A Little Embarrassing
Comments
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Hi Matt, As everyone else has said - don't be embarrassed. I think you may be on the same chemo as me. I had 4 AC x 3 weekly and am now on Paclitaxol each week for 12 weeks (having No. 3 tomorrow). Interesting about the second toenails. I have the same thing but put it down to kicking a ladder (accidentally) for one and catching the other, lifting the nail, on a lounge chair. I do know that the AC can make you more susceptible to bruising so maybe it's just that those toes are in the firing line.1
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Hi Matt, I don't have anything to add to what the others have said but just wanted to give you a friendly welcome.2
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Hi @Matt, sorry for your diagnosis but welcome.
As the others have said, you have nothing to be embarrassed about. We have all learnt that breast cancer doesn’t discriminate whether we are young or old, male or female, super fit & healthy or otherwise. There is lots of support here for you from both men and women.
All the best with your treatment and we will be here if you need us. Jane
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Hi Matt
Check out out FACEBOOK PAGE at:
The Men’s Breast Cancer Forum. We’re based in Brisbane, and there are a couple of guys you can contact and chat to at any time.
we’ve all been thru exactly what you are going thru.
would love to hear from you.
Also on gmail at: mensbreastcancerforum@****
Peter Bennett1 -
Hi Matt and welcome. Have you told your Dr about the discolored toes?. It's not uncommon to lose toenails with taxol (12 week one) but you aren't on it yet. Dark toes could be circulation issues so please see your Dr asap, contact chemo team or your breast care nurse (have you one of those? )
Ask anything you want and we will help as much as we can.
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Welcome Matt. Not sure about the purple toe part but a white nail means the nail bed is damaged and it might lift off. I stayed out of the sun with mine and while they all receded finger and toe nails alike I managed to keep them on until they grew out months later. Try to keep them trimmed so they don't catch on anything. Soaking the feet in water with epsoms salts may help.1
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Welcome Matt ! We are all here in the same boat helping each with support and practical advice. There is usually someone on here most hours of the day if you need a chat too. Glad to know you found us !1
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@PeterB and @traveltext don’t suppose you bloke might set up a steer an online group for blokes on this blog.There maybe issues blokes may care to talk to another bloke or uniquely male issues.Might help young newbies like Matt settle in.PS Blogging on the main page of course is always available and most welcome0
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There is a section for men to post here. They really just don't post though.When you consider there's only 150 new cases a year in Australia and most of them are like Matt. too embarrassed to post.
I'm on the US breast cancer blogs all the time, particularly breastcancer.org, since there's 2500 new cases over there per year and many more guys to reach out to. Also, malebreastcancercoalition.org has a website and Facebook page.
I'm always available to help men offline and I'm a Cancer Council trained telephone counsellor. If Matt, or anyone here wants to contact me here: http://malebc.org/contact/5 -
I guess all we can do for now is descend in droves on you and Peter when anyone identifies as male and lost. Seems we are getting pretty good at it 3
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Hi All
Thanks for your concerns, at the moment i'm doing fine, my wife and daughter are great support and my family, while i'm getting treatment there's hope, sure before treatment, emotions were all over the place but i'm much better now, ok looks like I might be losing a couple of toe nails but hopefully they'll grow back, same with my hair :-) @Romla thanks for the compliment but i'm not young, I guess the thing that really keeps me going is my daughter she is 9 yrs old, i'm a late starter hehe,
@traveltext and @PeterB thank you both for all your help and information, its a great assert to have
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Where is the place for blokes to post on here please @traveltext as I can’t see it in groups. How do they market bc and in particular male bc in the US as fit could help a movement to recalibrate the image in Australia? I guess it goes without saying Pink Lady and Field of Women aren’t helpful - there must be a way to adapt both to reflect reality without destroying the goodwill embraced in current branding ie small steps forward rather than this constant overlooking the obvious. If possible eventually a new brand might be accepted if edged forward a little incorporating old and new branding.0
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Hey @ Matt I understand late starting I had unexpected twin boys at 47 and my daughter planned at 40 - all very loved.There are great people on this blog who will help you along the way to the best they can - males and females. Hey Peter and @ traveltext thanks for being here to help.0
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Hi @Matt- just wanted to add my welcome to you and to wish you well on this journey. Your toes sounds like they are in need of help - definitely show dr or one of the nurses prior to next chemo -common side effect as others have said. My oncologist has been very strong on recommending regular podiatry to keep the nails etc under control -they can get infected without care and the last thing you need is an infection. All the best1
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Romia, there's a men's page here:
http://onlinenetwork.bcna.org.au/discussion/comment/111982#Comment_111982
In the US there's a male bc week held in October in most states. BCNA held a nation first male bc day last year and I'm hoping they'll build on it again, this year.
You're right that the pink is an issue insofar as it reinforces the disease as female only in the community. While we had success here last year reversing TG he Beacon name change to Pink Lady, we realise how big the Rask is to add some blue, just a small bit, to all the pink around here. Likely it would interfere with revenue raising to have us up featured too prominently. Meanwhile we're diagnosed later and our prognosis is poorer.
A mate and I have drawn up a manifesto to ask for some changes to the pink culture: www.malebc.org/manifesto
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