User Profile

Cath62

Member

1603 Posts1255 LikesLikes received

User Widgets

Contributions

Re: Grade 3 Oncotype Test Chemo decisions
Hi good to hear of a possible grade reduction. I was stage 1A, grade 3, lumpectomy, chemo, radium in 2020. Then hormone suppression. Despite it all in 2023 I was diagnosed with metastatic breast cancer (MBC). I threw everything at it and i was fit and healthy. Have no doubts with your treatment. Throw everything at it now. While i an not happy having MBC, I am glad i threw everything at it initially. I would hate to have been diagnosed with MBC if i didnt follow my oncologist advice. My question to you is, if it comes back with you be ok with your treatmenr decisions now? I wish you the very best.
19 days ago Place Chemotherapy and radiotherapy
55Views
1like
0Comments
Re: Tamoxifen and ulcers
Hi Summer2025 give tge kenolog a few days. Mine got worse before it got better. I had to keep applying it and drink plenty of water. I hope you get some relief soon
2 months ago Place Hormone blocking therapy
175Views
0likes
0Comments
Re: Tamoxifen and ulcers
Hi Summer2025, Not from tamoxifin but other treatment, i have had ulcers in the corner of my lips. I used ulcer oinment such as kenolog and it helped. Maybe see your gp about it as it can ge a sign of low immunity. Best wishes
2 months ago Place Hormone blocking therapy
193Views
1like
1Comment
Re: Christmas emotions
Hi mel51, i understand what you are saying. It is a mix of emotions at Christmas and new year. I was diagnosee with mbc nearly 3 years ago. Every birthday, christmas etc i wonder if i will have another one. The only waybi cope is just to be present. Living mindfully helps. I try not to think ahead or look back and i keep living and enjoying. Of course i have my down days, we all do. How could we not. I promises myself not to let cancer take my joy and mostly it doesnt. I read a quote and it was dont die before you die and thats how i live my life. Best wishes for 2026
3 months ago Place Living with metastatic breast cancer
79Views
5likes
0Comments
Re: Some Gentle Goals for the New Year
Thanks arpie. Hope 2026 is kind to us all.
3 months ago Place General discussions
47Views
2likes
0Comments
Re: 💞2️⃣0️⃣2️⃣6️⃣💞
Best wishes cranky_granny
3 months ago Place General discussions
25Views
1like
0Comments
Re: Learnt some new. Re HPV
Oh dear, what a shock. Sending best wishes cranky_granny
3 months ago Place General
119Views
0likes
0Comments
Re: November 27th is almost here..... 🥳🥳
I think mets patients are treated like second class citizens. I had to fight for a mets nurse. My treating hospital have breast care nurses but they only support stage 1 to 3. Wtf. That's actually discrimination. I have been advocating for metastatic nurses at this hospiral. I met with their executive and finally to cut a long story short, they are currently having their breast care nurses do the mcgarth training. This should not happen. I am sick. I needed help. I found my own mets nurses and i am thankful for that but i dont want other mets patients to go through this. When a person with mbc finds out about progression it is so traumatic. It's like a complete restructure to ones life, everything changes for you, the treatment, the side effects, tge treatment cycle etc. Plans get changed and everyones life in the home is changed too. It's enormous change for everyone. Support for all with metastatic disease is critical. It is hard enough and very lonely but support helps.
4 months ago Place Living with metastatic breast cancer
31Views
2likes
2Comments
Re: Best Supplements for Hair Growth and Thickness | Recommendations by Expert
Nioxin is another product. There is shampoo, conditioner and a leave in treatment. I think it has helped me. It isnt cheap. I got mine at chemist warehouse.
5 months ago Place General
252Views
0likes
0Comments
Re: How to cope
Hi akaye76, I found the first 6 months the hardest. I saw a psycholigist and joined a support group for advanced cancer like me. Many have breast cancer mets. These women gave me hope. Many living beyond 7 years and for the most part, well. I dont think any of this is easy. We all have our moments. I cope best if I stay present, just focus on the very moment. Looking back just gets you depressed and worrying about the future and what ifs only causes anxiety. This is a safe place to share and we all get it.
5 months ago Place Living with metastatic breast cancer
218Views
8likes
1Comment

Groups

Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.
Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
Carers corner
Whether you're caring for a partner, parent, child, or family member, this group offers a safe and understanding place to connect with others in similar roles. Share your experiences, talk through the personal challenges of being a carer, and find support from a community that truly understands the emotional and practical realities of caregiving for a loved one with breast cancer.