Why not join the Living with metastatic private group? Access group via the link here.
New to sharing
Kattykit
Member Posts: 252 ✭
Hi all, first timer here I was first diagnosed May 2013, 6 rounds of chemo, 30 radiation treatments, then Tamoxifen til 31st Oct 2017 when my world fell apart, bone , lung, and a few other places mets, nail inserted on 24th Nov, lucky to get a place on the ribociclib compassionate access program, combined with letrizole and denusomab, mixed results so far. I am still trying to get my head around this. I am so tired most days and pain is my new normal. Anyhow, just wanted to say hi, I usually keep pretty much to myself but it's good to know I'm not alone.
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Hi @KattyKit. I am sorry you have found yourself here, but having said that, it's a wonderfully supportive, warm and helpful place to be.
You are having a mo fo of a tough time but you are definitely not alone. There are lots of women here who are experiencing the same as you, and even thriving from what I gather. Keep sharing, and hang in there. Big hugs. K xox1 -
Big hugs and welcome @Kattykit xoxoxo1
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Hi Kattykit,
Do you have a hopes and hurdles kit ? https://www.bcna.org.au/resource/kits/hope-hurdles/
feel happy to vent with us ask for support and share and read the posts .... Yes unfortunately we are not alone..... but this forum is a great supportive environment for anyone going through BC1 -
Hello @Kattykit
Thank you for your post and for sharing your experience.
As mentioned by our members, you will find this forum a supportive and safe place to connect with others.
Dont hesitate to call our helpline on 1800 500 258 if you would like to speak with one of the nurses for information or support. Take care1 -
@Kattykit
Welcome to the forum! There's wonderful resources within the BCNA website that you may find help, as well as groups to join within the forum and this open forum that we are currently nattering on! Hopefully you'll find comfort here knowing that we're all in the thick of it!, we get it!
As you start to explore one that I hope you maybe able to take advantage of is the Otis Foundation - if you use the search bar at the top of this page and put in the words Otis Foundation you will find stories that some of us have put up about our wonderful free break this Foundation offers
https://www.bcna.org.au/services-and-support-groups/services/the-otis-foundation/
Take care
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Thanks everyone for your kind welcome, my hopes and hurdles kit is on the way, I guess if I have to have this horrible disease at least I have this great escape right at the end of the street.
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Wow that is beautiful what an amazing escape!1
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Amazing view. Wish I was there right now.1
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Dear @Kattykit-like the others welcome! Sounds like you have much we can all gain from your journey. Best wishes1
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What a lovely escape to have1
