that perhaps I am cured and don't need any more medication. 🙄
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Time to own up to mets
Hi pink sisters I feel like it’s time to own up to my stage 4 liver Mets that I was diagnosed with 12 months ago I can’t say I’ve been paddling in that Egyptian river.... de-Nile.... denial (get it? :smile: ) but I have been avoiding owning up to it. I guess I’ve been wishing it’s all just a bad dream... alas! Here it is:…