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How do you know if its progressing?
Hi Everyone, just a bit of a dumb question... I'm Stage 4 De Novo with bone/spine mets. I've been on Letrozole/Ribociclib/Denosumab for about 7 months now. I'm having restaging scans every 3 months... The first set of restaging scans showed "significant improvement" in my breast tumour and no further commentary re lymph…
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Recent MBC - sternum
I was diagnosed with MBC on 5 November, (first diagnosed with BC in August 2016). I have been told that it's detained in the sternum and no other areas of the body and it is thought that it was there when the breast tumour was removed in Sept 16. The suggestion is that I stay on Tamoxifen or as I am premenopausal that I…
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how to accept the diagnosis?
I was diagnosed with metastatic breast cancer in May. I had radiation treatment on my spine and wasstarted on Kisquali and Letrozole (was previously on Arimidex). My original diagnosis was in 2017, when I had a mastectomy, chemo and radiation and went on Arimidex. The Kisquali is now not working and I am being assessed for…
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thank you for my birthday wishes
Hi ladies, to all of you who sent me birthday wishes for October 25th,I say a very big thank you, you know who you are!. I havent been very active on the bcna online forum, in fact I havent been very active at all!Life has been very quiet, chemo three weeks out of 4, and as its a 4 hour round trip and then factor in the…
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Game Changers Living with Advanced Breast Cancer
Hi everyone, here is a story I wrote a couple of years ago. m I feel it is still very relevant and seeing its Advanced Breast Cancer day on Sunday I felt it appropriate to post it again. I am sure many of you can relate to parts if not all of the content. I am grateful that I am able to post this again because I still have…
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Cancer is a Part of Me
I have been living with cancer now for 13 years. It would be stupid of me to say that cancer has not changed me over the years. My illness is terminal but treatable and I still have a very good quality of life. I now accept cancer as part of my being. It has certainly affected me physically and mentally. During my journey…
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Happy metastatic breast cancer awareness day
The forum in Queensland today was very good. Not much new information, but well presented.
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Work
Hi everyone I'm sure this has properly been asked before but not sure so here goes. I'm 60, have metastatic breast cancer in 3 spots, 2 in spin and 1 in pelvis it's stable on the medications, the medications I take are kisqali, letrozole, blood pressure meds, and cholesterol meds, I also have a kidney stent in. Seriously…
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Cancer Australia and Metastatic BC
Cancer Australia has just updated their statement on MBC. This is good news--they have some serious clout in the research world. https://www.youtube.com/watch?v=Y8QU_Z_SaLY https://canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/metastatic-breast-cancer-summary
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Kisqali - an opportunity to influence the drug company
I have the opportunity to talk to the manufacturers of the newly listed drug, Kisqali. I would love it if it if you could think about anything you’d like the company to provide you when you take Kisqali. For example - I’d like smaller tablets and I think a phone helpline to answer questions about the drug would be good.…
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Joining metastatic online group
I’ve tried unsuccessfully to join this group. I even tried sending an email requesting assistance without success. I was diagnosed with metastatic Breast cancer weeks ago.