BCNA's Helpline refocus - some changes being made to the Helpline
Comments
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Oooh @Zoffiel...did you get put into the naughty corner ? I got castigated recently too and a comment I made was censored for the exact reasons you stated above. Apparently I breached the code of quote "anything harmful, threatening, abusive, hateful, offensive, discriminatory, defamatory or obscene". There was nary an Anglo Saxon expletive in my comment, it was my previously used analogy of a remaining breast being perceived as being as much a threat as a next door neighbour who was a "you know what" offender. Evidently my highly.... all of the above, comment had to be made soft and fluffy. I told them to remove the whole thing. I seriously wonder if this forum is going to continue, or if it's already on the cards to be scrapped. Perhaps another cost cutting measure... hmmm...save a few bucks on technical support and such...shut up the old biddies who won't just get back to their knitting...?5
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Very eloquently re-said, @zoffiel
Well said @Cath62 and @Julez1958 .... BRILLIANT IDEA - hopefully a Zoom meeting can be arranged (even tho not everyone would be able to attend Zoom as not being tech savvy or having the correct equipment.) Those people can still have one on one chats with @Kirsten_BCNA via phone, email or even PM.
We would need a 2hr slot, I reckon for everyone to 'have their say' as individually, we would just be repeating ourselves ..... It would also be much more time efficient for Kirsten, than having individual conversations with everyone over a number of days.
I think that Zoom is really the only way of us all 'getting together' to discuss the issue as a group - as really should have happened prior to the announcement, given the MOMENTOUS effect that this decision was going to have on us, (and obviously has!) .... as the recipients of the now missing services.
The meeting can also be recorded and made available to other members upon request -- or better still, made available to everyone with an online link, so that they can see and hear the arguments for & against ..... but mainly WHY!!!
I believe Zoom will be the best way to 'see' the depths of the emotions and the upset that this decision has caused in our members and to have our chance to say what we believe was a badly thought out decision.
We can also 'edit our name' on Zoom - so that it is our 'forum name' to protect our real names, if so desired - and helps people put 'forum names' to our faces.
I am sure Kirsten & the others had NO IDEA the angst that this decision would have on our members. It was purely a $ thing.
Even if ONE of the services was reinstated in a timely manner (I am guessing the Breast Cancer Nurse would be the logical one, if we were able to get someone of the calibre of Giovanna or Rosie back ....) as they would be well qualified to cover the Mets side of things too until the Mets Counsellor can be reinstated as well. (I am not wanting to downplay the urgent need of a Mets Counselling service either - just that in the short term, we may need to reach a compromise to be able to move forward as a group.)
Take care everyone xx3 -
As a former member said to me yesterday "you would not allow the auto receptionist to service your car and you would not allow a mechanic to operate on you so why the heck would BCNA think it acceptable for administrators to deal with helpline calls and then simply pass them off". I agreed with her !
Not tech savvy so a zoom call is out for many I know, including me. As someone said, they are trying to put this under the radar and will not give substantive answers to members. Looking at the Board ... admin focus .....3 -
Yep @AllyJay Old women who use coarse language and won't quietly toe the party line must be silenced. Or separated so they don't form a naughty knitter gang and get in the way of progress.
Gawd (probably get a smack for that too) anyone who was around a few years would remember when some of the more robust contributors were regulars. It was just like being out in real society where some people swore or had 'inappropriate' opinions. Imagine that? The mods of the time were a little less inclined to intervene unless someone was getting attacked. The old 'scroll on' mantra was oft repeated.
Anyway, those who were involved with the Great Beacon Battle might need to put their combat knickerbockers back on for a while. New warriors welcome. No thongs or sexy undies, please, we must all pretend to be ladies.
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I suggest some lobbying be done by BCNA to once again gain funding to employ a breast care nurse!3
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ummmm - I think that is what this whole post is about @Keeping_positive1 - and has been requested on numerous members' replies, including 2-3 times by me!
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Looking at the Annual Reviews for the last couple of years, BCNA has gone from being on pretty wobbly financial ground to having a modest surplus. That is commendable. Being at the mercy of non-recurrent funding would be a familiar nightmare for fellow bean counters. Some of the expenditure prior to 2018 was a bit alarming.
Staff and program budgets have been given the sort of pruning I gave my roses this year. Chainsaws at the ready. OK, that has cut well over a million dollars over the last two years 20188-2020 (from the limited info on the website)
I'd be really happy for someone else to check my stats. I don't want to sow disinformation and this stuff is complicated.
I just want to know why the Breast Care Nurses needed to go. Particularly since there is a HR officer job on offer for over $70K. More that would be paid at a regional council for a similar role. I know this
My point, and I think the collective 'ours' is what are the critical functions for those who end up using BCNA?6 -
"About Breast Cancer Network Australia
Breast Cancer Network Australia exists to ensure that all Australians affected by breast cancer
receive the very best care, treatment and support.
As the leading breast cancer organisation, we advocate for, connect, support and inform our core
network of those diagnosed, those concerned for their risk and those supporting someone they
care for.".
The word advocate will now need to be replaced with .... we REDIRECT.4 -
Good one @Zoffiel - how about all of us with the relevant qualifications and experience inundate BCNA with applications for those roles. Being regional should not be a deterrent given the amount of people now working quite successfully from home. We all have the most relevant experience - BC itself ! Let's go, people .....3
