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cranky_granny
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Joined 9 years ago
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Re: 1st Chemo reaction !
WowNm80 I’ve heard of desensitising to other allergies so it’s obviously possible. How far do you have to travel to get to this city hospital. by the way welcome to the club of Breast Cancers fighters. Try the search Bar at the top something from the past might crop up. I’m afraid my only reaction to all the various treatments has been an itch that wont scratch. Antihistamine fixes that. And mouth and nose sores which comes and goes I’m way down the track of treatment. If you’re rural or have to travel a distance there are government subsidies- depends on the State you live in to level of help. I’ve been a bit out of touch on here lately just starting to catch up. Hopefully someone can jump on with some more direct help. Hopefully you have been appointed a breast care Nurse of some sort. They are usually the best source of information and NEVER EVER dr google, go to the reputable sites like cancer council and here. Check out the various podcast on here as well.31Views1like1CommentRe: If you don't mind a buzz cut...
I also agree, as soon as I started waking up with strands of hair in my finger off it came. I twiddle my hair in my sleep still do it to this day I wake up and I can see exactly where I have been putting my fingers through my hair often thought of going back to buzz cut. taming my hair back down every morning is getting to be annoying. I'm not at all fussy about my hair just lucky one of my best friends is a hair dresser She shaved it off initially and now we have fun with styles (short) and colors. back 10 years ago no-one mentioned cold capping seeing discussions about that all seems like too much effort. The relief of not having that crawling strange feeling was great . I played with scarves, hats, caps and wigs in the end I just went mostly bare. treatment was over summer so outside was just the old straw hat, just so i didn't burn my scalp. My whole body basically went nude of hair by the time the chemo stopped. The thing with the hair falling out is for most it grows back.35Views0likes0CommentsRe: EBRT External beam radiation therapy
Hi 1930 Bit slow catching up online I had the EBRT 5 years ago. direct hits to two lesions was all pretty quick and painless It took more time to set up before each zap than it did. to have the zaps. My 2nd rib was targeted. And my sacrum. At the staging set up They made a mask to fit over my head shoulders and upper arms which clipped me onto the table. (got to keep it as its great for fundraisers.) I also had to have another black bag that they fashion around my hips that held that area in place. because its very targeted you have to be held in position, they don't want any movement so they can hit the exact right spot. My rib one worked really well, as for the sacrum not so sure though it has been 5 yrs and i have a new spot on a different part of the sacrum . the lesion on my sternum they hit when the did the original rads back in 2017 . since then I have 1 new spot on my T3 vertebrae which no-one has suggested it gets zapped. Mine was done in the hopes of killing it off or at least slow down its growth. Along with the line of treatment I'm on seems to be working no rapid growth happening. Let me know how you go.15Views0likes0CommentsRe: D4 post lumpectomy itching
Applevic though it was a while ago now 2017 in fact. I had lumpectomy breast conservative surgery and yes I had the itch on my breast mostly around the surgery scar. (It was a bit extensive as my tumours feelers had latched onto my skin. ) The random pains sometimes like a being stuck with a needle. And random gripping stabs definitely nerves coming back to life. Watch for and blotchy red hot areas if you’re unsure get your breast care nurse to check it out. I had a small area of infection at one of the stitches which delayed the radiation. They still did the staging and my dot tattoos etc fortunately a dose of antibiotics cleared it up. And rads went ahead. Biggest advice is know that radiation has a delayed effect its a whole new feeling of tired. Theres a couple of products available to protect the breast from burning check with the radiation team or someone else might jump on with the names of the products I was never offered anything just sorbolene cream / vitamin E which i kept up long after and still do it now just not as regular. I found the rads the easiest part of the whole treatment and each session the preparation took longer than the actual zapping. just be sure at your radiation staging/planning ask all the questions you feel you need to have cleared up. best wishes with how it all goes keep us updated14Views1like0CommentsRe: Partner Issues
MillyMolly your feelings are legit and understandable Though my partner/husband wasn’t there for my breast cancer he had passed away. it nearly broke us when I had cervical cancer. If it wasn’t for our GP who gave him the riot act about it. I discovered he couldn’t handle the thought of me dying before him. We were together for just short of 40 years As for your EX good riddance. Though I haven’t bothered with finding a replacement. I admit I thought of finding a “friend with benefits” I don’t bother with that thought anymore meds fixed that. I do know a couple of people who have relationships like that, Someone that can go as the plus one on the invitations etc you are number the 1 priority in life. Do what pleases and fulfilling for you87Views1like1CommentRe: Flying with a seroma
I haven’t had the flying experience with my seroma it will be interesting if anyone else can shed some light on the subject as well as I am intending to do a short flight in June. i don't get mine drained Ive had a biopsy on it and some scar tissue removed which relieved it. It is now been 9 years with it it just gets looked at at each ct scan and the ultrasound on the rare occasion I have one.112Views0likes0Comments
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
