breastscreen saw something so I had biopsies last Wednesday, my gp was supposed to get the results by Monday, got a ph call from breastscreen to say the pathologist wanted to do more staining and my gp would get the results on Tuesday so I should see him Wednesday. and Im so depressed and scared and such about the whole thing. wouldn't be so bad but theres just me and my autistic daughter left now , friends I thought I had I dont and not a friendly neighbourhood I tried when we came here but was ignored. I have never felt so alone in my life

Welcome @tisme . The beginning is very hard with all the unknowns. Have you been connected with a breast care nurse yet?Know that we are here for you whenever you need. No question too silly.@SoldierCrab has 2 autistic sons aas do e a number of members that also know life is already a struggle. We have pretty effective treatment available and the process about that will start after you get your results. Take care. Kath x

Hey @tisme, don't look at the mountain. Pick one box/pile, sort it, pat yourself on the back for doing it, and do another one tomorrow. I'm about to do the same with the piles of paperwork & STUFF that have mushroomed all over my house since early December. About to pick ONE (there are four in my bedroom alone...) and if I can make it disappear today it will be a substantial achievement for me! K xox

@tisme I'm sorry I've not kept up with your posts. You have huge challenges ahead, which is just shite. I suggest you get in touch with a breast cancer support group in Brisbane North, called Be Uplifted. Have a look at their website :https://www.beuplifted.org.au:smile: Then contact them directly. They provide practical and some financial support and they're lovely people.

Hi @tisme. This is a dreadful time, and as everyone has said, take it one day at a time. One hour at a time even, if necessary. This is a technique that counsellors recommend. It helped me when I was first diagnosed and a wreck.'Predictive grief' is a phrase my psychologist uses and urges me not to do! Easy to say but harder to do I know... Being prepared is one thing but anticipating troubles that may never happen is no way to live. So focus on today, take some deep breaths (it settles the nervous system) and be kind to yourself.Being diagnosed with breast cancer interrupts our lives no end. It was pretty disastrous in my house (click on my @name to read my story). It's always disruptive, be it for a few weeks or a year. However it's a very well oiled treatment machine and there are huge amounts of support and services available. And if you're diagnosed and undergo treatment, you'll be surprised how quickly it becomes routine.So hang in there. Big hug, K xox

Very true @kmakm I know during chemo on my worse days it was hour by hour couldn't see past that. But we got through hey. xo

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140 Replies

Sister
Member
6 years ago
If your arm is feeling heavy, you should get it checked out @tisme as it could be the early signs of lymphoedema - it might not be either so not trying to cause panic. Others may be able to be more specific about it. I do know though, that swelling is a later stage and better to get onto it earlier than that.
tisme
Member
6 years ago
oops , im sposed to see my gp if i have any issues , but i hesitate my previous gp sent me for 6 monthly u/s due to having a lot of cysts, she left this gp didnt see a point , luckily i had a scan due with breast screen they found it . so I wonder how this new gp will treat me going back for issues. He did do an u/s a few weeks ago that was clear of anything
tisme
Member
6 years ago
thought at least for mow things would settle , seems not to be , that right b is sore again like it was post radiation , when I life my arm i notice it more ,. is it the hormones im on , is it C sooo tired
Kattykit
Member
6 years ago
@tisme , have you tried the local community centre, I lived in a small country town and they took me to Dubbo and back which is a 320 km round trip and the hospital had family units for patients with kids. I hope someone steps up soon to make things more doable for you.
Kat xx
tisme
Member
6 years ago
havent heard from the breast care nurse in aaaaaaaaages even though I sent an email, oncology social worker at rbh said there was nothing she could do., cancer council only provide transport closer to brisbane cant stay overnight etc due to being a carer of my daughter
Giovanna_BCNA
Member
6 years ago
Hello @tisme, @primek
Good idea regarding a breast care nurse also touching base with the oncology social worker.
Also contacting the Cancer Council on 13 11 20 to see if they have any recommendations regarding transport and accommodation.
regards Giovanna
primek
Member
6 years ago
Is it possible for you to stay at close by cancer lodge accommodation near the hospital to make it easier given your unique health issues. Can you speak with a social worker? Also there may be volunteers through cancer services which could pick you up. Do you have a breast care nurse who could help coordinate this. @Giovanna_BCNA any ideas?
tisme
Member
6 years ago
i still get sore where they did the surgery of course i think ..... doc says its nerve damage( an ultrasound was done ) what wont be forever?? I still havent got transport sorted, i cant go public transport i have no choice but to go by mini bus which crippled me last time
primek
Member
6 years ago
Just remember at this stage your surgery is considered curative. The radiotherapy and hormone treatment is to ensure no stray cells survive. The arthritis meds may slow your healing down. It won't be forever, just temporarily. Hope all goes well and you sort transport out.
tisme
Member
6 years ago
anyone been on arthritis meds while fighting breast cancer ?? it seems the meds lower the immune system , which i dont want while fighting cancer but if i dont the Rheumatoid arthritis can play havoc

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