Member: Tinks | BCNA Online Network

User Widgets

Contributions

Re: Understanding Ki67 index
dear Hannah, the ki 67 test is a measure of how rapidly the tumor cell is dividing. With a special stain, a pathologist counts cancer cells that are in the active process of dividing. Like you I had a grade 3 in pathological score which looks at different aspects such as whether the cancer cells appear to be getting into blood vessels or lymphatic vessels, but I also fortunately had a low ki67 score. However, in my own circumstance, this did not result in a reduction of any treatment at all / we are all different and every little bit of information helps our treatment team to put together our unique profile and then work out. what’s the best process of treatment for each of us. Lots of love Tinks.
1 year ago Place General
Views
1like
Comments
Re: Enhertu for people living with HER2-low metastatic breast cancer
Congratulations to all at BCNA for their advocacy in getting this subsidy. Best wishes to all women who will now benefit. There is still much to be done regarding access to cancer drugs, Itis a difficult road. Never give up! Love Tinks
2 years ago Place News and events
Views
0likes
Comments
Re: Newly Diagnosed - scared of unknown
I’m so glad you have found your way to our network. So soon you will be making many decisions. Try to be as prepared as possible with your questions, write them down and also ask your doctor to write down all technical terms that they may use. There is such a lot of jargon. Take somebody with you to your appointments it is amazing how much more can be remembered if there are two of you! Good luck with this challenging time. Xx
2 years ago Place General
Views
1like
Comments
Re: Radiotherapy burns
I had 25 sessions and at the end my skin broke down too. The radiotherapy nurses asked me to continue with the Sudo cream, I then wrapped the area in glad wrap before putting on as light clothes as possible. The wrap conforms to your skin and also keeps the area from rubbing on anything and prevents your treatment From getting on anything.xx
2 years ago Place Chemotherapy and radiotherapy
Views
2likes
Comments
Re: Letrozole
Letrozole is known to have this side effect. Low white cells mean you maybe vulnerable to infection, so Make sure you have a thermometer at home, and if you feel unwell or feverish take your temperature, and report to your GP if it is elevated. It hasn’t caused this problem for me, so far, but it certainly raised my cholesterol and I had to go on a statin to return it to normal. It also causes bone thinning. Hope is goes ok. Xx Tinks.
3 years ago Place Hormone blocking therapy
Views
0likes
Comments
Re: Late onset Radiotherapy issues
BOOP is now called organising pneumonia, and is known to be associated with radiation therapy, as well as some underlying disorders called connective tissue disorders. Sometimes no reason can be found for it. It can resolve on its own, or usually responds to steroids. This is a rare disease, have you considered a requesting, or have you had a specialist lung physician opinion? Also there is a fact sheet on this on the lung foundation website, which is quite informative, written by a specialist at the Austin hospital. I hope it settles down for you. Xx Tinks
3 years ago Place Chemotherapy and radiotherapy
Views
0likes
Comments
Re: Young Mum
I’m so sorry to hear your news. looking after yourself and the children will be challenging, and just doing simple things and taking each day as it comes, for example if you need rest it can be a great time for children’s activities around you or near you. Many people will want to help you, this is your time to accept and don’t feel guilty about it! Well it seems overwhelming at the moment, and as the next few weeks roll on things will move through your treatment and you will be able to see that there is a light just a little further away that is shining for you. Surely the surgery will come and go, and you WILL be able to be the mum you want to be. You have found an incredibly supportive network, and it’s just fine to write, ask questions and simply seek support from those of that have have been before you. Lots of love Tinks.
3 years ago Place General
Views
1like
Comments
Re: Reoccurrence- 3rd type
@Redlady try breastcancertrials.org they have a good section on their site about this. Love Tinks
4 years ago Place General discussions
Views
0likes
Comments
Re: Radiation - with or without tattoo
Hi @ARichies I had stickers by request 2 years ago they were just introducing them at the time, no probs, went fine and no tattoos. Breath holding is used to help unwanted radiation from hitting the heart and lungs and surrounding tissues as much as possible. I did not need it as I needed treatment on the Right side. Love Tinks
4 years ago Place General
Views
0likes
Comments
Re: My Nose will not stop running!
I took claratyne to help prevent the bone pain from the neulasta injection, which it did 100%. I think it also helps with the inevitable runny nose and constant sniffing that I think we are all saying we had! But for me it did not completely overcome this side-effect, even now and I am more than two months through radiotherapy, and it is no longer spring. Still it is cheap effective and anything that helps like that is worthwhile. Hopefully if you take it for a few days its effects might build up? Lots of love Tinks xx
6 years ago Place Side effects
Views
2likes
Comments

Groups

Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.
Flat Chat - no breast reconstruction
PRIVATE GROUP. This group is a safe space for those considering, actively choosing or not have had a choice to stay flat after a mastectomy. Whether personal decision or one shaped by circumstance, you're invited to connect and share your experience and images with others on a similar path. Information shared is based on personal experience and not intended as medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️Posts may include images of surgical outcomes, which some may find distressing. If you need support, please contact the BCNA Helpline—we’re here for you.
Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.

User Profile

Tinks

User Widgets

Let's talk: vaginas, menopause & me

Flat Chat - no breast reconstruction

Choosing breast reconstruction