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  • tismetisme Member Posts: 54
    yeah im home again , even got to keep my pressure stockings. if its bad news will mean trips to northlakes which we cant afford ………...stop the world I wanna get off 
  • kmakmkmakm MelbourneMember Posts: 6,838
    Well done @tisme. I hope you're not too uncomfortable. Try not to cross any bridges until you come to them. Hang in there. K xox
  • kitkatbkitkatb Member Posts: 349
    Well done @tisme at least that side of things is done now. Like kmakm  mentioned try not to think the worst, just take each step at a time and deep breathe. xox
  • tismetisme Member Posts: 54
    been home since Thursday noon , I'm exhausted wouldn't go toidy if I didn't have to  but im not eating either I cant be bothered everything was an effort before now ………… find out in two weeks what it is  on top of everything else 
  • tismetisme Member Posts: 54
    worst day yet, depression through the floor, took the dressing off  ouch to put it mildly  its as sore as ………….. got the phone call today yo tee up an appointment on the 5th April with the surgeon  not supposed to drive for a while no heavy lifting for 6 or so weeks. makes me realise how trapped I am , dont qualify for a taxi subsidy ( cant afford full fare) cant walk far , cant drive I wanna go see the gp about taking off the rest of the wound dressing  I guess I will have to drive and see what happens   im terrified of what the results gonna be  seems like theres so much cancer around. what happens to daughter ……… had a sore throat since the op too  talk about tired wow 
  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 947
    Hello @tisme as the others have said try to take one step at a time otherwise it can all feel so overwhelming.  Dont hesitate to call the BCNA helpline on 1800 500 258 for support or information.  Take care of you and wishing you all the best with the upcoming results.
  • tismetisme Member Posts: 54
    was it u that tried to ring me ??? sorry bout that but I get like that I just withdraw 
  • Brenda5Brenda5 Burrum Heads, QldMember Posts: 2,228
    Congrats on having the hardest bit, the surgery done. Well done you. If you are anything like me you loathe hospitals and it takes a lot just to walk in there. How is the wound feeling? Minimum, lots of two panadol every few hours will help.
    How is your daughter coping? How old is she?
    I wish you lived closer as I could take your daughter to the beach but I am further up the coast. 
    Drink lots of water is my tip. It flushes everything out especially all the medications. Don't worry about a dirty house for now. It will all keep for another time. Take care of you and your daughter. <3
  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 947
    Hello @tisme no I havent called recently.  Make sure you keep your medical team updated as to how you are going.  Dont hesitate to call our helpline to speak with one of the nurses for support on 1800 500 258.  Kind regards  
  • tismetisme Member Posts: 54
    I went to my gp this morning I didn't think id gotten all the dressing off the wound.  someone asked me how I was feeling and I said dreadful , soooooooooooooooooooooooo tired and yuk and I ache like I keep getting beaten up .  she said that could be a sign of something.          or is it stress over the max and arthritis 
  • tismetisme Member Posts: 54
    thanks Brenda,  daughter is worried and a fuss pot .  the wound still hurts more than I expected  I saw the doc this morning as I said above he wants to see me again on Thursday to check the wound.   on top of this I got a cracked tooth and I need a root canal.  daughter is autistic  turns 35 this Saturday she is the only thing that really worries me , what will happen to her iff .  I used to live in Gin Gin /Bundaberg 
  • tismetisme Member Posts: 54
    just got a ph call from the specialist clinic at the hospital , they found a small cancer, it hasn't travelled to the lymph nodes ( will get mre info on Friday when I see them face to face.  The doc told me they recommend radiation therapy and hormone therapy anyone gone through that ?? 
  • kmakmkmakm MelbourneMember Posts: 6,838
    That's good news about not having to do chemo, hooray! Lots of people here have gone through the treatment that's been recommended for you. If you have any questions about it I'm sure they'll be well answered. K xox
  • tismetisme Member Posts: 54
    got a ph call today , I expected the appointment with the oncology doc but not sure about needing one with the surgeon  dont know wether his side kick mentioned him or not  when I see the oncologist im gonna try to get the treatment at Redcliffe or north lakes   big drama today , got a letter from govt housing , they want more info about my need for housing with special needs eg bath bars n such  I already sent them a report from the o/t I dont know what else  

  • Brenda5Brenda5 Burrum Heads, QldMember Posts: 2,228
    The oncology doctor will be your hub between hormone therapy, radiation and physiotherapy should you need it. Do you have a McGrath nurse? She may be able to help find someone to help you with the housing reports. https://www.mcgrathfoundation.com.au/get-support/find-a-nurse/
    Get that tooth fixed or extracted asap. 
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