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Happy metastatic breast cancer awareness day
The forum in Queensland today was very good. Not much new information, but well presented.
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Work
Hi everyone I'm sure this has properly been asked before but not sure so here goes. I'm 60, have metastatic breast cancer in 3 spots, 2 in spin and 1 in pelvis it's stable on the medications, the medications I take are kisqali, letrozole, blood pressure meds, and cholesterol meds, I also have a kidney stent in. Seriously…
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Cancer Australia and Metastatic BC
Cancer Australia has just updated their statement on MBC. This is good news--they have some serious clout in the research world. https://www.youtube.com/watch?v=Y8QU_Z_SaLY https://canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/metastatic-breast-cancer-summary
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Kisqali - an opportunity to influence the drug company
I have the opportunity to talk to the manufacturers of the newly listed drug, Kisqali. I would love it if it if you could think about anything you’d like the company to provide you when you take Kisqali. For example - I’d like smaller tablets and I think a phone helpline to answer questions about the drug would be good.…
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Joining metastatic online group
I’ve tried unsuccessfully to join this group. I even tried sending an email requesting assistance without success. I was diagnosed with metastatic Breast cancer weeks ago.
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Metastatic breast cancer podcast?
@Riki_BCNA. Quite a while ago, you were gathering ideas for podcasts relevant to those of us with metastatic breast cancer. Has anything come of this?
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6 months on Ribociclib
Well it’s been 6 months and the Ribociclib combo seems to be working. I started this Mets journey in Dec 2018 with tumour markers at 114. My latest blood tests were in early June with tumour markers at 42. It’s a nervous week this week with scans, blood tests and Onc visit, so fingers crossed that my results stay positive…
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Newbie
I have just been diagnosed with metastatic breast cancer in my spine, it seems to be just in one spot L1 however I'm still waiting on PET scan results. It all feels a bit weird not sure how too feel about it all. I'm on regular pain relief but the pain at the moment is a bit dodgy so any ideas on managing without using too…
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Liver and Brain mets
In Sept 2018 I was diagonse with liver mets from breast cancer I had in Sep 2015. Six months of chemo saw good results until Wednesday when a routine CT scan revealed liver cancer returning and also mets in the brain. I was devastated as I had no other symptoms. I start full brain radiation Tuesday week, for 5 days and…