Liver tumours

Joarden

I wasn't very gracious with the doctor of Breast care nurse..:-)) its causing me a lot of mental strain, especially without any medical support.. Its disappointing when they rushed surgery, brought forward biopsy( from may 4 th) because specialist was concerned, then when it didn't go ahead, it was " see if that appointment is still available "..very chaotic. Hope your journey is going well..:-))xxx

ddon

You need to feel as though your life is precious to them, not just another person in their waiting room. When appointments are made and plans are laid out it reassures you that your team has your best interests at heart. Mental strain would be an understatement I imagine. I am going to scream and yell on your behalf. 

Joarden

Thank you:-)) it was scary, on my own because of current restrictions, and rushed to have  PET(?) Scan, so they " don't waste the vial"!! Specialist who sent me for biopsy said some doctors don't like doing bioplsy, and she thought another doctor would be on duty!! She didn't have to authorize it...Still unclear what exactly is wrong with me..:-(( The words of support here, while I whinge are a life saver..Hope your journey is going well..:-))xxx

Tinks

I’m not surprised you felt let down and at sea with what is going on. I’m glad you could be upfront about your feelings at least somewhat. Your care right now is not ok on a number of levels but most of all for you. I’m joining @ddon in loud frustration.

Keep going won’t you and keep asking for what you should be receiving. We are all right behind you. 

Big hugs

Tinks xx

Joarden

Thank you, the kindness on this site is a lifesaver!! Feel like I'm overreacting at times, and unfortunately I don't have a " good girl" filter!! Once I started speaking up, it  was like watching a train wreck.!! Felt better after venting though.:-))/thank you again, take care.xxx

Scaredycat

you are not over reacting. I hope you get the right tests, answers & treatment ASAP. It’s the waiting & lack of answers/action that does our heads in. 

Vent away ......

Joarden

Thank you, hope your journey is going well..LOVE your username!! :-))

Scaredycat

Thanks Joarden re my username. How are you going today?

I’ve completed treatment last October & am recovering slowly. My OH was diagnosed with terminal cancer late last year ...... we feel like cancer, hospital’s & specialists are our life. They have stabilised/slowed down his cancer with chemo but I wish they’d find a cure ASAP. His primary cancer is his bile ducts (cholangia carcoma) & his liver is secondary. Surgery is out of the question.

It’s been a weird time re both of us having cancer & now we are all dealing with & avoiding COVID 19. It’s very strange times.

Joarden

Hi..such a mixture of emotions for you.:-(( the fact it is stabilized, is good, you never know what tomorrow brings, people have fought against it, hope your OH does too..I'm ok, just woke with a jolt, think I mucked up meds yesterday!! Will have to check when I started each one, and see if the right amount is missing!! Oops.:-)) 

Afraser

Feeling like an utter geriatric, I resorted to a weekly pill box years ago. Apart from actual
medication, I take a number of (recommended by my doctors) supplements. It does make the taking much easier and clearer. Takes me a few minutes each week to reload, then I just need to make sure I don’t forget which day it is (much more problematic at the moment!!). 

Joarden

Funny you should say that!! They offered me a Webster pack!! I suppose it would help, just felt it was for old people!..:-)) 

Afraser

Haven’t gone that far! I can set the box up myself. You can buy a marked box from most chemists or even a supermarket. Useful for taking away (if we ever get away again) too rather than boxes and containers. Best wishes. 

Joarden

I'm there already!! Woke up today , not sure if I took right pills at the right time!! 

Sister

I only have the Letrozole to worry about but I write the days of the week on the blister packs each time I start  one otherwise I would never be sure if I've taken it or not.

Beryl C.

I use a pill box marked for each day of the week but not a.m., noon., pm. Yes, dignity suffered at first and then I reminded myself that I was behaving very efficiently - no different to maintaining a work schedule and/or filing system. Learned not to sabotage my self image , in fact, quite impressed with my organisational skills given that all this is done while on a roller coaster ride!