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haven't heard from my breast cancer care nurse since before the lumpectomy 20th march. next week I see the surgeon again ( I think she said ) dont know why , the week after I see the oncologist , god its taking forever I wonder if its spread since then . the docs apprentice said they had a clear margin. something else too autistic daughter is somewhat silently worried, she researches things like the suture lines from the lumpectomy hurt saw the doc about it. she is also a fuss pot very huggy and always wanting to know where I am ( not like her at all) I worry sick what if0
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supposed to go to the RBH tomorrow for planning for radiation therapy to start on 20th I cancelled there is evidently a bus from Caboolture that goes to the RBH but I cant get to where it picks people up I cant walk the few blocks to get the local bus I cant afford taxis ( specially when im supposed to start therapy 5 days a week for five weeks.
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Hello @tisme sending you a private message0
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went to get a bone density scan today, it turns out if i had just cancer it would cost me an extra 100.00 but because I had rheumatoid arthritis it didnt cost me anything
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its rotten , cancer isnt enough ?? sheesh0
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I hear you, my chemo was cut short by 7 rounds due to Neuropathy in my hands and feet. They are being overly cautious because 6 months before my BC diagnose' I was told by my Neurologist that I have Parkinson disease and the MRI found mineral deposits on my brain, that make no sense.
So now I see a neurogenetsis so hopefully they can figure out what's going on.
IM 40 BLOODY 6 YEARS OLD!!!!!!!!!!0 -
dont you wish you could shut the brain off, the fear that the burning and tender skin might be bc is driving me crazy.only started like this since the radiation therapy , i told the surgeon last week . when is the crap gonna stop and i get to enjoy something ?/ things got so bad i talked to beyond blue and ended up being ambulanced into the ER was there for a few hours and they let me out , got a mental health taxi voucher to get home. but here i am as I was before.
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Hi lovely
Waiting is the worst part of what you will go through, well, that's easy to say now I am over my experience. I can look back now and remember the worrying was the worst part. All the advice above is fantastic, so for my part I will let you know that you have already been overwhelmed until now, with all the energy going into taking care of your daughter. Some would say this is time now to focus on yourself, and to reach out to the complete strangers who will come into your life and help you through. That is what I found here on BCNA and the community and information provided. I was not shy about asking and searching for help. All the assistance I got, whilst isolated myself, at the time, came from strangers. The more I searched for answers through the right sources, the more relief and able to cope I felt. All humans are different, so no one will do anything the same way.
I was able to focus on myself because I don't have children. There may be some one who lives near you who can relate to a child with Autism, and provide you with information about support networks. Or may-be, you can create a new support network via this experience yourself. (I work with a lady who is young with a child with Autism).
Fear is an ability for the subconscious mind to dwell on a subject for too long, toward the negative. It can cause insomnia, and dominate your time that at the end of the day, will add to the situation. I learnt about Mindfulness, and the off-loading process to others, how to shift my focus and allow my body to remain in a calm environment, which has taken years of practice.
I have the "Natural Worry Gene" and so have since my Surviving Cancer, for 6 years, have learnt to Meditate (well, trying to!), via U Tube and it has all helped.
One day at a time, is all you need to think of, as worry about the past and future, won't help.
Find stuff you like to do that is good for you, like doing a jigsaw, watch a movie, yoga stretches, painting, colour-in. Take deep breaths and count backwards, whatever works.
Good luck, and I hope you keep returning here, for great solutions.
Cheers from Bel6 -
just thinking, my rheumatologist took me off my arthritis meds before radiation therapy, so what will happen now ,?? such meds lower the immune system , last thing i need is for that to happen while battling cancer
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anyone been on arthritis meds while fighting breast cancer ?? it seems the meds lower the immune system , which i dont want while fighting cancer but if i dont the Rheumatoid arthritis can play havoc
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Just remember at this stage your surgery is considered curative. The radiotherapy and hormone treatment is to ensure no stray cells survive. The arthritis meds may slow your healing down. It won't be forever, just temporarily. Hope all goes well and you sort transport out.0
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i still get sore where they did the surgery of course i think ..... doc says its nerve damage( an ultrasound was done ) what wont be forever?? I still havent got transport sorted, i cant go public transport i have no choice but to go by mini bus which crippled me last time
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Is it possible for you to stay at close by cancer lodge accommodation near the hospital to make it easier given your unique health issues. Can you speak with a social worker? Also there may be volunteers through cancer services which could pick you up. Do you have a breast care nurse who could help coordinate this. @Giovanna_BCNA any ideas?0
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