Best Of
4 years since BC diagnosis & joining BCNA & my surgery ...
Woohoo! This year was the first year that I didn't actually 'remember' that Jan 5th was the anniversary of my actual diagnosis of BC ...... so that must be a good sign!
So - today - it is now 4 years ago since I joined BCNA (at the suggestion of a girlfriend in Qld who had been diagnosed a few years earlier) .... and a few days later, Jan 15th, I had my surgery.
What a roller coaster ride it has all been .... lots of tears, anger, melt downs, but there's also been lots of laughs and education - all emotions are a part of this shitty disease - but, newbies, take note - it DOES get better!
During this time, I've really appreciated all the support & info & camaraderie from the group - but especially the wonderful friendships that I've made along the way - with regular PMs within 'The Famous Five' over the years .... xx.
So ... a big THANK YOU to all of you who've helped make a difference
All the best to those who've been recently diagnosed ...... reach out, lean on us, ask questions, and we'll do our best to offer support and info to help get you thru the rough bits xx
take care, stay safe
So - today - it is now 4 years ago since I joined BCNA (at the suggestion of a girlfriend in Qld who had been diagnosed a few years earlier) .... and a few days later, Jan 15th, I had my surgery.
What a roller coaster ride it has all been .... lots of tears, anger, melt downs, but there's also been lots of laughs and education - all emotions are a part of this shitty disease - but, newbies, take note - it DOES get better!
During this time, I've really appreciated all the support & info & camaraderie from the group - but especially the wonderful friendships that I've made along the way - with regular PMs within 'The Famous Five' over the years .... xx.
So ... a big THANK YOU to all of you who've helped make a difference
All the best to those who've been recently diagnosed ...... reach out, lean on us, ask questions, and we'll do our best to offer support and info to help get you thru the rough bits xx
take care, stay safe
arpie
6
Re: whoops, wrong spot.
Ok everyone, time for an update.
First - THANKS! You all helped. A lot.
Secondly, I gave up trying to go without the pain meds. Turns out being in pain makes a person very grumpy. Who knew.
I took all my pathology and treatment plans and EVERYTHING with me to the breast care nurse on Wednesday. I also moved heaven and earth (and so did they!) to allow my partner in with me. Having him excluded from that sort of thing was causing serious domestic strife.
Then the kids (5&8) went away for three nights, which was extremely reatorative.
Seeing the cancer psych was also helpful. I'll see her again next week.
Everything is still overwhelming, I'm still drained, exhausted, and depleted. I still (STILL!) have the blasted surgical drain in my side. I still have so much health admin to do it's not funny (with the bills, it's not the money so much as it is keeping track of everything and actually doing the task.)
But for now, I'm doing ok. Not great, but ok. And for now, I'll take that 😊
First - THANKS! You all helped. A lot.
Secondly, I gave up trying to go without the pain meds. Turns out being in pain makes a person very grumpy. Who knew.
I took all my pathology and treatment plans and EVERYTHING with me to the breast care nurse on Wednesday. I also moved heaven and earth (and so did they!) to allow my partner in with me. Having him excluded from that sort of thing was causing serious domestic strife.
Then the kids (5&8) went away for three nights, which was extremely reatorative.
Seeing the cancer psych was also helpful. I'll see her again next week.
Everything is still overwhelming, I'm still drained, exhausted, and depleted. I still (STILL!) have the blasted surgical drain in my side. I still have so much health admin to do it's not funny (with the bills, it's not the money so much as it is keeping track of everything and actually doing the task.)
But for now, I'm doing ok. Not great, but ok. And for now, I'll take that 😊
Kahm
7
Re: Trying to Stay Positive my journey
Thankyou to this wonderful group. I lve just reread all these comments from 2018 and has made me feel ppsitive again even if l am crying at the moment. So much has happened since then, moved to Vic to be closer to families, then covid. My BC mutated to triple neg, and riboclib no longer working. Now on chemo have had 16 rounds and told on NY eve that it is no longer working, ca markers jumped frpm 72 to 360 in 3 weeks. Where to from here, anxiously waiting results of scans next week, all l can do is make the same vow to myself as last new year and that is to still be here this time next year
Suzi14
6
No words needed. Haha 😂 Re: Have a Merry Xmas and all the best for 2022 .....
Happy New Year, everyone - I reckon this one explains it pretty well ...
arpie
6
