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Cindi

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Joined 2 years ago

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Re: Ribociclib Side Effects
Hi @cactusk , Oh wow!! Kelly, I'm so sorry to hear how horrible your treatment has been, so horrible. I haven't been around this forum lately much as I think I've recovered from last years breast cancer and now fighting bladder cancer and mostly on another forum where there's a few with similar cancers, but no where as helpful as this forum. I miss this forum :'( I'm so sorry I missed all this and hope your liver recovers well, it's just terrible what you've been through, you poor thing. As you said our livers are amazing and can recover damage well, so that's one positive. I know trying to find a positive sounds ridiculous, but I find it helps to do that, ( well, helps me anyway) Look ahead to what you'll do, plan out things like your exercise like swimming and walking, anything that'll cheer you up because you WILL get there. Sending lots of hugs, Cindi xx
1 year ago Place Side effects
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Re: Masectomy
Hi @Chance , I had Lobual breast cancer last year in both breasts and after much thought had a double mastectomy which for me was the right descision, also I decided to stay flat and I just wear a comfy bra with padding in it, happy I went this way. I also found I healed quickly, and I never regret this descision. I hope it all goes well for you Cindi xx
1 year ago Place Surgery
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Re: Hair Loss Advice
There is a really good wig salon in Sydney on the North Shore called The Beautiful Hair Salon in Neutral Bay. Their wigs are lovely and natural looking, human hair. xx
1 year ago Place General
183Views
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Re: Wishing @Cindi a VERY happy 70th Birthday for TODAY
THANKYOU everyone!! :D
1 year ago Place General discussions
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Re: Chemo side affects
Thanks @Arpie. Thanks @@FiFiK , have written that down. :)
1 year ago Place General discussions
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Re: Chemo side affects
Hi @arpie , Thanks for the help, however yesterday afternoon all the meds I'd taken "suddenly" all worked! ....and I mean suddenly! luckily I wasn't far from the bathroom. Very bad the opposite way then for most of the evening.Even blood came out!! scary but all settled later, didn't really know what to do as I was all alone. SMy hubby out at some boxing thing he works for. But was a huge relief when eventually felt back to normal :D But sleep avoided me even though my CBD oil always helps wonderfully, it was strange ,like very speedy feeling. I have to take a steroid drug each morning which helps the chemo I think ( Dexametasone) I wonder if that is causing it. Anyway I ended up having to have a sleeping pill, which we have very few of, and are my hubbies, he needs them a lot because he now needs a shoulder operation and cant sleep ..hmmm. I wish he'd wait till my chemo's finished, but think I'll end up having to push myself and look after him. I'll have to try to get more but our GP seems to hate giving scripts for them. I did message chemo nurse yesterday but got no response ( I know she's flat out) now weekend so they not there. So glad I can speak on here to people who care and help, really appreciate it. ( can't find a forum for my new type of cancer.) I'm kind of not really a bladder cancer patient as mine was growing in the ureter and that's more rare. Thank you so much , will check out the posts. xx
1 year ago Place General discussions
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Chemo side affects
Hi my friends, Cindi here, I'm reaching out to you because my chemo nurse told me although my cancer isn't breast cancer now ( I had that last year) my new cancer is actually called bladder cancer even though it was in the ureter which connects the kidney to bladder. Kidney & ureter and part of bladder now removed and my nurse said one of my chemo meds is also used for breast cancer, so I wanted to know if any one has experience with Gemcitabine or Carboplatin? I started yesterday and I'm already very constipated even though I've taken Movical, prune juice, and Coloxyl, but no luck.Drinking lots too. I don't want this to drag on for days as I was told I'd get worse. Any thoughts? love to hear anything that you've found would help. They have only told me that I may or may not loose all my hair, eyelashes & eyebrows ( don't mind about the pubic hair! it can go happily :) ) Any input would be so appreciated. xx
1 year ago Place General discussions
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Re: Lobular breast cancer just diagnosed
@Julez1958 , Thanks for the advise and yes I guess we all have different reactions to drugs, I'll try to just go with the flow. x
1 year ago Place General
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Re: Lobular breast cancer just diagnosed
Hi @HelenlovesSnoopy , How are you going? sorry we haven't spoken for a while. Hope you're going well. Thanks for your kind words and help. You did well to get through your chemo ok ! Not sure if this is going to be the same drugs or if they will alter dose as I got a call saying my kidney function bloods are not good so chemo will have to be changed? Who knows, but i do go into hospital next Tuesday to have a Port insertion into chest for the chemo. Did you get this? xx
1 year ago Place General
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Re: Lobular breast cancer just diagnosed
Hi @Tri , Thank you for the info, I'm sure I'll be ok, it's just the unknown that is daunting. xx
1 year ago Place General
57Views
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Invasive Lobular Cancer (ILC)
This group is for anyone diagnosed with invasive lobular breast cancer (ILC), which begins in the milk-producing lobules and accounts for around 10% of invasive breast cancers (US statistics). Connect with others, share experiences, and access peer support from people who understand the unique aspects of an ILC diagnosis.
Flat Chat - no breast reconstruction
PRIVATE GROUP. This group is a safe space for those considering, actively choosing or not have had a choice to stay flat after a mastectomy. Whether personal decision or one shaped by circumstance, you're invited to connect and share your experience and images with others on a similar path. Information shared is based on personal experience and not intended as medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️Posts may include images of surgical outcomes, which some may find distressing. If you need support, please contact the BCNA Helpline—we’re here for you.