Best Of
Re: Steri Strips have come off after 3 days. Do they need replacing?
@Blossom1961 Thank you, didn’t even think of calling the oncology ward. Will given them a call in the morning.
Re: New Diagnosed
Thank you @Bez_BCNA. I did not realize how many resources are under the My Journey section. So much to look at and process.
GorgyS
1
Re: Scared about hormone blocking treatment
Thank you, it so useful to hear everyone’s story and even just hearing from women who have been in the same situation is so comforting
TamiOc
1
Re: Lobular breast cancer just diagnosed
Well I rang my nurse and had to go straight in to see her at The Mater Hospital where she took out 75ml of blood with a syringe from my chest!
I've definitely learned a lesson to "take it easy" !!
That was on Thursday, now Saturday, it seems to have settled down a lot, not as swollen and dark coloured, thank goodness. Hope tonight it's not so burning with pain.
I'm also suffering from stopping the HRT's I was on, with hot flushes and I get really annoying "restless legs" in bed at night.
Has anyone else had this? and suggestions how to stop that? I can put up with the hot flushes but the restless legs drives me crazy.
The nurses only suggested Magnesium tabs but it's not really helping
If anyone knows a magical cure I'd be so grateful!
x
I've definitely learned a lesson to "take it easy" !!
That was on Thursday, now Saturday, it seems to have settled down a lot, not as swollen and dark coloured, thank goodness. Hope tonight it's not so burning with pain.
I'm also suffering from stopping the HRT's I was on, with hot flushes and I get really annoying "restless legs" in bed at night.
Has anyone else had this? and suggestions how to stop that? I can put up with the hot flushes but the restless legs drives me crazy.
The nurses only suggested Magnesium tabs but it's not really helping
If anyone knows a magical cure I'd be so grateful!
x
Cindi
1
Re: New Diagnosis - Navigating
Hi @nicmaree, so happy to hear that your op went fine and that the medical team were very supportive . I think that is probably the most important part of your treatment done!
It seems natural to me that you should be so tired. You're doing really well to keep up with the exercises and the small walk each day. Self-care and a little indulgence too is just the ticket.
My mother had breast cancer (2 occurrences, over a decade apart) and my sister and I were told it wasn't genetic, I think that was because of mum's age - but then I turned up at almost 55 with two cancers, one in each breast. So I've been referred for genetic testing.
But I also was on low dose HRT a few years, and went through a lot of stress last year. Then I thought, did I have too many glasses of wine with my dinner over the years....there's so many things to suspect. I realise it can be helpful sometimes to know why, but I've decided not to worry about it anymore, unless of course there is genetic information turned up. Especially I don't want to blame myself, or anyone else. I'm just focussing on getting better and a future with a new perspective
You will find lots of support on here, such a lovely group of people
You will find lots of support on here, such a lovely group of people
Steri Strips have come off after 3 days. Do they need replacing?
Hello again. I had surgery late on Wednesday for a lumpectomy and lymph node removal, the steri strips that covered the incision (dissolvable stitches) for the lymph node under my arm pit have come off. Should I be getting these replaced? Why does everything seem to happen on a weekend? TIA
Re: New Diagnosis - Navigating
@HelenlovesSnoopy and @SuzyS and @arpie Op was last Wednesday and home Thursday. My specialist, the doctors, nurses and my anaesthetist were all so supportive and lovely. The lump and 3 lymph nodes removed but won't know anymore until I get pathology results on Thursday. I'm constantly tired (I didn't sleep much in the 2 week lead up to the op). I'm doing the exercises given to me by the breast care nurses and a small walk in fresh air each day. I feel like everything is out of my hands now. I'm in a holding pattern, just waiting. I'm trying to be positive and think good thoughts.
I am swollen and sore but should I be so tired?
I have been reading other posts and I can say that I have dense breast tissue. I have been having regular mammograms and ultrasounds for 20 years since I was 40 years old and not once was I told that dense tissue was more susceptible to breast cancer. The reason I had the checks for so long was because my aunt, my mother's sister, had breast cancer and a mastectomy many years ago. I was told that the line didn't follow that way.
I was also not aware the connection between stress and cancer until I was diagnosed with breast cancer.
I am swollen and sore but should I be so tired?
I have been reading other posts and I can say that I have dense breast tissue. I have been having regular mammograms and ultrasounds for 20 years since I was 40 years old and not once was I told that dense tissue was more susceptible to breast cancer. The reason I had the checks for so long was because my aunt, my mother's sister, had breast cancer and a mastectomy many years ago. I was told that the line didn't follow that way.
I was also not aware the connection between stress and cancer until I was diagnosed with breast cancer.
nicmaree
2
Re: New Diagnosed
@nomadd I found out I had bc 10 days ago and had my lump and lymph nodes removed yesterday. I can sympathise as my head is still all over the place but my surgeon has been amazing and talking to her has put me in a much better place than I thought I'd be right now. Also had a chat to a Breast Care nurse while i was in hospital, which was helpful as well. I know there is a long road ahead but it doesn't seem quite as daunting now.
Hopefully your surgeon will be able to do the same for you. One tip I got, which was the best, was write down any questions you want to ask them about in an exercise book (or similar) so you don't forget any of them in the appointment. Was the best thing I did.
Good luck with your journey
Deb 🙂
Hopefully your surgeon will be able to do the same for you. One tip I got, which was the best, was write down any questions you want to ask them about in an exercise book (or similar) so you don't forget any of them in the appointment. Was the best thing I did.
Good luck with your journey
Deb 🙂
deb1962
2
Re: What a whirlwind
@deb1962 - You've had a rough trot of it xx. Please consider joining the private group for Triple Negative members ..... you can discuss stuff in total privacy - and keep up with the latest on TNBC.
It is totally normal to feel brain overload & even overwhelmed ..... maybe give our helpline a bell tomorrow & have a chat - 1800 500 258 (Mon-Fri) .... and check out Charlotte Tottman's podcasts, which are really great x. Start at No 13 for the first series, then go to No 1 for the 2nd series
https://soundcloud.com/search?q=charlotte tottman
There are currently trials in the UK & USA on a vaccine that is proving beneficial - but so far, it has not started in Australia. Maybe, mention this to your Onc & ask if there is any lobbying by them to have it brought to Australia? (See link below)
https://onlinenetwork.bcna.org.au/discussion/comment/215246#Comment_215246
Definitely stay away from Dr Google (difficult tho it is) as everyone's case is individual & unique and often info is outdated or not relevant to your diagnosis ....
Take care & all the best xx
It is totally normal to feel brain overload & even overwhelmed ..... maybe give our helpline a bell tomorrow & have a chat - 1800 500 258 (Mon-Fri) .... and check out Charlotte Tottman's podcasts, which are really great x. Start at No 13 for the first series, then go to No 1 for the 2nd series
https://soundcloud.com/search?q=charlotte tottman
There are currently trials in the UK & USA on a vaccine that is proving beneficial - but so far, it has not started in Australia. Maybe, mention this to your Onc & ask if there is any lobbying by them to have it brought to Australia? (See link below)
https://onlinenetwork.bcna.org.au/discussion/comment/215246#Comment_215246
Definitely stay away from Dr Google (difficult tho it is) as everyone's case is individual & unique and often info is outdated or not relevant to your diagnosis ....
Take care & all the best xx
arpie
1
Re: New Diagnosed
@nomadd all of the above advice is so accurate. Like all of us the buzzing will settle. At this stage its one day at a time. And distracting that brain with pleasurable things is the way to go. Remember to breathe. And DO NOT GOOGLE OR SEARCH your symptoms etc go to reputable sites like here and cancer council site.
Let us know how your travelling. Be it good or not so good. Often just typing out your concerns on here can be helpful.
Let us know how your travelling. Be it good or not so good. Often just typing out your concerns on here can be helpful.