Mez_BCNA
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Re: Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors - lidERA Trial
Thanks for sharing arpie - really interesting and encouraging research. It’s great to see consistent findings across studies in other countries, as that broader evidence can really help influence future treatment guidelines.👋 Quick reminder for anyone interested in lymphoedema information and upcoming events
There’s a really helpful discussion thread on the Online Network focused on lymphoedema information and events. The thread is regularly updated with upcoming events by our Online Network members - with a special shout‑out to Kristen for consistently sharing and keeping the information current 👏💛 If you haven’t already, take a moment to check it out and join the conversation here: 👉 Lymphoedema Information & Events | BCNA Online Network Feel free to share your experiences, ask questions, or add any events or resources you know about.Re: Just need to talk to someone
Thankyou for posting your discussion CrazyDogLady67 – while we wait for other people to share their experience and offer their insights. We wanted to assure you that it makes a lot of sense that you’re feeling confused, panicked, and overwhelmed right now. Many people tell us that in the early days after a breast cancer diagnosis it can feel like everything is happening at once, with too much information and not enough time to take it in. There is nothing “slow” about you, this is a very normal response to a life‑changing situation and it’s okay that things don’t feel clear yet. You’re not expected to understand everything all at once. For most people, clarity comes gradually and plans start to form. If you’ve been assigned a breast care nurse at the hospital, they can be a really important person to talk things through with helping explain what’s happening, answering questions, and being a steady point of support. If you haven’t yet been linked in with a breast care nurse, you may find the Find a McGrath Cancer Care Nurse Near You helpful in locating a nurse near you who can provide free, ongoing support. We (BCNA) also has resources designed to support people who are newly diagnosed. Many people find it reassuring to work through information at their own pace: My Journey – a trusted, step‑by‑step resource that provides clear information tailored to where you’re at, from diagnosis onwards Getting through the first few weeks (article) You may like to watch BCNA’s Webcast: Just diagnosed - what’s next? BCNA's Helpline (1800 500 258) – to talk things through with someone who understands, when things feel like too much and can offer further resources to support you Support is available and know that you are not alone.🏷️How to 'Tag' other members on BCNA’s Online Network
One great way to engage with others is by tagging them in your posts or comments. Tagging helps notify someone that you’re talking to them or mentioning them in a conversation. What does “Tagging” mean? Tagging is when you mention another member by name in a post or comment using the @ symbol. It creates a clickable link to their profile and sends them a notification so they can see your message. How to tag someone Just follow these steps: Type the @ symbol in your post or comment. Start typing the person’s username (e.g. @JaneSmith). A list of matching names will appear - click the correct one. The name will turn into a link once posted. Example: Tips for Tagging You can tag more than one person in a post. Make sure you spell the username correctly. We hope the above instruction is helpful in making your conversations more personalised. If you need further support or guidance navigating the Online Network, please contact our Helpline 1800 500 258.Re: Molecular Profiling? Chemo?
Thankyou for starting the conversation Teta and sorry that you have to make these types of decisions at all - it must be difficult. While we wait for others to respond with their own experience, you may also like to read out website page https://www.bcna.org.au/resources/screening-and-diagnosis/family-history-and-genetics/genomic-testing-tumour-profilingRe: Hot Flushes
Hi misglen - Thankyou for starting the conversation. While we wait for others to respond, we thought you may also be interested in the chat found here in relation to Veozah Veoza for hot flushes | BCNA Online Network and also our website news item Two new treatments recommended for people with breast cancerAI Breast Cancer Risk Tool Back in the Spotlight 🧠
A topic that's come up in our Online Network in recent times is making headlines again - the use of artificial intelligence (AI) to better predict breast cancer risk. ABC News has reported on the new Australian research showing that an AI tool called 'BRAIx' can identify women at high likelihood of developing breast cancer even when their mammograms show no signs of cancer. Read more via the link Artificial intelligence detects high breast cancer risk in women given all-clear According to the study, 1 in 10 women who fell in the top 2% of risk scores did go on to develop breast cancer, despite having been given the “all clear” at screening. The team behind the project says the tool could be ready for wider use within about five years, potentially opening the door to more personalised screening rather than the current one‑size‑fits‑all approach.Welcome to the Group – Multilingual Breast Cancer Resources Available
We’re glad you found our Culturally and Linguistically Diverse (CALD) group! If you or someone you care for prefers information in a language other than English, Breast Cancer Network Australia (BCNA) offers a range of Multilingual resources designed to support people from culturally and linguistically diverse communities. What’s available? BCNA provides translated information in multiple languages, including resources about: Understanding breast cancer Treatment options and side effects Living well during and after treatment Support services and navigating the health system These resources are designed to help everyone feel informed, supported, and included. We’re here for you🤝 If you have questions or need help finding resources in your preferred language, please reach out to BCNA's Helpline 1800 500 258 or call The Translating and Interpreting Service (TIS) on 13 14 50 ask to call Breast Cancer Network Australia.
Groups
LGBTIQ+ & breast cancer
We recognise that the breast cancer experience can be uniquely complex for LGBTIQ+ individuals. From navigating healthcare systems that may not always feel inclusive, to dealing with assumptions about gender, bodies, relationships, and identity—this group exists to honour and support those experiences in a safe, affirming environment.Breast cancer awareness
PUBLIC GROUP - This group is for anyone passionate about raising awareness of breast cancer, whether you're here to learn, support a loved one, share resources, or help spread the word. Together, we explore ways to increase understanding, reduce stigma, and encourage early conversations about breast health. You don’t need to have a diagnosis to be part of this space—just a willingness to connect, listen, and contribute to a more informed and compassionate community. This group is open to the public (not just members of our online network) to help broaden access to important information, practical advice, and peer support.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.Carers corner
Whether you're caring for a partner, parent, child, or family member, this group offers a safe and understanding place to connect with others in similar roles. Share your experiences, talk through the personal challenges of being a carer, and find support from a community that truly understands the emotional and practical realities of caregiving for a loved one with breast cancer.Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
