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Work/grief/sadness
Hi all, apologies if this has already been discussed but I couldn’t find anything elsewhere. I’m 46, had a right mastectomy (Diep flap) and left reduction in early December for stage 2 invasive lobular carcinoma. My recovery went really well, no pain whatsoever. I still have another procedure to alter the flap and then…
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Constipation
most of the threads I can find about constipation are quite old so thought I would start a new one . Having just spent a very uncomfortable Friday / night at home, followed by fun Saturday in emergency, and a Saturday night in the short stay unit with the worst constipation ever am looking for some tips advice on how…
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Support with coping
I've just been diagnosed with invasive breast cancer NST, I haven't been told what stage or what kind yet. I'm 27 and this has come as a major shock to my family and I. I'm struggling with how to cope, major low feelings and significant worries about what the future brings, especially given my age. I'm hoping to be…
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Great Article in the Guardian Today
https://www.theguardian.com/commentisfree/2024/feb/14/im-an-oncologist-this-is-what-king-charles-and-my-cancer-patients-have-in-common I found this very interesting and very timely. Some of her comments really hit home.
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Tamoxifen after Hysterectomy
Hi All, haven’t been on for a while but haven’t forgotten what a great source of support and advice you all are. I’m 3 years and 3 months out of treatment. - LS mastectomy and tamoxifen. I am due to have mitral valve replacement within the next few months but I’m unfortunately having to undergo a hysterectomy beforehand…
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New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the…
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New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the…
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Reconstruction not what I was told to expect.
I’m near the end after a double mastectomy 2 and a half years ago with failed reconstruction. 10 operations later and I have died flap reconstruction 4 or 5 rounds of fat grafting (I’ve lost count), two lots of silicon implants and I don’t look normal at all. My upper chest is lumpy and concave and looks a bit like I’ve…
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Good-bye boob photos - your ideas?
I've spent a month wrestling with the information about DCIS, and my decisions about what to do next. Starting with a flyer for the BCNA, given to me by BreastScreen NSW, that seemed to indicate that DCIS is not straight-up, bald-faced cancer. I spent the first 2 weeks after diagnosis trying to get my head around concepts…
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New mum struggles just got more challenging
Hi everyone! It’s lovely to meet you all despite this being the location. I was officially diagnosed on Tuesday but I’ve suspected it was breast cancer for over a week since the mood at my biopsy seemed urgent (and extremely sympathetic). I’m 34 years old and first time mum to an awesome little 11 month old boy. I’ve been…
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Newly diagnosed - DCIS
Hi all, newly diagnosed this week. Feels like the longest week ever and have been taking the time to look through various posts and resources. Thanks for sharing your stories. Following a breast screen 'callback' and biopsy on Monday I was given the diagnosis of DCIS in my left breast on Monday 17 July. I kind of feel…
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So its back, breast cancer 2.0 - thanks so much
so after a fabulous dry July Campine raising funds, I got my results from the double biopsy today (this morning) - from an earlier ultra sound after they the new medical team picked up some extra bumps they felt from a physical exam earlier on, post lumpectomy in Jan where I was told all gone, clear margins , nothing in…
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Feeling alone and scared
I’m 36 with two young kids, newly diagnosed with lobular carcinoma. Have had a single mastectomy with axillary clearance. Pathology report shows 120mm (12cm) tumour (clear margins) and 23 lymph nodes removed, 10 with cancer. Starting 20 weeks of chemo in a couple of weeks, then radio, then hormone therapy (10…
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Just feel like running away
Does anyone else just feel like running away. It's almost 2 months since I finished radiation, and getting close to 12 months since my diagnosis. I see my Breast Surgeon next week. I am grateful, and I have come through surgery, chemo etc, ok compared to others, so I think I should just be "getting on with it", I've…