Best Of
Re: Stage 3 Invasive Lobular Cancer diagnosis
Hi @KezzaG
I have ILC as well. I felt a lump in January this year and had confirmation in March, followed by a lumpectomy a week later. The pathology showed no clear margins (18 tumors found in the margin!), and three out of three lymph nodes involved. My mammogram 18 months earlier was clear however the surgeon said that I would have had the tumor then...just a tricky one to detect.
I started AC-T chemo in April, had almost no side effects other than the hair loss (awful!) and a bit of tiredness. My suggestion would be to investigate a port, I had one put in before chemo and it was the best thing, others at chemo had issues with veins etc but my port worked a treat each time. Plus I put an Emla patch on one hour before they accessed it and had zero pain.
My chemo finished on the 25th September, I now have a little bit of numbness in four fingers and two toes, plus occasional pins and needles in my feet, hope this goes away soon. Plus I still have no hair.
Mastectomy on Wednesday...far out I am not happy about losing my breast. I think the only reason I am actually doing it is because my partner wants me to survive this and says it doesn't matter to him that I will have a scar. I will have reconstruction in 12 months time. If you need a prosthetic you may be able to get $400 from Medicare toward the cost of it.
Radiation and hormone blockers start for me in about December.
You will get the best support and advice from everyone on this forum. It is so good to be able to talk to people who have been through it.
Wishing you all the best xxx.
I have ILC as well. I felt a lump in January this year and had confirmation in March, followed by a lumpectomy a week later. The pathology showed no clear margins (18 tumors found in the margin!), and three out of three lymph nodes involved. My mammogram 18 months earlier was clear however the surgeon said that I would have had the tumor then...just a tricky one to detect.
I started AC-T chemo in April, had almost no side effects other than the hair loss (awful!) and a bit of tiredness. My suggestion would be to investigate a port, I had one put in before chemo and it was the best thing, others at chemo had issues with veins etc but my port worked a treat each time. Plus I put an Emla patch on one hour before they accessed it and had zero pain.
My chemo finished on the 25th September, I now have a little bit of numbness in four fingers and two toes, plus occasional pins and needles in my feet, hope this goes away soon. Plus I still have no hair.
Mastectomy on Wednesday...far out I am not happy about losing my breast. I think the only reason I am actually doing it is because my partner wants me to survive this and says it doesn't matter to him that I will have a scar. I will have reconstruction in 12 months time. If you need a prosthetic you may be able to get $400 from Medicare toward the cost of it.
Radiation and hormone blockers start for me in about December.
You will get the best support and advice from everyone on this forum. It is so good to be able to talk to people who have been through it.
Wishing you all the best xxx.
Re: A bit naughty - but funny!!! Show us your 'naughty ones'!
Oh dear ..... I've often wondered about that myself ....
arpie
5
Re: Unspoken thoughts
Too funny for words........
Even though its been 7 years since my treatment my favourite will always be ......
You look so good, your absolutely glowing ! (Why yes,...... amazing what a few toxic chemicals do for your complexion ........)
Even though its been 7 years since my treatment my favourite will always be ......
You look so good, your absolutely glowing ! (Why yes,...... amazing what a few toxic chemicals do for your complexion ........)
CarmelS
5
Re: Unspoken thoughts
How come nobody said "You look amazing" to me before I had BC?
Today I responded honestly "I don't feel amazing. I am tired and over it. I have a really sore stomach and my ankles and belly are swollen." The look on their faces was worth the honesty. They didn't know how to escape! Naughty!
Today I responded honestly "I don't feel amazing. I am tired and over it. I have a really sore stomach and my ankles and belly are swollen." The look on their faces was worth the honesty. They didn't know how to escape! Naughty!
Re: Creative Corner!
Hi all. I’ve not been here for a while. It’s so wonderful & inspiring to see your creative work
I was unable to do much in our workshop for sometime .... ups and downs with my health. The downs happen, then we get on with living & playing.
I’ve been wanting to make myself a small black satchel for years. I finally made it. Below are pics of my embossed goat skin satchel with burned orange goat skin pockets. I called the design ‘temple of healing’. Later I’ll post a couple of other items I made using this design.
Front - magnetic closure
Pockets ore a gorgeous burned orange goat skin
Back - I even embossed the gusset. (Yep, I’m a little mad but I do have fun)
I was unable to do much in our workshop for sometime .... ups and downs with my health. The downs happen, then we get on with living & playing.
I’ve been wanting to make myself a small black satchel for years. I finally made it. Below are pics of my embossed goat skin satchel with burned orange goat skin pockets. I called the design ‘temple of healing’. Later I’ll post a couple of other items I made using this design.
Front - magnetic closure
Pockets ore a gorgeous burned orange goat skin
Back - I even embossed the gusset. (Yep, I’m a little mad but I do have fun)
jena
5
Re: Creative Corner!
Hi gals. Im a dressmaker by trade so sewings my game but i love just about all forms of art n craft. I now have lyphadema in my right arm and its is useless, but lucky im a lefty. Couldnt do all my usual stuff do ive taught myself macrame. Loving it. 
Me2
5
Re: Has anyone noticed the site being flaky?
I'm having trouble with the pages loading sometimes, but a refresh fixes it. I'm blaming the Tamoxifen, someone must have added it to the website 
Mira
6
