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New to sharing
Hi all, first timer here I was first diagnosed May 2013, 6 rounds of chemo, 30 radiation treatments, then Tamoxifen til 31st Oct 2017 when my world fell apart, bone , lung, and a few other places mets, nail inserted on 24th Nov, lucky to get a place on the ribociclib compassionate access program, combined with letrizole and denusomab, mixed results so far. I am still trying to get my head around this. I am so tired most days and pain is my new normal. Anyhow, just wanted to say hi, I usually keep pretty much to myself but it's good to know I'm not alone.
15 Replies
- @Kattykit - despite all your pain and suffering you look great in that photo btw - a fighter.
- Hi there @Kattykit , welcome and big hugs to you. Xxxxx
- What a lovely escape to have
- Dear @Kattykit-like the others welcome! Sounds like you have much we can all gain from your journey. Best wishes
- Dear @Kattykit, Hi and hugs and best wishes to you from jennyss in Western NSW
- Amazing view. Wish I was there right now.
- Wow that is beautiful what an amazing escape!
- Thanks everyone for your kind welcome, my hopes and hurdles kit is on the way, I guess if I have to have this horrible disease at least I have this great escape right at the end of the street.
- @Kattykit
Welcome to the forum! There's wonderful resources within the BCNA website that you may find help, as well as groups to join within the forum and this open forum that we are currently nattering on! Hopefully you'll find comfort here knowing that we're all in the thick of it!, we get it!
As you start to explore one that I hope you maybe able to take advantage of is the Otis Foundation - if you use the search bar at the top of this page and put in the words Otis Foundation you will find stories that some of us have put up about our wonderful free break this Foundation offers
https://www.bcna.org.au/services-and-support-groups/services/the-otis-foundation/
Take care - Hello @Kattykit
Thank you for your post and for sharing your experience.
As mentioned by our members, you will find this forum a supportive and safe place to connect with others.
Dont hesitate to call our helpline on 1800 500 258 if you would like to speak with one of the nurses for information or support. Take care
